I have the shakes all the time, I suffer from fatigue and I have found that the worse my fatigue is, the worse my shakes or tremmors. I have been dx'ed with ms for 13 years. earlier in my dx I also would loose where my legs, feet,and hands were placed. I would wake up and have the sensations and also just if I were sitting or laying down. I could place my hand on a surface and within a few seconds lose the feeling of where they were. couldn't tell if my legs were crossed or side by side. It lasted about two years and I have only felt it a few times since, when before I had it all the time. Now I am going through the shakes so bad that my handwriting is hard to read. I also jerk and drop things a lot. My neuro. says he thinks it is because I am not getting to sleep at night. I think he's daffy. Little sleep might have a little to do with it but I believe it is more than that. I feel it deep inside, the quivering especially when I wake up. good luck, remember all these things are usually temporary,
Becky
Thank you so much for this, nice to know I am not totaly crazy :)
My best,
Dagun
I have this internal tremor quite a bit. I also get an obvious head tremor. I think this is pretty common in MS.
The problem with your hands sound a little like numbness. I have had trouble with this and have awoken to paralysis in my arm/hand. This can also be due to MS.
Lulu, ég er örugglega ekki með UTI því ég fletti því upp og engin önnur einkenni eiga við mig. En takk fyrir þína íslensku hjálp ;), reyndu nú að lesa þetta á google ensku ;D góða skemmtun! En mjög gott að geta svarað á eigin tungumáli!
JJ, I now get that it seems like we can have all kinds of tremors, twiches, cramps going on. It has not happen to me again since the other night and It did not last for long, so I guess I will just see if it happens again and be sure to tell my neuro about this. I am writing all strange stuff that happens down so I have enough for the neuro to think about! But thank you so much for your help, I really appriciate all of you trying to help me.
Alex, thank you also for your input and yeah it sure is great to have all of you to compare and help figuring things out :). How did you know this so very Icelandic phrase??? Do you even know what it means? :) it means something like "Not everything is clear even though you know (or see) part of it" so propriate in this forum! Oh, you are all so great!
My best,
Dagun
Yes, I experience tremors at night, mainly in my left arm. JJ's response gave me some insight into potentially a new sx.
As I lay in bed last night I felt for the first time like I had a faint buzzing all through my arms, legs, torso. It was much much more subtle than a vibrating cell phone but I do relate to that analogy. Very happy to know someone else experiences this too.
I love the fact that we can share our weird symptoms with each other. It's quite a learning experience.
Kálið er ekki sopið þótt í ausuna sé komið
Blessings
Alex
Blessings
Alex
The internal vibration on waking during the night was actually one of my first glimmers that something was off with the dx of hypoglycemia. I'd tried to explain the feeling to my then GP and even though no test confirmed my blood sugar had dropped, that was the dx she was sticking with. When it happened during the day, when i was up and active it sort of made some sense but when i woke to go to the bathroom, it was more difficult to understand how it could be related to a drop in blood sugar. My entire body was shaking with the current that flowed through me, i didn't like it!
Approx 3yrs after this first started and still prior to any understanding of what was really going on, before my world literally changed. This feeling of having swollowed a vibrating cell phone, that was disturbing enough to feel was capable of creating a rumble, that rippled and grew in its aggression. I could feel it building, didn't know how to settle the rumble i knew was coming, beyond strange and sometimes it would make me moan in frustration because i couldn't stop it, I couldn't will it away lol how silly to think i ever could.
I can be sitting cross legged on the floor, standing at he sink, laying down, sitting in a comfortable chair, it just doesn't matter what position my body is in at the time it finaly hits. The rumble builds and builds, it isn't jerking as such more like rippling, rythmic rolls and my whole body moves with it. If you visualise a muscle that is pulsing in its spasm, easily visible as it bulges out under the skin. well sort of the same thing but its like every muscle in my entire body contracts and relaxes, repeating over and over lasting minutes to hours.
I dont know if its wishfull thinking or something else but i listen to the warning now, I dont try and fight it anymore. I lay down to stop any of my muscles from needing to work, I meditate directing my focus on releasing the tension i can feel building in my muscles. I often wake feeling like i'm shaking, i dont try to move until its settled or lol i'm less confused by whats going on, its still one of the strangest feelings i've found to get use to.
For me its totally different to the feeling i have when just one section or spot on my left calf vibrates, I got use to that but this one I never have and its been years, lol still waiting for the day when it wont be so alien to me. lol a girl can dream, can't she?
Does that sound familar at all to what your experiencing?
Cheers..............JJ
dagun,
Hefur þú verið merkt fyrir þvagfærasýking (uti)? Ég var á spítala síðasta ári vegna uti sem fékk virkilega slæmt. Ég hafði slæm tilfelli af skjálfta, gestur kuldahrollur. Vinsamlegast að athuga með lækni. Þetta er mjög algengt með MS.
(Have you been checked for a urinary tract infection (UTI) ? I was in the hospital last year because of a UTI that got really bad. I had a bad case of tremors, called rigors. Please be checked by your doctor. This is very common with MS.)
Þetta byrjaði sem mjög lítill skjálfti sem ég hafði sérhver nú og þá, en það fékk mun verri og tíminn gekk eftir.
talk to your doctor, ok?
Lulu
Thank you all for comments :).
Houseofallbous: I would think that what you describe would be some kind of muscle twitch, because I have had them also and that sometimes looks like there are snakes or something inside you? Creapy! :)
Sidesteps: Yes, it is difficult to describe, I even, at first in the dark, though that I was shakin but it was quickly over and then I started to feel like it all was from the inside. So strange.
Laura: Please let my know if your neuro says something about tremors. My next neuro visit is not untill Nov.8 :( so I would really want to know more about this sooner, if I could.
But what about not feeling where my hands were located, does anyone reconize that?
Thank you all so much!
Dagun
I've recently had this problem in my left leg. It felt like it was shaking but it wasn't on the outside, it was just internally. I talked to my neuro about it on the phone yesterday and we're going.g to discuss it further at my next appt in less than a week if it still persists. It has only been at night. In the late afternoon my leg starts to feel weak and wobbly like jello, and by the time I go to bed is when the shaking starts!
Laura
I am in limboland still just so you are aware but, yes, I have. I have a lot of tremor's, twitching and jerking but there was a period during one of my "flares" I had several of these weird internal tremor's and would wake feeling like vibrations or shaking. It's really hard to describe. I even see tremor's in my vision at times so I know this can affect many parts of our body.
I haven't been dx with anything but I have constant tremor in my stomach area and in my legs. When I cross one leg over the other my leg is in a constant bouncing motion. Another example if I lay down and put my cell phone or anything on my stomach area the object bounces up and down ....I have my drummer inside of me lol...Not sure what is causing mine I'm so use to it I hardly notice it anymore..
Good Luck
Sorry you are feeling like this. I can't really be of any help on this but wanted you to know that I am thinking about you and hope you get answers to what this is.
Paula