Hello everyone!! I've been having ms like symptoms for some time now. Finally got some insurance through my employer, thank heavens. I've been having tremors since all my symptoms started and they seem to be getting worse. I was wondering if anyone of you have been having problems with them too. I'm having them in my head and torso. When Im active they dont bother me. When Im sitting down and at rest they can get bad.
Everything that I have read seems to suggest that tremors for MS tend to be when you are in motion. For instance, if I hold out my hands to see if I can keep them steady, I can do a fairly good job of this. However, if I try to put sugar in my coffee with a spoon, the is about a 50% chance that it won't make it into the cup.
This is called an intention tremor, I guess because you are intending to do something. This is a typical MS symptom.
It sounds like what you have may be causes by some other problem.
There are plenty of people on this board who are WAY more knowledgeable than I, and I am sure that they will chime in shortly.
Good luck with your symptoms and with finding a cause.
Yup, intention tremors. I get them when my muscles are tensed, like if I'm trying to paint, or holding a coffee cup. (Spilled coffee all over the coffee table today - I guess that's what it's for!)
I also have tremors in my head and neck, and they just happen as I'm sitting here. I've got them right now. I probably look like I'm nodding gently to the music, but they're always there - sometimes small, sometimes a bit bigger. I also get a lot of muscle twitches in my neck, so I guess there's some involvement there of the nerve fibers. If I move around and put my head in a different position, it goes away.
that's not to say that you have MS - just that now you have insurance, it's a good time to start researching your syptoms.
Intention tremors can have various causes. I have them, specifically in my hands, but also in my voice, according to my neuro. However, for me they're not MS-related. I have 'essential tremor,' meaning they don't know what the heck is causing it but it's not part of any disease and is basically harmless. (Wikipedia notes that it's often hereditary, but not in my case, that I know of.) I've had this all my adult life, long before any other symptoms arose. It's been getting worse in recent months. Sometimes eating soup or cereal is a dicey operation. Sometimes doing something as simple as clicking my computer mouse is a problem, because my hand jiggles before I can accomplish anything, so if I cover the hand with the other one I can hold it still enough. Hope it doesn't get any worse!
There are meds for this and my neuro has prescribed one. I've taken it a few times, but to be honest I already take enough stuff and usually this isn't a big enough deal. I long ago got over most of the embarrassment it used to cause. People can think what they want, including that I'm withdrawing from some substance, legal or otherwise.
My neuro tends to be sort of namby-pamby, but last visit he said, "So, you've got two neurological diseases." I don't have any reason to think otherwise.
Should have added that the other major category of tremors is resting tremors. This doesn't necessarily mean that the patient is resting---it means the tremor happens when that part of the body is not trying to move or to do something.
The chief disease involving resting tremors is Parkinson's. Apparently the tremor often looks different too. Some have described it as 'pill-rolling,' where the thumb and forefinger seem to be making little circles.
I'm no expert on tremors, or anything else for that matter. However, I've had a whole lifetime to find out about them and to have doctors, mostly PCPs during standard exams, comment on them. I do think anyone with this symptom, particularly in conjunction with other disturbing happenings, should get things checked out right away.
I'm not diagnosed, but tremors are what started me on my long strange trip through limboland.
On Feb. 6 of this year, I woke up with tremors just like you are talking about I had gotten shaky hands in the past, and wrote it off to caffeine, but this was different, and came with a really bad headache at the bottom of the back of my head.
The tremors got worse over the next few days, so that my whole trunk was shaking, as well as my head and hands, and my walking became unsteady. I went and saw my PCP, who ordered a brain MRI, that showed lots of little lesions, and here I am!
My first neuro said he didn't see any tremors, but said they were probably physiological tremors brought on my stress. My second neuro saw me when my tremors were fine and barely noticeable,and she basically ignored then. I did see her one day when they were somewhat noticeable, and she recorded that the were sometimes present and sometimes not, and said something about somatization.
Yesterday I saw my third neuro while still in a flare of symptoms, with the tremors in my head, hands, and trunk going full bore. Mine seems to be combined with intention tremors; I seem to have both. I think that my neuro was more interested in the fact that I had trouble keeping my balance when walking and even more so that my right hand hurts all the way to my elbow and that I tend to drop things.
I think that tremors are thought of as a fairly benign symptom, unless they are of the Parkinsonian sort, though I'm not an expert and suppose there are other worrisome ones.
I've found that the drugs for treating them can cause more fatigue, and I have enough of that. I tried a beta blocker, as that sometimes helps, and found that I experienced just about every side effect and thought I was going into my worst flare of symptoms ever. Others are benzodiazapines, like Klonipin or Valium, which can make you feel sleepy, dopey and grumpy, lol! :o)
It's still definitely worth getting checked out. Without my tremors to lead to the MRI to point out that somethings going on, I'm afraid my dizziness, loss of balance, and other symptoms may have been totally written off as side effects of medications, or stress, or whatever.
Yesterday proved to me the importance of being seen while your symptoms are at their worst, so I would suggest that you get yourself to a doctor and have them take a look.
Thank all of you for your information and things you have experienced too. Im just getting on the road to find out what is wrong with me. I have other symptoms but the two main ones are the tremors and my jumpy eyes. Last night as I tried to sleep the tremors were so bad on my left side. I just said to myself "what the heck is wrong with me." Everyone just pray for me. I've really been going through it since the end of March.
I have the head tremors. Sometimes it subsides, but reappears later making me look like I'm agreeing with everyone. I hear that Inderal is good for treating the head type tremors. These are really difficult to get rid. I have a lesion in the cerebellum that may be causing the problem. Since my relapse in February, I've had these tremors reappear on and off.
I get the jumpy eye thing, too. What other symptoms do you have?
Have you ever been to a neurologist? It sounds like you need to see one.
Does sound like intention Tremors are more common, check your other medications especially any for depression or mood disorder. I am not saying you have those conditions but doctors thought that my medication was causing my tremors at first. The doctors were wrong. I have a hard time with eating and reading because my hands wont stop shaking. Also I wake up at night with tremors doctors dont know why this happens but they are looking into Beta blockers to help off set the tremors.
I havent been to a neurologist yet. Im wanting on my insurance cards to come. When it does come I have to get a referal from my pcp with the insurance I have.
In Oct of last year I started having the jumpy eye movements in my left eye. Talked to a lady who I worked with and said she was having the same thing. All of us were under alot of stress so I didnt stress it. At the end of march at work I started having terrible muscle spasms in my legs and tremors in my head and torso. The next day along with the tremors, the spasms, pins and needles, burning everywhere. Both my hands were swollen, throbbing, weakness on my left arm. I still have most of those symptoms but they are no ware near as bad.
In June I started getting very fatigued, dizzy, nauseated. The fatique was horrible. No one could understand!! I could barely get off the couch. Went to the pcp, the er. No one would do anything for me because I didnt have any insurance. So here I am now. I cant wait to get the testing done, yet Im nervous because I dont know what to expect. My life has changed since I started having all these symptoms. Im only 28 yrs old and living like a grandma right now. Not very active. I thank all the people on this board. I have been reading the doctor list, the meds etc. Without all of you I really would be in even more limbo. Thank you.
Thanks for the information. I am currently taking Fllexeril and Xanxax, but they were not perscribed for me. I got them from a friend who knows I have been having a hard time and helped me out. I find when not taking those meds the tremors or horrible the next day. I didnt want to start taking those meds like that but I had to do what I had to do to be able to work. Im not having the intentional tremors. Im having the resting ones. When Im holding something I dont have any. When Im standing I dont feel no tremor. Only when Im sitting or laying down in the bed. I can feel my body just rocking back and forth along with my head. I finally posted here today because they were so bad yesterday night and was wondering if anyone here was having the same problems. When I go to the doc next week I will keep you posted. Thanks.
When u see the Neuro u might want to leave out the part about taking someone elses meds. I understand your frustration but be careful at work as well. If u get hurt and they do a drug test you may come up hot and if you dont have a legal prescription you could be terminated. Trust me I have a lot of knowledge in this area. Dont worry your secret is safe with me :) (and the rest of the online community lol) My wife wanted to add that I definately have tremors that are not intentional tremors because they happen when I am sleeping. If thats not a non intentional tremor I dont know what is.
Lol, thanks for reminding me of that. In the line of work I do it is very possible to get injured easy and they are doing drug test too. Im only telling the doc my symptoms. He dont have to know what I have been taking to help myself. My former pcp provided me with free ambien cr samples thinking I had a sleeping disorder. I didnt like the way I felt the next day after taking it. I just stopped taking it, lol.
I HAVE HAD HEAD TREMORS FOR AS LONG AS I CAN REMEMBER, THE OLDER I GET THE WORSE IT GETS. MY HUSBAND SAYS I SHOULD JUST GET OVER IT, ITS NOT THAT BIG A DEAL. BUT IT REALLY AFFECTS YOUR SELFESTEEM. I HAVE JUST STARTED RESERCHING ABOUT THIS TO TRY AND FIND SOMETHING TO HELP BUT I KNOW I DONT WANT TO BE ON ALOT OF PILLS THAT AFFECT ME NEGATIVELY AND CAUSE HEALTH PROBLEMS. IM WONDERING IF ANYONE HAS TRIED ACUPUNCTUE AND IF SO HAS IT HELPED?
Sorry about your tremors and your husband ;-) Of course it affects your self esteem. But acupuncture is a scam. Don't waste your money. If you want details, please google "skepdoc acupuncture" for a recent article in the magazine "Skeptic." Acupuncture is not an ancient Chinese medicine; it is not based on any known physiology (i.e., there's no reason it should work, unlike things like yoga and antibiotics, which do have great scientific explanations); and it doesn't work any better than a placebo, or sugar pill. Other members may disagree and say it worked for them; fine, they bought expensive sugar pills in the form of needles.
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