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Trying to find answers for 10 years
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Trying to find answers for 10 years

Hello everyone, I am new to Medhelp, I am just searching for any way to get help or answers. Ive been to countless doctors and feel like I'm still at square one. Let me start off by saying I dont know if all these things are related, but I know it has taken over my life and I just want some help.
Sorry for the long post, i just wanna give an idea of whats been going on, thanks for reading...

Ill start with when i was a kid i had a handful of what i would call "sleep seizures", i feel like i was falling backwards in my dream and then wake up and my eyes are moving side to side and i couldnt stop it, i would just hold my head and wait 10-15 seconds for it to go away, after that i would be nauseous for almost 2 days. I had maybe 1 or 2 a year, totaling about 10 times, as i got older it happened less and less and havent had an episode in years i would say.
Jump to when i was 23, i was at work, and got lightheaded and off balance all of the sudden, almost like a white haze or when you see stars from bumping your head. That never went away, and i still have it to this day. I had a brain MRI and multiple blood tests and they found nothing, told me the old go to answer....anxiety. I wasnt anxious at all. Around that same timeframe i found out i have a 4th nerve palsy in my left eye, i started getting double vision when i look to the right, dont know when it started, i just know i wasnt born with it. i lived with the "lightheaded" hazy off balance feeling for 8 years and just dealt with it. Well last year multiple things started happening all at once, first i think was the muscle weakness and tremors, the stiff and tightness in my neck. I get random twitches all over my body, and my eyes twitch non stop, when i close my eyes hard and open them, my eyelids twitch like crazy. Then my vision off balance situation got a little worse, i can now see some floaters in my vision that never go away. Then came the chronic fatigue....i am so drained i dont know how to explain it, i am always so tired i can just go to sleep whenever. Muscles get tired very quick, even holding my arms up gets tiring after a short time. Also i started spacing out a lot and feeling really foggy and out of it, the feeling you get when you daydream, it happens all the time and i have to consciously snap myself out of it. The weird this is when this happens, my left eyes drifts up some from the nerve palsy so i see double vision and feel like im out of it and cant focus. I had another brain mri and it was the same as the first one, everything fine. many blood tests, all ok. Ive lost track of all the tests but they keep trying to say i have anxiety and thats not it! Im not anxious UNTIL the health problems get worse. Around the time i started going downhill last year, stomach problems started too, ive had stomach pains for 8 months now. I had a upper endoscopy and he found reflux damage and inflamed duendum i think its called. I got diagnosed with GERD and am taking nexium with no progress on that. Ive read that low stomach acid could actually be the cause and my food isnt getting digested and nutrients getting absorbed. I guess Im just looking for any help or opinion i can get, it has taken over my life and im so out of it 24/7 i feel like nothing is real and im so tired, theres just so much its overwhelming. Could leaky gut be the underlying cause of all this? Or do i maybe have ms or some other autoimmune disease? all tests from 3 family doctors, neurologist, eye doctor, stomach doctor, ENT have found only sinus issues (which ive always had also), and the reflux damage from GERD. I dont know what to do, im suffering and in debt from all this with no real answers....
3 Comments Post a Comment
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1756321_tn?1377771734
Low stomach acid is a common cause of GERD. My mother had severe GERD and severe LPR which she no longer suffers either with since ditching Nexium (well worthy of the nickname purple pill of misery) since taking betaine HCL with pepsin supplements to increase stomach acid as well as digestive enzymes to help with digestion (stomach acid signals the pancreas to send down the enzymes to help with digestion).  Also consider the esophageal sphincter is being affected not by stomach acid pH levels but due to your neurological issues.

Medscape - Trochlear Nerve Palsy...

"The underlying etiology of congenital disease remains obscure; there is debate as to whether it is the result of dysgenesis of fourth nerve nucleus or from abnormal development of peripheral nerve or tendon.

* The most common cause of acquired isolated fourth nerve palsy, after idiopathic, is head trauma.[7, 8, 9]

* Generally, trauma must be severe with resultant loss of consciousness.

* One must consider the possibility of underlying structural abnormalities, if fourth nerve palsy results after only minor trauma.

* Microvasculopathy secondary to diabetes, atherosclerosis, or hypertension also may cause isolated fourth nerve palsy.[10]

* There are rare reports of thyroid ophthalmopathy and myasthenia gravis presenting as isolated fourth nerve palsy. These patients eventually develop other findings, unmasking the underlying diagnosis.

* Tumor, aneurysm, multiple sclerosis, or iatrogenic injury may present with isolated fourth nerve palsy that may evolve over time to include other cranial nerve palsies or neurologic symptoms.[11]

* Fourth nerve palsy may become manifest after cataract surgery. Patients with underlying, well-controlled, and asymptomatic fourth nerve palsy may decompensate gradually as they lose binocular function resulting from cataract. Following restoration of good vision, these patients become aware of diplopia."
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1831849_tn?1383231992
Hi Danny - Welcome to the group.

Many of our participants have vision issues which make reading a large block of text impossible to read. I've taken the liberty of breaking up you original post.

Kyle

Hello everyone, I am new to Medhelp, I am just searching for any way to get help or answers. Ive been to countless doctors and feel like I'm still at square one. Let me start off by saying I dont know if all these things are related, but I know it has taken over my life and I just want some help.
Sorry for the long post, i just wanna give an idea of whats been going on, thanks for reading...

Ill start with when i was a kid i had a handful of what i would call "sleep seizures", i feel like i was falling backwards in my dream and then wake up and my eyes are moving side to side and i couldnt stop it, i would just hold my head and wait 10-15 seconds for it to go away, after that i would be nauseous for almost 2 days. I had maybe 1 or 2 a year, totaling about 10 times, as i got older it happened less and less and havent had an episode in years i would say.

Jump to when i was 23, i was at work, and got lightheaded and off balance all of the sudden, almost like a white haze or when you see stars from bumping your head. That never went away, and i still have it to this day. I had a brain MRI and multiple blood tests and they found nothing, told me the old go to answer....anxiety. I wasnt anxious at all.

Around that same timeframe i found out i have a 4th nerve palsy in my left eye, i started getting double vision when i look to the right, dont know when it started, i just know i wasnt born with it. i lived with the "lightheaded" hazy off balance feeling for 8 years and just dealt with it.

Well last year multiple things started happening all at once, first i think was the muscle weakness and tremors, the stiff and tightness in my neck. I get random twitches all over my body, and my eyes twitch non stop, when i close my eyes hard and open them, my eyelids twitch like crazy. Then my vision off balance situation got a little worse, i can now see some floaters in my vision that never go away. Then came the chronic fatigue....i am so drained i dont know how to explain it, i am always so tired i can just go to sleep whenever.

Muscles get tired very quick, even holding my arms up gets tiring after a short time. Also i started spacing out a lot and feeling really foggy and out of it, the feeling you get when you daydream, it happens all the time and i have to consciously snap myself out of it. The weird this is when this happens, my left eyes drifts up some from the nerve palsy so i see double vision and feel like im out of it and cant focus.

I had another brain mri and it was the same as the first one, everything fine. many blood tests, all ok. Ive lost track of all the tests but they keep trying to say i have anxiety and thats not it! Im not anxious UNTIL the health problems get worse.

Around the time i started going downhill last year, stomach problems started too, ive had stomach pains for 8 months now. I had a upper endoscopy and he found reflux damage and inflamed duendum i think its called. I got diagnosed with GERD and am taking nexium with no progress on that. Ive read that low stomach acid could actually be the cause and my food isnt getting digested and nutrients getting absorbed.

I guess Im just looking for any help or opinion i can get, it has taken over my life and im so out of it 24/7 i feel like nothing is real and im so tired, theres just so much its overwhelming. Could leaky gut be the underlying cause of all this? Or do i maybe have ms or some other autoimmune disease?

All tests from 3 family doctors, neurologist, eye doctor, stomach doctor, ENT have found only sinus issues (which ive always had also), and the reflux damage from GERD. I dont know what to do, im suffering and in debt from all this with no real answers....

Tags: ms, lightheaded, dizzy, eyes, palsy, GERD, Acid reflux, sinus, Chronic Fatigue Syndrome, off balance, need help
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Avatar_f_tn
Hi. Welcome to the community. You're dealing with a lot and I'm sorry that you've been down so many different avenues without any answers. I don't have much to say that might be helpful to your medical situation, but I hope that you will get some help for your symptoms soon. Maybe you could ask your doctor to try a different medication since you're not improving with the one they have you taking?
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