I was dx in July 06. For three years I took Avonex. every four to six months I was doing iv steroids. I have Optic neritus and it keeps flaring up. The steroids to clear it up for a while but I hate the steroids. In Oct 09 I swithced to copaxone but had an allergic reactions . now on Betaseron. I had another flare up and a new MRI MRi show new lesions and expanded ones around my optic nerve. I am scared to change meds but I am scared to go blind. Expect my vision I am relativly healthy. some leg numbess but nothing to worry about.
Hi and welcome to this amazing forum, where you will find so many answers and opinions to your questions.
Last year I went to see my 'ex neuro' who wanted to put me on Tysabri, I, after many arguments with him declined this treatment, due to the s/e and have opted for Copaxone again with another Neuro.
Like Lulu said, I also think that Tys. is a last resort - so why do you want to come off Betasaron?
Take care,
Debs
Tysabri seems to be the topic of the day. There is another member asking about it today too. I'm bumping this up in hopes to keep them close together.
I'm with Lu, please do tell us if you feel comfortable to, what's happening for this new consideration to come into play.
I have heard good things about Tysabri. I'll find the discussion of users and post it here.
Hi and welcome. I don't believe our paths have crossed yet here on the forum. There are only a few folks here on Tysabri, but we have discussed it a number of times.
If you get the time and feel inclined, please share a bit more about your journey with MS and why Tysabri is now an option for you. We tend to think of it as a drug of last resort when the other therapies have failed to slow the disease progression.
Welcome again. I hope to see you around again.
Lulu