Tysabri

[morladybug]

My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif).  Any persons out there on Tysabri that could share their experience?

[morladybug]

Thank you Rita, Shell and Quix for the helpful comments.  Feel so much better when not facing new stuff alone.  Gloria

[Cosmobirdy]

Hi, and welcome to the forum.  

I am also on Tysabri - in fact, I have to leave shortly and get infusion #39.  I was on Rebif, too, for the first 6 months after I was diagnosed.  I was sick all the time on it, and continued to go downhill quickly.  That's when Tysabri came into the picture.

I just got the results of my JC virus test, and I am JC positive.  Even so, both my neuro and I feel I would be doing alot worse if I wasn't on Tysabri, so at this point I am staying on it.  It has not always been an easy ride, but we still feel it is the best thing for me at this point.

I have to go get ready to head out, but will be happy to answer any questions you may have.  Feel free to PM me if you'd like.  I remember how difficult the decision to start Tysabri was, and I am happy to help in any way I can.  One thing I do recommend is that you read as much as you can about Tysabri before making your decision.  That way you will feel more comfortable with the potential benefits as well as the risks.

Bye for now,
Rita

  

  

[sllowe]

Welcome Morladybug,

I also bumped up a Tysabri Users post - hope you see it.
Thank you for joining us. And, hope we can help. Sorry the Rebif didn't work out, hopefully this one will!
-Shell

[Quixotic1]

Welcome, Neighbor!

We have several people on Tysabri, me included.

I'm headed to bed, but I just wrote up some of my new experiences on it in a Journal entry.

http://www.medhelp.org/user_journals/list/147426?personal_page_id=875209

Talk to you later, others will be around tomorrow.

Quix