Unexplained Seizures in longtime M.S.

[Marysianminds]

My mum has had M.S. for about 18 years and is now only able to use her facial muscles. She is currently struggling with her voice and swallowing reflex. She started suffering audio and visual hallucinations two months ago that the Dr.s can only put towards delayed side effects of the medicine: baclofen, simvastatin, lexapro, and zanaflex. She was hospitalized for incoherency a month ago, but all tests came back clear/ unchanged. She has had extremely low blood sugars irregularly lately, and last week it took me four hours of feeding her sugar and food to get it back up to a safe zone (she pleaded no pen). She had two seizures this morning, and is in the hospital with no explanations after a clear CT. they are waiting for the dr to make a decision to do anything, but no one has answers as to why she has seizures.
This all is recent. Since Christmas she has battled a tunneling wound and has a vac pac on, and the MRSA and bone infection have been cleared for a month. Everything else is unchanged. THank you for your time.

[Marysianminds]

Just for anyone else who might ever come across this: My mom fought. I spent every night with her while she was in the hospital, made sure she was never alone while awake. I never showed her a tear, told her if she wanted to see my sister again, she had to hold on. She was weaned off prophenol, yet still managed lucid moments. I let her hear all her grandkids throughout her stay, despite some phone Nazis, and I think that helped give her strength.
Her third morning in the hospital, she was able to blink on demand and open and close her mouth. Two hours later, she gave me the slimmest of head movements in 'yes' response. When I told her I saw that, she burst into the biggest smile and proceeded to move every muscle she could on her face. She exhausted herself within a few hours.

On day three of her stay, she was off the prophenol and allowed to breathe on her own during the day. Day five, they took the tubes out completely- on her insistence- even though she still hadn't cleared her left lung completely of pneumonia. She is home now, on the fifth day, on full hospice, with my sister and family finally there.

Future seizures are most likely, but when and how bad is not known. She is still on the Keppra, and none of her MRIs or CATs showed any visible changes since the last six months or a year ago.
She chose to go off full code so she could see my sister's kids, and I'm pretty sure she's done when the next Big THing hits, but at least she got to do the one thing she really wanted to before she does go: see my sister and her family.
I hope this helps anybody else- somewhere, somewhen. God bless and God speed.

[suspiciouscombo]

My sincere thoughts and prayers are with you in all cardinal directions. Sending Colossal hugs your way -------->>>>>>>

Very truly -
SCombo

[bbassel]

I can't imagine how you must be feeling right now. I Will be thinking of you and your mom.

All the best

Barb

[mikeysmom1995]

Very sorry for all you are going through. I will keep you in my thoughts and prayers.
Barb

[HVAC]

I am so sorry. How are you holding up?

Alex

[Marysianminds]

New diagnisis: they think it's the end stages. prayers for a peaceful way out. Right now she's catatonic. Could be a week, could be a year. They're going to check brain activity and put her on Keplar seizure meds.

[shannon_xray]

Seizures are rare in MS from what I read but they can happen.  I am SOOOOO sorry you and your mom are going through such a hard time.  I will remember her in my prayers.  

Hugs!  
Shannon