Aa
Update and ANYONE have any ideas?? :(
Just a little backround info for those who are new to the forum....I had been seeing an MS Specialist he was convinced I had MS, but wanted a second opinion from the MS director of the UofM before he started me on DMD again.....
UofM neuro didn't think I had MS but thought I had Stiff Man's Syndrome. And took 2 blood tests to confirm which came back negative. UofM neuro wants to retest me for Sjogren's again....tested neg in Oct.
I am back to square one. :( I am depressed to say the least. Since April 6th when I posted last....I spent the night in the ER. (they kept me overnight)...been back to the neuro from UofM....and to my Gyn to see if my current symptoms are hormone related. (Gyn doesn't think hormone related) I am 54.
I have been feeling horrible. I have been reducing my prednisone that I have been on for 1 1/ 2 years. ( the highest was 15mg) I have been on 9mg since January. I was down to 5mg every other day... I felt so bad a week ago Friday my PCP gave me a shot of SoluMedrol 60mg. He thought I was reducing the prednisone too fast. He said I was going into adrenal failure. He told me to go back up to 5mg a day which hasn't made any difference in my symptoms.The UofM neuro told me to reduce even faster than what I was doing.
My PCP wants me to see an Endocrinologist. I tried to explain my current symptoms started BEFORE I started reducing the prednisone and now have only gotten worse.
I have almost constant "hot flashes" which start with a pain in my stomach radiating to my back.... extreme heat traveling up to my chest and face....tingling on my right side of my face, both arms and legs then turning beet red all over my body and sweating....accompanied by dizziness, heart pounding, muscle pain and weakness, and feeling short of breath.
I am extremely heat intolerant....I can't go outside or even cook dinner without bringing on a bad attack. I have to go and sit down with a fan blowing on me. I am unable to stand long either. I can't sleep at night and wake up constantly from hot flashes then freezing half hour later. I also can't stand to be cold either....the muscles in my back extremely tighten up and I shiver. 'Cold' could just be a fan hitting me!
I have trouble walking and my left leg is weak. I still have transcient tingling and electric like sensations in my fingers and big toe. I have severe upper and mid back pain. My balance is also affected. My bladder and bowels aren't working normally and I have severe heartburn most of the time. I feel like I am falling apart. This has been going on for 4 months now.....worsening day by day.
When I saw my PCP the other day he took my Cortisol and ACTH levels (bloodwork) I should hear the results Tues.
Does these set of symptoms sound familiar to anyone?? Has anyone had this effect from prednisone tapering?
It is like my autonomic nervous system is wacked out!! Could MS cause these kind of symptoms? Any answers will be helpful. I feel so alone...
Thank you!
Laurie
UofM neuro didn't think I had MS but thought I had Stiff Man's Syndrome. And took 2 blood tests to confirm which came back negative. UofM neuro wants to retest me for Sjogren's again....tested neg in Oct.
I am back to square one. :( I am depressed to say the least. Since April 6th when I posted last....I spent the night in the ER. (they kept me overnight)...been back to the neuro from UofM....and to my Gyn to see if my current symptoms are hormone related. (Gyn doesn't think hormone related) I am 54.
I have been feeling horrible. I have been reducing my prednisone that I have been on for 1 1/ 2 years. ( the highest was 15mg) I have been on 9mg since January. I was down to 5mg every other day... I felt so bad a week ago Friday my PCP gave me a shot of SoluMedrol 60mg. He thought I was reducing the prednisone too fast. He said I was going into adrenal failure. He told me to go back up to 5mg a day which hasn't made any difference in my symptoms.The UofM neuro told me to reduce even faster than what I was doing.
My PCP wants me to see an Endocrinologist. I tried to explain my current symptoms started BEFORE I started reducing the prednisone and now have only gotten worse.
I have almost constant "hot flashes" which start with a pain in my stomach radiating to my back.... extreme heat traveling up to my chest and face....tingling on my right side of my face, both arms and legs then turning beet red all over my body and sweating....accompanied by dizziness, heart pounding, muscle pain and weakness, and feeling short of breath.
I am extremely heat intolerant....I can't go outside or even cook dinner without bringing on a bad attack. I have to go and sit down with a fan blowing on me. I am unable to stand long either. I can't sleep at night and wake up constantly from hot flashes then freezing half hour later. I also can't stand to be cold either....the muscles in my back extremely tighten up and I shiver. 'Cold' could just be a fan hitting me!
I have trouble walking and my left leg is weak. I still have transcient tingling and electric like sensations in my fingers and big toe. I have severe upper and mid back pain. My balance is also affected. My bladder and bowels aren't working normally and I have severe heartburn most of the time. I feel like I am falling apart. This has been going on for 4 months now.....worsening day by day.
When I saw my PCP the other day he took my Cortisol and ACTH levels (bloodwork) I should hear the results Tues.
Does these set of symptoms sound familiar to anyone?? Has anyone had this effect from prednisone tapering?
It is like my autonomic nervous system is wacked out!! Could MS cause these kind of symptoms? Any answers will be helpful. I feel so alone...
Thank you!
Laurie
FWIW - If I had a neuro exam this morning, I think I'd be normal!!!!!
I think your MS Specialist will treat you - I just do.
It's this sort of thinking (2nd neuro) that is along the lines of what we've heard here sometimes...It goes something like this...., Well....... you don't have anymore lesions (after being treated w/a DMD for years for MS) so I don't think you have MS. All the while this is exactly what the disease modifiers are shown to do! Modify, slow the course, etc. For some, it ceases activity and so on.
Get into your specialist. And, add this question to the list..... How often do MSers have normal exams? Is it normal to have a "normal" exam now and again? I'd venture to say this doc will say "absolutely."
-Shell
I think your MS Specialist will treat you - I just do.
It's this sort of thinking (2nd neuro) that is along the lines of what we've heard here sometimes...It goes something like this...., Well....... you don't have anymore lesions (after being treated w/a DMD for years for MS) so I don't think you have MS. All the while this is exactly what the disease modifiers are shown to do! Modify, slow the course, etc. For some, it ceases activity and so on.
Get into your specialist. And, add this question to the list..... How often do MSers have normal exams? Is it normal to have a "normal" exam now and again? I'd venture to say this doc will say "absolutely."
-Shell
I totally agrre with AvaQ and your last comment. With your doc having 30 + years of being an MS specialist then I would stick with him.
All of my testing was "normal" when I was first diagnosed by my doc who has been an MS neuro for almost 40 years. He based it on clinical exam and history since that is how he was taught before the advent of MRIs ,etc.
He was on the money now that my MS fits more of a "classic" pattern.Trust your guru, mine has served me well! I , too , have autonomic dysfunction and a lot of your same symptoms. Went through adrenal testing due to high BP years ago, yadda, yadda, you know the story...you are living it.
Sending you best wishes and lots of hugs as you struggle through this!!!
Ren
All of my testing was "normal" when I was first diagnosed by my doc who has been an MS neuro for almost 40 years. He based it on clinical exam and history since that is how he was taught before the advent of MRIs ,etc.
He was on the money now that my MS fits more of a "classic" pattern.Trust your guru, mine has served me well! I , too , have autonomic dysfunction and a lot of your same symptoms. Went through adrenal testing due to high BP years ago, yadda, yadda, you know the story...you are living it.
Sending you best wishes and lots of hugs as you struggle through this!!!
Ren
Thanks Ava! My MS doc wanted to start me on a stronger DMD BUT first wanted to rule out possible rare neuro disease.....not MS!
Knowing my MS doc, I would be shocked and disappointed if he dismissed me due to the letter from the UofM neuro!!
For goodness sakes, he (my MS doc) just examined me the week before...I would think he would be pretty embarrassed if he examined a patient and dx them with MS and the very next week the patient was examined perfectly normal!!!
My MS doc is called the 'MS guru' here in South Florida. He has over 1000 MS patients and has been an MS specialist for 30+ years....I trust him!
I will let you know what happens!!
Knowing my MS doc, I would be shocked and disappointed if he dismissed me due to the letter from the UofM neuro!!
For goodness sakes, he (my MS doc) just examined me the week before...I would think he would be pretty embarrassed if he examined a patient and dx them with MS and the very next week the patient was examined perfectly normal!!!
My MS doc is called the 'MS guru' here in South Florida. He has over 1000 MS patients and has been an MS specialist for 30+ years....I trust him!
I will let you know what happens!!
Oh Laurie, you must be so stressed! I have to say, the UofM neuro does sound like the sort of doc you want to run away from - VERY FAST!
I'm hoping you can see your original MS Specialist as soon as he gets back, AND that he's man enough to stick with his original diagnosis. For what it's worth, I'd be telling him that if he sent me for a second opinion to rule out something rare, and 'something rare' was ruled out, then the original diagnosis should stand. PLUS all the literature says early treatment is important - if he diagnosed you with MS, then it seems to me an awful big risk for him to take if he discounts his POSITIVE clinical findings because of another doctors negative findings (when he wasn't there for the exam).
To me it all seems very straightforward and logical, but I guess that's why I'm not a neurologist! Lol! Just know that I can sympathise with your frustration and I'll be hoping and praying things get sorted out for you ASAP.
Best wishes,
Ava
I'm hoping you can see your original MS Specialist as soon as he gets back, AND that he's man enough to stick with his original diagnosis. For what it's worth, I'd be telling him that if he sent me for a second opinion to rule out something rare, and 'something rare' was ruled out, then the original diagnosis should stand. PLUS all the literature says early treatment is important - if he diagnosed you with MS, then it seems to me an awful big risk for him to take if he discounts his POSITIVE clinical findings because of another doctors negative findings (when he wasn't there for the exam).
To me it all seems very straightforward and logical, but I guess that's why I'm not a neurologist! Lol! Just know that I can sympathise with your frustration and I'll be hoping and praying things get sorted out for you ASAP.
Best wishes,
Ava
Thanks for the encouragement shell!!!!
Yes, I now have a copy of the letter that was addressed to my MS specialist after my 1st appointment with the UofM neuro the beginning of April.
He (UofM neuro) writes he doesn't think I have MS. He goes on to say my neuro exam was NORMAL!! He tells my MS doc that he is testing me for Stiff Man's Disease and if that comes back negative he wants to put me on an intensive exercise program!! WHAT A JERK!
....ONE week before I saw this UofM Neuro, My MS doc examined me and said...and I quote, "You have MS". He just wanted to send me to the UofM neuro to make sure I didn't have a rare neuro disease!
SO..... ONE week I had an exam that convinced an MS specialist I had MS then the next week my exam was NORMAL???? By the way, my neuro testing came out identical to me. (Although the UorM neuro did NOT test me as good as my MS doc.)
Since my MS doc is on vacation until July, I have to wait until my appointment on July 9th to see him. :(
Laurie
Yes, I now have a copy of the letter that was addressed to my MS specialist after my 1st appointment with the UofM neuro the beginning of April.
He (UofM neuro) writes he doesn't think I have MS. He goes on to say my neuro exam was NORMAL!! He tells my MS doc that he is testing me for Stiff Man's Disease and if that comes back negative he wants to put me on an intensive exercise program!! WHAT A JERK!
....ONE week before I saw this UofM Neuro, My MS doc examined me and said...and I quote, "You have MS". He just wanted to send me to the UofM neuro to make sure I didn't have a rare neuro disease!
SO..... ONE week I had an exam that convinced an MS specialist I had MS then the next week my exam was NORMAL???? By the way, my neuro testing came out identical to me. (Although the UorM neuro did NOT test me as good as my MS doc.)
Since my MS doc is on vacation until July, I have to wait until my appointment on July 9th to see him. :(
Laurie
Oh Laurie, I feel so bad for you. You were so close to having answers and now your back in the battle again. And even worse, you're feeling worse than you did before :(
Unfortunately, I have no suggestions for you but I really hope that you start to feel better soon.
Laura
Unfortunately, I have no suggestions for you but I really hope that you start to feel better soon.
Laura
Keep at them.......I'd push them to "fish or cut bait" as we used to say. Take a stand, someone! Girl needs some MEDS............egads......
I feel your pain, "been there, done that" just not as intense as you are going thru.......those were nightmare years....
hugs
Sarah
I feel your pain, "been there, done that" just not as intense as you are going thru.......those were nightmare years....
hugs
Sarah
Hi Laurie!
Don't get too down lady, you've got some things to square away!
Does the MS specialist who says MS, but wanted the 2nd opinion know the results of the appt. w/2nd opinion neuro and the subsequent negative testing? If so, I'm doubtful he or she will care.
An MS specialist sees many variations of MS, and should be willing to treat you for what he believes this is. My advice is to go back to this specialist and ask to be treated for what he feels this is.
-shell
Don't get too down lady, you've got some things to square away!
Does the MS specialist who says MS, but wanted the 2nd opinion know the results of the appt. w/2nd opinion neuro and the subsequent negative testing? If so, I'm doubtful he or she will care.
An MS specialist sees many variations of MS, and should be willing to treat you for what he believes this is. My advice is to go back to this specialist and ask to be treated for what he feels this is.
-shell
I'm new..within the last hour actually. I read your post. Not "officially" diagenosed yet, I have many of your symtoms, including the heat issue, the upper mid back pain. Also killer migraines, Left arm weakness, optical neuritis, facial pain, arm hand and feet numbness for moments at a time, extreme fatigue. the symptoms keep me home, have stolen my old quality of life, have lost freinds who don't understand or believe the chronic pain.
Can't "plan" any thing due to not knowing if I will feel decent enough...etc
I feel for you and others in this frustrating situation. Finding good Drs is extremley hard, wanting so much to have a day with no pain issues.
Thank you for sharing your story. Karen Kay 626
Can't "plan" any thing due to not knowing if I will feel decent enough...etc
I feel for you and others in this frustrating situation. Finding good Drs is extremley hard, wanting so much to have a day with no pain issues.
Thank you for sharing your story. Karen Kay 626
Thank you to all for your support, caring and answers....
To answer an few of your questions...
Question****What reasons did your original MS specialist have for wanting to diagnose MS?
1) After all blood work came back neg for Lyme, Sjogrens, Lupus ect.... (I still have NOT had a LP)
2) I do have a strange lesions in my brainstem (pic is on my photo page) plus a brain stem lesion that is now gone but that showed up in an old MRI....
3) By my clinical exam and symptoms my Highly respected MS specialist said 'you have MS'.... Brain lesions or not, after he saw me again the end of March...(my Feb MS protocol MRI was done in a 1.5T MRI machine)BUT before he started me on a 'stronger' DMD (I was allergic to Copaxone)...he wanted to get the opinion of his colleague from the UofM who is ALSO an expert in rare neuro diseases.....to make sure I didn't have a rare neuro disease.
Question:****Do either of the MS specialists know that your GP says your in danger of going into adrenal failure, and has given you shots and changed the Prednisone plan? I suppose what i'm wondering, is if either of the MS specialists are doing anything to help in the here and now?
1) Yes and No.....
YES, the UofM neuro knows about the 'shot' and prednisone change.
At first he got mad, but when he heard what my PCP said about adrenal failure...he then 'acted' like he didn't know I was on 'long-term' use....and agreed I shoud stay on 5mg for another 6 weeks before reducing again.
NO, the UofM neuro didn't do anything to help me...he just figures I am going to have to 'suffer' until my adrenals kick back in. My MS Specialist doesn't know about my worsening symptoms. (He is now gone on vacation until July) I have an appointment with him on July 9th.
My PCP seems to think my body needs MORE prednisone, not less. But he wants to dx me before upping my dose.
After I posted my question.....someone responded to me via private message who told me he was a nurse.....he told me to consider Mitochondrial disease....and copied an article for me to read:
http://www.umdf.org/site/pp.aspx?c=8qKOJ0MvF7LUG&b=8032195
I am going to call the UMDF (United Mitochondrial Foundation) on Tues to find a doctor in my area. From what I researched, the Cleveland Clinic has doctors who do this kind of testing....if so, I am going to the Cleveland Clinic
were a 'team' of doctors look at ALL your symptoms and put the pieces together!
I can NOT keep going on this way....getting worse and worse, with OUT any answers or treatment!!! The way my body is "freaking out" it can't be 'good' for my organs....I feel like my body is slowly killing itself! :(
Again, thank you for all your support and suggestions!!! I can't begin to explain how your responses are encouraging me and helping me not feel so alone and hopeless!!
Laurie oxo
To answer an few of your questions...
Question****What reasons did your original MS specialist have for wanting to diagnose MS?
1) After all blood work came back neg for Lyme, Sjogrens, Lupus ect.... (I still have NOT had a LP)
2) I do have a strange lesions in my brainstem (pic is on my photo page) plus a brain stem lesion that is now gone but that showed up in an old MRI....
3) By my clinical exam and symptoms my Highly respected MS specialist said 'you have MS'.... Brain lesions or not, after he saw me again the end of March...(my Feb MS protocol MRI was done in a 1.5T MRI machine)BUT before he started me on a 'stronger' DMD (I was allergic to Copaxone)...he wanted to get the opinion of his colleague from the UofM who is ALSO an expert in rare neuro diseases.....to make sure I didn't have a rare neuro disease.
Question:****Do either of the MS specialists know that your GP says your in danger of going into adrenal failure, and has given you shots and changed the Prednisone plan? I suppose what i'm wondering, is if either of the MS specialists are doing anything to help in the here and now?
1) Yes and No.....
YES, the UofM neuro knows about the 'shot' and prednisone change.
At first he got mad, but when he heard what my PCP said about adrenal failure...he then 'acted' like he didn't know I was on 'long-term' use....and agreed I shoud stay on 5mg for another 6 weeks before reducing again.
NO, the UofM neuro didn't do anything to help me...he just figures I am going to have to 'suffer' until my adrenals kick back in. My MS Specialist doesn't know about my worsening symptoms. (He is now gone on vacation until July) I have an appointment with him on July 9th.
My PCP seems to think my body needs MORE prednisone, not less. But he wants to dx me before upping my dose.
After I posted my question.....someone responded to me via private message who told me he was a nurse.....he told me to consider Mitochondrial disease....and copied an article for me to read:
http://www.umdf.org/site/pp.aspx?c=8qKOJ0MvF7LUG&b=8032195
I am going to call the UMDF (United Mitochondrial Foundation) on Tues to find a doctor in my area. From what I researched, the Cleveland Clinic has doctors who do this kind of testing....if so, I am going to the Cleveland Clinic
were a 'team' of doctors look at ALL your symptoms and put the pieces together!
I can NOT keep going on this way....getting worse and worse, with OUT any answers or treatment!!! The way my body is "freaking out" it can't be 'good' for my organs....I feel like my body is slowly killing itself! :(
Again, thank you for all your support and suggestions!!! I can't begin to explain how your responses are encouraging me and helping me not feel so alone and hopeless!!
Laurie oxo
Laurie,
My journey with the neuro is kind of the same. He "thought" MS, but I wanted a second opinion and a full year later (in which my symptoms have really gotten worse), he says time to start meds. I have had ever blood test under the sun, been tested for all kinds of odd things (all negative) . The MS specialist said no, the other 2 neuros said yes. After a phone conversation with my neuro the MS specialist said yes as well.
I did not have the prednisone, so I didn't have that added complication.
I think it's time to push back with your neuro, he always thought MS, so why not now?
Or maybe get another opinion, a fresh set of eyes to look at all the data.
(I really loved my "last set of eyes", I could see me changing and going to him, if my neuro wasn't so caring and accessible).
Have you ever been tested for Lyme? My friend's daughter had it very bad, and prednisone is the worst thing for Lyme.
Just a few thoughts, hope you feel better.
Maureen
My journey with the neuro is kind of the same. He "thought" MS, but I wanted a second opinion and a full year later (in which my symptoms have really gotten worse), he says time to start meds. I have had ever blood test under the sun, been tested for all kinds of odd things (all negative) . The MS specialist said no, the other 2 neuros said yes. After a phone conversation with my neuro the MS specialist said yes as well.
I did not have the prednisone, so I didn't have that added complication.
I think it's time to push back with your neuro, he always thought MS, so why not now?
Or maybe get another opinion, a fresh set of eyes to look at all the data.
(I really loved my "last set of eyes", I could see me changing and going to him, if my neuro wasn't so caring and accessible).
Have you ever been tested for Lyme? My friend's daughter had it very bad, and prednisone is the worst thing for Lyme.
Just a few thoughts, hope you feel better.
Maureen
COMMUNITY LEADER
Hey Laurie,
Babe, got to say you've definitely been put through a blender again, so from me to you HUGS!
Q:Could MS cause these kind of symptoms?
A: Yes, you could even have autonomic dysfunction as part of 'your' MS.
ANS dysfunction is not as uncommon to MS as it was once thought, research is discovering the connection, so it seems to me that MS is not out of the picture when you meet the MS diagnostic criteria and you've also got sx's of autonomic dysfunction. There are a lot of medical research papers available, see below for some direction and connection to other relevant articles.
http://www.mendeley.com/research/assessment-autonomic-nervous-system-dysfunction-multiple-sclerosis-association-clinical-disability/
I have a few autonomic nervous system dysfunctions, my temperature gage is broken too, both hot and cold do a number on me, though i haven't had any hot flashes etc as you're describing. My weirdest AD sx is that i get freakish colour changing feet (commonly purple), use to be just the one but its been happening for so long it became both a long time ago.
Still not the same as what your dealing with but the reason i'm mentioning it, is that when I had my entire vascular system assessed, the end result was that there was nothing at all wrong with my vascular system to explain it. It simply shouldn't of been happening and yet it clearly was, so my brain lesions got blamed for causing autonomic dysfunction.
Is the original MS specialist still convinced you have MS or haven't you spoken/seen him since he sent you for the second opinion? Do either of the MS specialists know that your GP says your in danger of going into adrenal failure, and has given you shots and changed the Prednisone plan? I suppose what i'm wondering, is if either of the MS specialists are doing anything to help in the here and now?
Hugs..........JJ
Babe, got to say you've definitely been put through a blender again, so from me to you HUGS!
Q:Could MS cause these kind of symptoms?
A: Yes, you could even have autonomic dysfunction as part of 'your' MS.
ANS dysfunction is not as uncommon to MS as it was once thought, research is discovering the connection, so it seems to me that MS is not out of the picture when you meet the MS diagnostic criteria and you've also got sx's of autonomic dysfunction. There are a lot of medical research papers available, see below for some direction and connection to other relevant articles.
http://www.mendeley.com/research/assessment-autonomic-nervous-system-dysfunction-multiple-sclerosis-association-clinical-disability/
I have a few autonomic nervous system dysfunctions, my temperature gage is broken too, both hot and cold do a number on me, though i haven't had any hot flashes etc as you're describing. My weirdest AD sx is that i get freakish colour changing feet (commonly purple), use to be just the one but its been happening for so long it became both a long time ago.
Still not the same as what your dealing with but the reason i'm mentioning it, is that when I had my entire vascular system assessed, the end result was that there was nothing at all wrong with my vascular system to explain it. It simply shouldn't of been happening and yet it clearly was, so my brain lesions got blamed for causing autonomic dysfunction.
Is the original MS specialist still convinced you have MS or haven't you spoken/seen him since he sent you for the second opinion? Do either of the MS specialists know that your GP says your in danger of going into adrenal failure, and has given you shots and changed the Prednisone plan? I suppose what i'm wondering, is if either of the MS specialists are doing anything to help in the here and now?
Hugs..........JJ
What reasons did your original MS specialist have for wanting to diagnose MS? Are you still seeing him?
It sounds like the UofM neurologist has eliminated other possible conditions - which means I'd be looking to your original specialist and asking why he won't diagnose if these other things have been excluded.
It can be tough coming off prednisone - the ultimate 'feel good' drug my old doc used to call it. The trouble is that it can mask a lot of things, and as you're now finding out, doctors have difficulty in distinguishing between real symptoms and side effects from other medications. The good news is that once you've stopped taking the prednisone, the doctors can't attribute any of your symptoms to it.
So hang in there! My advice would be to continue weaning yourself of the prednisone - even though it WILL be hard and you'll probably feel worse before you feel better. Then try and get some answers from the MS specialist who wanted to diagnose you earlier - from what I've read, if you fulfil e McDonalds criteria and everything else has been excluded, what reason does he have for NOT diagnosing?
Best of luck, and let us know how it works out,
Ava
It sounds like the UofM neurologist has eliminated other possible conditions - which means I'd be looking to your original specialist and asking why he won't diagnose if these other things have been excluded.
It can be tough coming off prednisone - the ultimate 'feel good' drug my old doc used to call it. The trouble is that it can mask a lot of things, and as you're now finding out, doctors have difficulty in distinguishing between real symptoms and side effects from other medications. The good news is that once you've stopped taking the prednisone, the doctors can't attribute any of your symptoms to it.
So hang in there! My advice would be to continue weaning yourself of the prednisone - even though it WILL be hard and you'll probably feel worse before you feel better. Then try and get some answers from the MS specialist who wanted to diagnose you earlier - from what I've read, if you fulfil e McDonalds criteria and everything else has been excluded, what reason does he have for NOT diagnosing?
Best of luck, and let us know how it works out,
Ava
I did a 10 day taper on prednisone after 3 day iv steroid.
I thought I was going to fall apart... Dizzy vertigo.. Hot flashes.. Shaky..
It was awful. I don't know if I could do the prednisone again.
I am not diagnosed with ms... I had not had these symptoms before... The vertigo remains the rest are gone.
I presented with optic neuritis and waiting on MRI results.
I feel for you! I wish I could help more ... :)
I thought I was going to fall apart... Dizzy vertigo.. Hot flashes.. Shaky..
It was awful. I don't know if I could do the prednisone again.
I am not diagnosed with ms... I had not had these symptoms before... The vertigo remains the rest are gone.
I presented with optic neuritis and waiting on MRI results.
I feel for you! I wish I could help more ... :)
I actually have never had a cavity...so no fillings!
Thank you for caring! It means a lot!
hugs,
Laurie :)
I have no idea what might be causing your symptoms Laurie, but I certainly feel for you.
Do you have amalgam fillings, and if so, have you ever been looked at for mercury poisoning? A friend of mine several years ago had many unexplained symptoms that all disappeared once her fillings were removed. Prior to this, she was that sick, she thought she was going to die. I have zero idea whether this might be your problem, but just thought I'd throw it out there as maybe something to consider.
Best wishes
Poppy
Do you have amalgam fillings, and if so, have you ever been looked at for mercury poisoning? A friend of mine several years ago had many unexplained symptoms that all disappeared once her fillings were removed. Prior to this, she was that sick, she thought she was going to die. I have zero idea whether this might be your problem, but just thought I'd throw it out there as maybe something to consider.
Best wishes
Poppy
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