Urogynecologist's visit, part 2.

[Fluffysmom]

She did an exam, and said my muscles were strong and that my nerves seem to be reacting properly, but then there was the fact that my voiding diary showed that I often felt a strong need to urinate and then passed only one to four ounces.  We discussed the possibility of nerves sending the wrong messages to my bladder.

She gave me a couple medicines to try (samples! as well as Rxs) and set up a 6 weeks follow-up.  If the meds don't help, we will probably do urodynamic testing with EMG, which will be a week before my scheduled appointment with my MS Specialist, and will be able to take her results.

The specialist had referred me to a urologist that only sees female patients one day a week, and couldn't do any testing for months.  I'm sure she's a great doctor, but I feel a sense of urgency in more than my bladder.  I would like to find some answers about my neurological issues, and the Specialist will be more likely to look deeper if my bladder symptoms are neurogenic.  She said that my sx were relatively mild, and may not show much on the EMG.

I am so happy that Quix gave me her name, and that she turned out to be so thorough, kind, compassionate, caring, and all that good stuff (just like Quix said she was)!  I am so happy to have a good doctor that I don't care what the results are; I know that she will keep looking for ways to make my sx better.

I love to be able to share a GOOD DOCTOR story!  I love being in the care of a good doctor!  I hope the same for all of you.

Hugs,

Kathy

[Fluffysmom]

Thanks, everyone!  

It sure was nice to be able to share with all of you my having had a really good experience with a doctor.  

Tonight I do the second application of Premarin cream, the first medicine for me to try.  The first didn't seem to do much, but I'll just have to wait and see.

I hope you all have a good week.

Hugs,

Kathy

[wishforchange]

Useful link from quick search

http://www.ion.ucl.ac.uk/fowlersyndrome/

wish

[sllowe]

LOL!  on the above "Fluffy Kathy" was me writing Fluffy then correcting myself w/your name and not deleting the Fluffy.  You feeling fluffy Kathy? Lighter than air...lol...

Have a nice night,
Shell

[sllowe]

This was wonderful to read.  I found myself hurrying through part 1 so I could get to part 2.  So glad you received the care you should.

So, a urogynecologist is a urologist and a gynecologist all wrapped into one,  or what? Wow! This is interesting.  I'd like to hear about your bladder spasms more, because I get these spasms and thought they were my bladder, but never brought it up to anyone because I was not sure if was my actual bladder or if I'd describe it right.  Just thought to myself they were in that area and truly horribly painful.  They are just like the ones in my back.  

Thank you Fluffy Kathy for telling us this GOOD story.  Great way to end the weekend -- on a good note!

ttys,
Shell

[wishforchange]

Are you retaining?
I had similar symptoms for years and it got to a pont where I retained over a litre, and needed an indwelling catheter.  Have been catheterizing for a year or so now (the in and out ones) but all is getting worse, really very bad now.  May be that you stay at the mild end of the spectrum, some do, others go on deteriorating.  Problem is it's impossible to predict.  Confusing thing was that althoug my urog is a uro-neurologist they don't consider the problem to be from lesions etc, genreral theory is that something else is disrupting the nerve signal.  Google Fowlers Syndrome, a nearly unheard of area of research, but intitiated by a British Professor, hence our knowledge of it here.  There is some interesting stuff there.
My problem is confusing as I do have lesions, and it makes sense to me that they would be the cause, but who am I to argue.  Point is it is not necessarily an MS thing, it is described as a 'primary failure of the sphincter to relax', and is more prevalent in women, those with PCOS (I don't have), and following general anaesthetic.  Spanking new area of research, women were in the past dismissed as hysterical, but the nerve signals involved are INVOLUNTARY, and mood etc. has no bearing on the problem.  Look it up.
wish

[mokibear]

What a wonderful thing to here. I'm so happy that Quix gave you her name and you were able to see her.

I hope the meds help but if not at least you have someone now who isn't going to give up on you. She sounds like a keeper.

Hugs
Moki

[Sunnytoday]

Yay! Isn't it wonderful to have a GOOD experience? I'm glad that you were able to "find" this doc. through Quix... I think that a several folks here have "shared" dr.'s.... I know that's how I found NYU.
I'm happy for ya'!
~Sunnytoday~