Wanting Answers

[slightlybroken]

I'm a 34 year old female with 3 kids. Back in Aug. of 2007 I started to have these strange episodes of muscle spasms, weakness, burning sensations in my muscles, pins and needles, numbness, and pain that effected my left side. These episodes would last for weeks to a good month and then I would return to normal like nothing ever happened. But that was always short lived because wthin a week or so I would get that burning sensation again and go right back in to it again. This cycle continues to this day.

At times, I would have balance and walking issues because I can't feel my toes or my feet. There was several times that my toes on my left foot would no longer bend at the joint where they connect to the foot and they were very weak. Some of my muscles have been in a constant flexed state while others would be relaxed. Another time that I went in to an episode, I experienced, double vision and fatigue. It has effected my right leg as well, but not as bad as my left.

I have had lots of test. I've had  MRIs, SSEP, LP, EMG, and blood work. Ive been tested for everything that could mimic MS. All these test have came back normal except for the MRIs. The MRI of my brain showed 4-5 small small ( 2-3mm diameter) high signal intensity lesions in the white matter of ther centrum semiovale superiorly. They also saw something in my spine but I don't have the radiologst report for that so I'll tell you what I was told. The neuro said they did see something in my spine but it was too small to see and he didn't seem to concerned and that the lesions in my brain were non-specific (whatever that means) even though my radiologist report says early demyelinating process.

All these MRIs have been done on a high field open MRI. According to their website it's a 0.7T which combine with some other stuff I don't understand (hey I'm honest) is a 1.3T. I'm thinking I would have better luck with an MS neuro and a MRI machine that is at least a 3 tesla or better. What do you think? Does this sound like MS? Advice and Comments would be greatly appreciated.

[cherby]

I too am in the same place. My brai mri came back with numerous lesions in the area ms would be however my vep test have came back normal. I also developed a new symptom my lower back is killing me... 2 es vicodin do not even take off the edge...
i go to the neuro tuesday to find out results for the spinal mri, sleep study, emg and audiologit.... i will post my findings.....next he will send me in to see the shrink..lol
Keep your head up
Cheryl (cherby)

[slightlybroken]

In my immediate family, there are no neurological disorders that would explain my symptoms. I went to my family doc the other day and I want to go to a MS specialist instead of just going to a general neurologist. I'm not getting any answers with my general neuro so I thought I might get better results with MS specialist.

Maybe they can tell me, yes you have it or no you don't and tell me what I do have. It's frustrating when nobody can tell you what's wrong with you.

[MOMOFMANY8]

I also have similar symptoms but my brain MRI was fine I havn,t had a spinal yet but my doctor told me that they dont us that as proof positive either way because other things cause the banding to ,is there any history of neurologic disorders in your family? My mom and brother both have MS and I have an aunt with Fibro so my doc wants to send me to the Clevland clinic for DG I guess they will make the diagnosis based on symptems sometimes. If your not close to them I know the also have the same thing at Mayo. If you don,t get the answers you need change NEUROs if theres one thing I,ve learned on this sight it,s fight for your DG even if it means changing docs several times.Hang in there you are definatley not alone youll be in my prayers tonight take care keep us updated

[slightlybroken]

Yes, I had a spinal tap. That was normal also. But I've read on many MS websites that just because you have a normal spinal tap doesn't mean you don't have MS.

[princess73]

I am right there with you. I started having similar problems in October, but my pain has never gone away. I have had ringing in ears and memory loss. My MRI showed lesions, but everything else has been somewhat normal. Have you had a spinal tap? My ms neuro said that I don't have ms due to a normal spinal. I am being diagnosed with fibromyalgia.