We need Help

[MikeKean]

My Fiancee keeps collapsing sometime several times a day and sometimes resulting in involuntary head shaking . She has had lumber punctures, ecg's, electolysis, mri's on the brain & spine and all come back negative. Today she collapsed 3 times due to dropping blood pressure. When I call for an ambulance she is admitted to the nearest hospital (Broomfield in Chelmsford Essex) but is just observed and sent home. They accept her blood pressure is lower than normal avg 100 - she is 23yrs old but offer no resolution. She is under a neurologist - Dr Bradbury at Bromfiel but he is not available until 26 September (away on holiday). we are at our wits end. She is on Clitropalm?  but she has not been diagnosed epiletic and Topomax (topamax)? for brain swelling. - It seems she has had all the tests and all come back negative it seems no-one knows what to do next (this has been going on for 3 years but is now a daily occurrance sometimes resulting in loss of use of limbs)can someone please offer us advise as to where we should go who can we speak to or just simply what we should do next. Everyone says the systems are like MS but no-one will confirm or treat for it
What do I do next
Yours in desperation
Mike  
Symptoms
Collapsing
loss of sight in one eye
pins & needles - originally hands & feed the down side of body
Low Blood pressure
Loss of use of limbs - legs twice
Paralised
Fitting
Headaches
Dizziness gait?
Foaming at the mouth
Lock jaw

[JonM]

1st I am not a doctor, just someone with MS. Actually this does not sound like MS.  Sounds more like diabetes, anemia, or seizures (just a guess).  MS does not cause sudden collapsing and lower blood pressure.  Waiting for the Nuero may be a wait in vain.  Go see your/her GP now.
Jon

[monotreme]

I agree with JonM.  Please get her to a GP ASAP.  This does not sound like MS.  Does your fiancee have any history of health problems?  I would not wait for the neuro appt.  She needs help now.  

Of course you can still go to the neuro, but she needs to be seen by a different type of physician too.

Elaine

[MrsAristotle]

My friend has this collapsing problem and was tested for everything including eplipepsi. She has pins and needles, problems walking, aching muscles, eye problems and any other problems.

She has low blood pressure and collapse and forms of fits. She has now been diagnosed with FIBROMYALGIA. Honestly. All her MRIs etc were normal. She is now slowly feeling better. They did tilt test and all kinds of things with her. She would freak out her sons, as she would just space out.

Its a thought its quite a complex disease.http://www.nfra.net/LowBlood.htm

http://www.fibromyalgia-symptoms.org/symptoms/eye_sight.html

I hope they find out what is wrong with her soon.

[MrsAristotle]

See here quite clearly that lockjaw is a fibromyaligia symptom.

http://www.craniorehab.com/patient/arthritis-fibromyalgia-scleroderma.html

............................Fibromyalgia in the jaw joint can cause trismus, i.e. stiffness, limiting of movement or lockjaw.