What a waste of time THAT was!!

I went to see my primary today after hearing from my Neurologists Nurse that my MRI shows a number of white matter lesions on my brain and confirming that I do indeed have MS.

That said, my trip to the primary was a waste of time.  She does not want to do anything until I have seen my new Neurologist on December 17th.  She is concerned that if I have any steroid treatment before I see the new dr. it will make all the results of any test the new dr. wants to do come out normal when they really are not.  My question is...the MRI was positive for MS...what other tests would she need?  I do believe that my primary only wants to deal with the new Neuro not the old one so I guess I have to wait!

SO, I guess I will suffer through the vertical double vision, the pain in my legs and hands due to muscle spasms, the loss of balance when I turn right which makes me fall down along with the pain in my head and the droopy eye from the Paratrigeminal Neuralgia for another 20 days...what the heck, according to the doctor's calendar "aw Rena, it's only two weeks, I think you can handle it."  

So yes I am whining and yes I am mad and yes I feel picked on and abused but I can't help it.

The primary gave me a prescription for 30 Percocet which as most of us know only makes you feel different about the pain...it doesn't do anything to get rid of the pain.

But it's only 20 days.........

[T-lynn]

I'm so sorry that your primary did not help you.

Steroids reduce the inflamation (inflammation) and lesson the symptoms it does not alter any other test as in evoked potentials or a LP.

The percoset will help with the pain if taken more more than once a day,it may help with the pain but does nothing for the spasms,the vertical double vision and so forth.

You have every right to whine be mad and be honked off.These Drs aren't dealing with your symptoms so they are just brushing them off.

Lets make vodoo dolls of all our nasty dismissive Drs. and start poking them,maybe they'll feel what we feel daily.

We are here for you.

T

[mokibear]

I hope you don't mind but I'm going to respond to both your posts in this one. I read about your diagnosis. I'm sorry that it is confirmed but you already new that it was MS. Not that it makes it any easier for you. I'm sure thinking of you as you go through this.At least now maybe they will start you on some treatment. I hope your new neuro is good and will help you out.

I'm sorry your primary doc is such a shmuck. My doc gave me percocet as well, as Tylenol 3 wasn't touching my pain. All the percocet does is numb the pain a bit and makes me even more sleepy but at least I can fall asleep then which I wouldn't without it. T. is right that it does nothing for the spasms. I try not to take it very often as it can be addictive. It's stupid though, my doc is willing to give me pain meds, but does not think I have a health problem that needs checking out.

T your idea of the voodoo dolls is great. Wouldn't that be fun. haha

I hope you will be able to hold off until your appointment, but no wonder you are so mad. I'm sending prayers for you tonight.

Moki

[meathead]

What a laugh vodoo dolls sound very good if they felt it like you say they may listen instead of going by text book . We should all be listend to as individuals as we all suffer in different ways all though all have the same problem each one of us may cope with one sympton and not another . Stay positive rena and we will keep positive thoughts going for you untill your next appointment .

hugs and cuddles jules

[Rena705]

You guys are awesome and I LOVE the idea of the Voodoo Dolls!  That was the first time I have laughed all day and I REALLY needed a laugh!  I hate to see what tomorrow has to bring cause I always have my toughest days the day after an upset and it has been a pretty rough one!  I sure appreciate all the support I have received today and I will say a prayer for all of you tonight which is something I rarely do...hugs are more my style so I am sending BIG HUGS TO ALL TONIGHT as well!
Loves ya,

Rena

[T-lynn]

Glad that you were able to laugh, tomorrow when your feeling down and rough we are all here for you with our voodoo dolls and pins.

You have the roughest part past you,you have  a confirmed DX.Now you need to take the time and reflect and absorb all this.Even though you were thinking MS,those words are still a sticker shock.

Its a liveable disease with a few speed bumbs along the way and right now its the idiots of Drs you have had to endure.

Take each day as they come,it gets easier with each day.Symptoms will come and go.But us here are here to stay and will help you through each day and each symptom.

Big hugs to you

T

[rnwithms]

Hang in there!  I love the Voo-Doo doll idea and i'm looking for some material right after i post this--and the biggest pins i can find too!! LOTS OF THEM!!!!  Seriously, call you neurologist and talk with his/her nurse, see if they have a cancelation list you can be put on to try and get in earlier then your scheduled appt.   Ask the neurologist-or his nurse- for a copy of the MRI report and visit notes made where it states that you have the lessions. Have you had a spinal tap yet?  And just like T-lynn stated steroids won't change  the results of and LP or evoked potential tests.  Don't let these dr's get to you-I know it's so hard, fustrating and makes everyone angry!!!!!   But you can let it all out here with us.  If the symptoms worsen-go to the ER, and consider finding another PCP-one that will listen and work with you on this and you feel comfortable with.  Your PCP should be working with your neurologist to help decrease your symptoms and not make you wait, prolong the pain and thus possibly get worse.  I may be a nurse but really somtimes i hate doctors!!!!

good luck and hugs to you-keep us informed.

[essdipity]

Funny, the idea of voodoo dolls has been going through my head a lot in recent weeks!! Nice and sadistic, isn't it? We all can use a little levity here, and that's as good as any, so bring 'em on.

ess