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What is causing my MS like symptoms?

57 year old male. went through all the typical tests in 2008/9 that rule out every thing including MG. All negitive.MRI showed several small spots that were dismissed as small blood vessel aging stuff. At the time I was experiancing most of the classic MS symptoms found on the National MS soc, site.  While jogging, the muscles in my left ankle suddenly stopped working causing me to trip over my own feet and fall.  I had pretty bad fatigue on and off after that for a year or two and could not run very far without my legs turning to rubber at which point I had to stop or go down. I kept ridding the bike on and off to try to stay in shape. A nero said I had some nerve damage in my right arm "after electrocuting me for 40min on one side" I had'nt done anything to my arm. I started to get over the fatigue and other the symptoms and the Nero declared that I didn't have MS. I started exercizing again but no jogging ever. Mostly bicycling now and then. 6 mths latter I was having new and different symptoms. This time my left shoulder itching on and off "inside not the skin" no rash etc. started losing range of motion in arm like frozen shoulder, but had done nothing to cause it. Right hand started locking up and had pain in the wrist with movement. Had nerve pain running down my arm inside. Same thing in the other arm at different time. went on Prednisone for two weeks and symptoms got better. MRI after showed no lesions.Not even the old ones. Neck clear also except for some disk degeneration. Arm stuff dismissed as caused by the the degeneration. Got better for 4 months.
Now becomming more and more exercise intolerent again. Being a musician, I tap my foot while playing, and can't do it for more than a few min before it becomes really painful and I have to stop. I use the other one to keep beat and the same thing happens. extreem fatigue follows. A strange kind of depression and emotional pain has been running along with this recently also. Doing anything much physical, including playing my instruments leads to muscle pain and cramping.  I stoped thinking this was MS or MG because the DRs said I don't have it. I don't see other people my age experiancing this. It's definately relapsing remitting. Any idea what could be causing all this?  
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4956942 tn?1361540362
I am nearly the same age, female, and have been seeing neuro for almost three months.

My issues began with an investigation into balance and vision problems after several broken bones d/t falls and osteopenia).

I too have some problems with communication, particularly when stressed. The docs are trying to blame it on PTSD, which I am well aware could cause some of my symptoms. NOT, falling, poor vision, etc.

Still, working to find doctor to help combine all the clues. I am so tired I can barely work and without work, no health care. So...

I've been to two neuros with two opinions. Now finally, an opthamologist who stated I have damage to the left optic nerve, consistent with MS.

Good luck to you!
Rebecca
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Avatar universal
I'm thinking I may have Chronic Inflammatory Demyelinating Polyneuropathy (CIDP ) The deap tennon reflex seems to be there I think, however and if anything the knee jerk may even be a little more than it should be.

I think you are right about getting a new Nero. I also have a sensory processing disability which is making comunication very difficult with my DRs.  Thanks for your comments.
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Avatar universal
wow, you've had a time of it...
Despite what they say, age doesn't excuse one from MS, I would know.....
It is possible to have MS and no lesions, but hard to Dx for sure.
Perhaps a new MRI to see if this set of episodes would show something.  
I would class these as CI, which can be considered if there are lesions to go with them.

you need a new neuro to start with........make up a time line for the new one of your problems.

when posting, can you do us a favor?  break up your post with paragraphs, whether the breaks fit grammer or not, we don't care, but many of us have problems, brain and eye wise, to follow long lines of text......thanks!

keep us posted but I'd look for an MS specialist and at least a neuro who READS mri's and doesn't depend on the radiologist written report.

You didn't mention if you had an LP?  Keep us posted, we learn from each other
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