What's up this week of December 18?

[Lulu54]

Hi folks, this is a big week for many as the celebrations of Chanukah and Christmas are near.  Lots of preparations and shopping and socializing will be going on all over.  As is our usual weekly report, feel free to share your upcoming medical appts. we should be aware of, but I would also love to hear what holiday events you will be enjoying this week.  

So come on and share your plans,
Lulu

[maxthecat9196]

Hi Lulu,

I saw a new neurologist today.  I am going to finally use my vision insurance on Friday, and I will get another MRI of my brain on Friday too.  

Tammy

[Lulu54]

What a week of mixed activities going on.  My head is spinning from all the news and events.  So much of it sounds good and I hope you can sustain your energy to make it through the holidays in fine spirits.

Those of you suffering - especially you Alex- I hope will be kind to yourself and only do what your body can sustain and that the days ahead will be better.

hugs to all and thanks for sharing all this news,
Lulu

[HVAC]

Coming back to the land of the living. Was the worst GI sick I have ever been in my life. Went to the ER Monday for fluids and Reglan. Those who know me know I do not do ERs. Starting to eat today.

There is kinda a Zen, peaceful quality which comes from going to survival mode. Not that I recommend it.

If there is no proof of the divine I prayed early Monday morning for help. I decided I had to go to the ER. We went to UNC instead of Duke because it is closer. A very good friend was working her one shift a month running the ER (head nurse) and she made sure I was well taken care of. We had no clue she actually did ER shifts. I even thought of calling her that morning for advice.

I guess I do not have to worry about Holiday weight gain.

Happy holidays and I hope no one gets whatever I got.

Alex

[beema36]

Finishing up last minute Christmas things. Having family for dinner Christmas Eve and Christmas day. Also preparing for a big snowstorm that's to hit tonight.
Merry Christmas everyone!

[johnniebear]

Christmas this year isn't very busy,  looking for a calm week.


Will I get  to start DMD'S   ?


I might get a Christmas gift from my MSLogist on Dec 23,  I have an appointment,  after my six month follow up visit with him on Nov 23,   wanted me to return in four to six weeks after I have further testing completed  he ordered MRI'S  of the T-spine & L- spine to rule out left leg weakness.

The L-spine MRI  shows  DDD  at  L4,5 and S1  and a  synovial cyst beneath the ligamentum  flavum on left side at this level.
broad base disk protrusion at L4, L5

Because of cognitive issues  I also completed NeuroPhy testing  which
revealed  lower than average working memory problems.


                       enjoy this cut & paste
。 ° · 。 · ˚ ˚ ˛ ˚ ˛
。° 。 ° 。˚ ˛ · ˚ ˚ ˛
★MERRY★ 。 · ˚ ˚ ˛
。CHRISTMAS 。 。°
_Π_＿ 。 ˚ ˚ ˛ ˚ ˛
/____＿/ ＼。˚ ˚ ˛ ˚
l田田田 |門| ˚ ˛ ˚ ˛ ·


                   Merry Christmas Everyone,
                                   John

[sllowe]

Wow. What a busy, busy week from those who've responded so far!

I am prepping for Christmas, but not fretting. I want to be sure to not get caught up in the commercial side of the house, and just enjoy what the holiday means to me and my family.

Wishing you all well with your appointments, family, and travels.
((((Hugs))))
shell

[ku111]

I am thankful for so many things this year.  I am so thankful for all of you that have helped me so much with my son Jordan.  This is the one place that understands what he is going through and help me to get him a firm diagnosis.  There have been many days that I have cried the past year but you guys always help me find the strength to help Jordan.  Thanks for not allowing me to give up.  Bless you all!  Jordan is well enough right now that he will enjoy Christmas this year (just got over a nasty flare).  He is LOVING the colder weather!  The hot weather gives him problems.  My older son was hit by a firetruck in May BUT he and his girlfriend are alive (wasn't thinkin it was so good when I got to the accident)-Thank God!  This is their senior year!  His girlfriend has more surgery to go but has done well (she's amazing!-he tells her she is the most beautiful girl in the world often) and my son Josh keeps working with his leg to gain more strength.  This year has been a ruff one but a new one is about to begin.  It offers so much hope!  I am truly blessed to have my children and a husband (of almost 20 years!) that is my rock!  I have no Christmas list-I already got everything I could have ever wanted!

[Jacksmom516]

The good stuff - finish wrapping presents, bake some more cookies
Get ready for Sunday!!!


The not so good stuff - meet with Neuro to decide on a DMD - can't believe it is less than a week since dx feels like a lifetime!  And then PCP appt on Friday.  

[kwarendorf]

Got my Christmas cookies baked, packed and shipped yesterday. Today's big fun is 3 hours of cognitive function testing. Hopefully to establish a baseline, rather than learning I've already lost my mind :-)

Merry Christmas!

[anon07072023]

I have my regular PT appt today (Mon). I met her for the 1st time last time. The time before that they had set me up with someone else, & the time before that (my 1st time) was with someone else that they let go or fired. Then she asked me why I was jumping around from therapist to therapist - I gave her a look like, "What???"  

On Wed, I have a GI appt to check in with them. They're the ones who initially sent me for my under-carriage PT, but now have found out it's MS related, instead (spasticity & weakness).

I'm working all week (I was supposed to be off all week).
And I'm looking out for my older brother all week - since he's served his wife with divorce papers, her kids have threatened to kill him....that's always nice. But we've always known that they're psycho. He's married to an older woman - so these "kids" are actually just a little bit younger than him.

Have a good holiday everyone!
-Kelly  

[zoefromsussex]

Hi all,
Thought I'd add my little bit of news to this post! Am a newbie and hoping to get to know as many of you as I can. I'm finally seeing an ms specialist tomorrow at 5pm and the wait is making me so anxious! Am hoping he doesn't tell me anything which spoils my family Christmas as we're so looking forward to it. I'm cooking xmas dinner at our place for my husband, kids, my mum, my aunt and my mother & father in law. My mum's birthday is xmas day and mine is boxing day so there's lots to celebrate!
I hope you all enjoy the holidays,
Zoe

[Starryeyes2]

Hi Lu!
I had an MS appt Fri and my MRI has not changed since last year. I was very thankful and relieved.

I am going home to MT on the train tomorrow with my daughter. We will visit 10 days. I haven't spent Christmas with my mom for 22 yrs and it's been almost 8 since I went back home.

I'm so excited to see my aunts and uncles, friends...

Merry Christmas everyone!
Hugs-
Kristi

[heartfelt77]

Hello, lu. I just I will start.  I have an appt on the 20 th for urology Dr I'm going to request that they do some testing.  I got my report from my neuro so, I'm finshed getting all my records I will be sending them off for an appt.  When I was at the old neuro. He didn't really say nothing new except that I have a very complcated case. And is referring me to the department of neurology out of Pittsburgh, pa.

He is doing some blood work also.  I read my evoked test and it states adnornal brainstem.  Also, at the top of the paper it mentions suggestive ms. I don't know what that's means.

I'm starting Aqua therapy also this week.  Me and my husband got our tree. The girls decorated it tonight.  It's looks beautiful.  Last night they put lights on the house and we had some cherry cedar. It was really nice.

Tommorrow I'm going to make a breakfast pie.  ( can't think of the name).  And,  I'm starting home care this week.  They have a nurses aid coming in for 4 hours Mon- Fri.  Which will be nice I'm hoping that it will relieve the stress from my husband...

My mom and gram is coming up for Christmas I have seen them in 2 yrs. since I become sick.....  They r in denial.  So, it should be interesting how that goes....   My mom has basically pushed me out of her life.  

So, still a lot going on and I try to do what I can. Which isn't much but, I'm learning to take one day at time..

That's what's up with my week......   Merry Christmas everyone.

Better years ahead.  I really hope for everyone that is dx with ms that it can take a back burner for the holidays. So, u can enjoy every minute.

God bless,
Misty