Who is Diagnosed?

[Quixotic1]

Last winter our wonderful Heather asked this same question and we had a fabulous response.  But, that post got very long and difficult to run through.  We have over a hundred very active members now and I would like to see the results again.  I should have all of this neatly in a notebook or a database somewhere, but, ya know, somehow my organizational skills have gone the way of the dodo bird.

Please, all of you who read this who have ever posted or might someday post:

Please give us

Your date of diagnosis:
Type of MS:
The med, if any you are on:
Time for first symptoms to diagnosis:
How many neuros before diagnosis:

We will all appreciate having the info so we don't have to constantly ask and feel like dufusses.

Thanks, and lets try to keep it bumped up.

Den Mother

[Quixotic1]

Your date of diagnosis:  March, 2007
Type of MS: RRMS
The med, if any you are on: Avonex
Time for first symptoms to diagnosis: 2 1/2 years
How many neuros before diagnosis: 2

Quix

[Deb61]

Your date of diagnosis:  February, 2008
Type of MS: RRMS
The med, if any you are on: Copaxone
Time for first symptoms to diagnosis: 10 years, at least
How many neuros before diagnosis: 1

[risnerrose]

Your date of diagnosis: Aug 2007 / Undiagnosed:  Nov 2007 / Rediagnosed:  Nov 2008
Type of MS: RRMS
The med, if any you are on:  Yet to be determined
Time for first symptoms to diagnosis: 3 years (I may have had symptoms 18 years ago)
How many neuros before diagnosis:  1st and 3rd

[LATW]

Your date of diagnosis: Feb 2008
Type of MS: RRMS
The med, if any you are on:   Avonex
Time for first symptoms to diagnosis: hard to say but first bout of Optic Neuritis really got my doctors attention. Second bout got me a dx.
How many neuros before diagnosis:  2

LA

[Lulu54]

Your date of diagnosis: Sept. 26, 2008
Type of MS: RRMS by the neuro for insurance but probably SPMS
The med, if any you are on: Copaxone
Time for first symptoms to diagnosis: over 20 years but I didn't realize it at the time . First time talking to doctor about symptoms until dx was 2 months
How many neuros before diagnosis: 1 - and I might add one of the best from what I can tell from reading about others experiences here.

[JonM]

Your date of diagnosis: 12/29/06
Type of MS: RRMS. although transitioning I think to SPMS now
The med, if any you are on: Avonex
Time for first symptoms to diagnosis: 2 months
How many neuros before diagnosis: 1, went to a 2nd one for 2nd opinion.  They agreed

JonM

[young at heart]

YOUR DATE OF DIAGNOSED:1998
TYPE OF MS:RRMS NOW SPMS WITH PROGRESSION
THE MED IF ANY: REBIF
TIME FROM FIRST SYMPTOMS TO DIAGNOSIS:3 WEEKS
HOW MANY NEURO'S BEFORE DIAGNOSIS:1 WHEN ORIGINAL DIAGNOSED,DISREGARDED DIAGNOSIS AFTER TRAMATIC BACK SURGERY.
NO SYMPTOMS,OR THEY WERE THERE,BUT IGNORED,BUSY MOTHER OF 4.
SYMPTOMS REAPPEARED LATE 2004,DIAGNOSED AGAIN DEC.2006 AFTER 4 NEURO'S

T-LYNN

[NZer1]

Your date of diagnosis; 2008
Type of MS; Neuros words "Mild". MS Nurse, GP and I beleive PPMS
The med, if any you are on: (Do not qualify under health system) None
Time for first symptoms to diagnosis: 2 years
How many neuros before diagnosis: 4

[Mand125]

Your date of diagnosis: 1994
Type of MS: Mild originally, now RRMS (I sometimes wonder if it is SPMS)
The med, if any you are on: Betaferon
Time for first symptoms to diagnosis: 5 years - time from seeing first neuro to diagnosis, couple of weeks
How many neuros before diagnosis: One

The neuro I saw earlier this year wanted to do a LP to confirm the diagnosis before prescribing DMDs (In the UK a LP isn't necessary for a dx so my original diagnosis was based on years of symptoms and an MRI)

[sllowe]

Your date of diagnosis:  Julyish, 2007
Type of MS: RRMS
The med, if any you are on: Rebif
Time for first symptoms to diagnosis: 4 months
How many neuros before diagnosis: 1

-Shell

[essdipity]

Your date of (wimpy) diagnosis: Jan. '08
Type of MS: RRMS
Med: Avonex
Time from first symptoms to diagnosis: 8 years
# neuros to diagnosis: 6

ess

[cydney27]

Date of Diagnosis: Oct 2008
Type of MS: Dr won't say, thinks it's to early to tell
Medication: Neurontin, Baclofen and soon, Rebif ( he says he puts everyone on something, no matter what type of MS it is)
Time from first symptom to diagnosis: 11/2 yrs.
Nuber of Neuros to diagnosis: 2

[doni54]

Wow, Quix, this was a fantastic idea!!

[Heather3418]

Your date of diagnosis:  1994
Type of MS: RRMS
The med, if any you are on: Avonex, then years later, Copaxone - presently on
Time for first symptoms to diagnosis: 1st Neuro-4 weeks
How many neuros before diagnosis: 3 - to give definitive diagnosis of MS

[deborah0904]

Your date of diagnosis:  November 10, 2008 I was given partial dx
Type of MS: something to do with adrenal system, still waiting for exact name
The med, if any you are on: Nothing just yet
Time for first symptoms to diagnosis: 20 plus years
How many neuros before diagnosis: 4

[monotreme]

Date of diagnosis for Craig: August 7,2008
Type of MS: PPMS
DMD:  Copaxone
Time from first symptoms to diagnosis: 4yrs since that is what NYU said
Number of neuros before diagnosis: 8

[treebranches]

Date of diagnosis:  January 2007
Type of MS:  None; Peripheral Neuropathy of Unknown Origin
Med: Gabapentin, 900mg/day
Time from first symptom to diagnosis: 6 years!
Number of neuros:  1, but 8 other general doctors

I'm an in-and-out poster.

[cz1970]

Date of Dx: 7/08
Type of MS: RRMS
Med: Copaxone
Time from first sx to dx: 4 yrs w/ Llermettes then 1 yr w/ O.N.
Number of neuros: 1 neuro and 4 MD's

[GrannyJo6]

Date of Dx: 1979 & 2002 (can you say denial?!)
Type: RRMS
Med: Avonex
Time from first symptom to dx: suggested immediately, then 4 yrs til next symptom and then almost 20 yrs until something caught the opthamologist's attention
Number of neuros: 1 in 1979, 1 now

[Rena705]

Date of Dx:  May 1993
Type:  RRMS in remission until July 2007
Meds:  Denied DMD's by Neuro who has stated my disease is "in-active".
Time from first Symptoms to Diagnosis:  Approximately one year
Number of Neuro's before Diagnosis:  2

[shoshin]

Date of diagnosis: November 2007; previously dx'd with idiopathic (cause unknown) peripheral neuropathy for six years

Type of MS: I gave up on this question. It makes my head hurt.

The med, if any: In clinical trial for FTY720/fingolimod, an oral immunosuppressant (1/3 chance placebo, 1/3 0.5 mg dose, 1/3 1.25 mg dose)

Time for first symptoms to diagnosis: If you count from when I first knew I had a problem (4/01), then six and a half years. If you count from what I now think was the first noticeable thing in Jan. or Feb. of 1998, then close to ten years.

How many neuros before diagnosis: 3

[needanswers54]

Date of actual diagnosis:  Oct. 1, 2007
Type:  Not told.  Probably RRMS which is now possibly progressive ( think)
Meds:  No ABC's; lots of pther migraine, nausea, antiinflammatory, pain meds, etc.  Migraines so severe I must get IV dilaudid and odansetron.  Made MS diagnosis more difficult.  Small lesions in unusual areas in brain.  Multiple lesions detected in cervical cord since at least 2005.  Last neuro concerned that last lesion may be a tumor in the center of the cord; Radiologists say either MS with prior ADEM or TM possible and/or mets of CNS.  So much fun.  Referred to MS Clinic but unable to get in as of yet.  Diagnosing neuro recently put it in writing to the clinic as recent MRIs showed last lesion/tumor enlarging to posterior of spinal cord and enhanced.  Visually mild atrophy of cerebral and cortical areas of brain on regular MRI.  Hoping to get on research trial at MS clinic so I can get some ABC drugs.  Also being tested for Devic's.  Prior test negative.  But, they have more false negatives than positives.  So, I guess it is wait and see.

First MRI which was done for a back injury showed a cervical lesion in 1998.  Missed by radiologist, then.  Then, 2001 was listed as an artifact or small gliosis.  2005 MRIs neuros kept saying (and my regular John Hopkins trained neuro) keeps saying that it is artifacts. even after another spinal lesion showed.  Everyone kept insisting lupus due to my severe migraines and other immuno/rheum symptoms.  The JH trained neuro sees the lesion at C5 and C2, but not C7.  Others see C2 and C7 (and possibly others?).  Diagnosing Neuro said I probably had it for years before then the MRIs showed it.

Have had severe unrelenting daily migraines for almost twenty years.  Have been on all daily preventives without success.  Also been in migraine research.  The migraines have literally ruined my life.  Noone understands the enormity of them other than the doctors.  That is why the neuros and rheumies and immunologists kept checking for lupus, sarcardoises, MCTD, dermatomycetes/polymyositis, etc. for last fiften-plus years.  They say that MS does not cause migraines.  But, I have read some writings that say differently.  Does anyone have an answer to that question?

Given possible lupus or MCTD and definite fibromyalgia before diagnosis.  ANA had repeatedly been elevated since early 1990s up to 1:320 with homogeneous or speckled pattern.  Slight malar rash on face and other weird rashes or skin changing color like to bright fuschia or black or blue at times without any explanation or diagnosis.  Recent research has shown that lupus will typically go above 1:320 and that 1:320 or below is associated with MS.

Now have definite daily tremors, visual problems, weakness, and other problems.  Funny thing is that now my ANA is normal for the very first time since 1992.  All blood and spinal cord tests for MS negative.

Exposed to meningitis and hepatitis-B and other infections (via needlesticks) repeatedly during hospital work.  Received the first hepativax which France and others took off the market and compensated their employees for because it caused a weird pattern similar to what I am experiencing.  The US is the only country which I have been told has not found any problems related to that vaccine.  But, I was also read that they tested the vaccine after it was changed.  Later exposed to a faulty biohazard incinerator for over two years in my personal work area.  Later exposed to toxic chemicals in the air (radioactive and caustic, and possibly carcinogens) at the workplace.  My OSHA rights have been denied as to my occupational exposures at the hospitals and the nuclear and a production facility.  So, I am diagnosed with MS.  Perhaps the clinic can do more tests and shed more light.  I am going with the MS diagnosis for now as at least it validates that something is actually wrong and this is not all simply made-up by me.

Five-ten or more specialists had proprosed lupus/MCTD and fibromyalgia as probable diagnosis.  Four neuros basically let me think I had nothing wrong other than anxiety/depression/migraines.  Later that year diagnosed with MS after at least three other doctors proposed that they thought it was MS.  Even the hospital radiologist in 2005 had propsed demylinating disease.  Yet, could not get another MRI ordered until last year.  Even tried going to a shrink to get an MRI and cognitive testing done.  He would not do it even with the radiologists proposing demylination and three doctors suggesting MS.  Listed it as depression.  Pretty pathetic, huh?

Now have practically all my discs bulging.  Have taken some bad falls.  Have anterolithesis now, also.  Combined with my spasms it makes it appears that I am convulsing or seizuring.  Oh, well.  At least people now believe me that I am sick.  My mother told me that if I had MS that all my hard work and education was wasted.  On diability now.  Family in total denial about my disease.  So glad that I have all of you for support.

Take care and God bless.

Torey

(Sorry I prattled so long.  Just do not get to get on here very often.  I have to use the library computer.)  

Any and all input of insight appreciated.  Thank you!!!

[Erin0313]

To Quix:

Date of Diagnosis: May 2007
Type Of MS : RRMS ( but I think it's switched to progressive)
Med: Rituxan
Time from 1st symptom to diagnosis : almost 9 years
Number of Neuro's: 6 - The 2nd one diagnosed MS with MRI but not enough other supporting tests so left in limbo land for 6 more years

[patientx]

Your date of diagnosis:   Aug. 2008
Type of MS:   Probably RRMS (not entirely sure)
The med, if any you are on: CombiRX trial (combine Copaxone and Avonex)
Time for first symptoms to diagnosis: 4 months
How many neuros before diagnosis: 1

I'd also be interested in seeing how soon after diagnosis people started a DMD.

[jensequitur]

Your date of diagnosis:  March 2007
Type of MS: RRMS
The med, if any you are on: Copaxone
Time for first symptoms to diagnosis: When do we start counting?  Let's say about a year.
How many neuros before diagnosis: 1

[Cosmobirdy]

Your date of diagnosis:   Feb. 2008
Type of MS:   RRMS, but more likely PPMS or SPMS
The med, if any you are on:   Currently on Tysabri.... was on Rebif for first 8 mos or so
Time from first symptoms to diagnosis:  4 Months - by the time I got to a neuro, he diagnosed on the first visit
How many neuros before diagnosis: 1....but before that, 2 cardiologists, and the world's best GP.. :)  

[sunshine8]

Your date of diagnosis: Oct 2008

Type of MS: RRMS (they think, but there is some suspicion that this may be one of the more progressive types since I haven't fit the flare-remitting pattern yet)

The med, if any you are on: None yet.

Time for first symptoms to diagnosis: 1 year (I should explain that I didn't really notice symptoms, but instead lesions were discovered on a CT exam I had in the ER after I fell and had a mild concussion. Didn't "know" I was having symptoms until they were pointed out. Symptoms progressed and got worse over the course of that year and eventually ended up with optic neuritis)

How many neuros before diagnosis: 3 (two were MS specialists and one is my general neuro. Didn't really need to go to the two specialists for diagnosis as the general neuro would have officially diagnosed at this point anyway)

Still coming to terms with the diagnosis.

:)
Amy

[cjacks]

Date of Dx:  July 2008
Type of MS: RRMS  ( could be SPMS )
Med. :   Copaxone , for now   ( there's been talk about Betaseron)
Time from first sx. to dx. :  17 yrs.on a slow course until three yrs ago
How many neuros before dx. :  4   ( all this last yr. )

Jo

[wannabmommy]

Your date of diagnosis: May 08'
Type of MS: I believe relapsing/remitting(never really told)
The med, if any you are on: Avonex
Time for first symptoms to diagnosis: A month
How many neuros before diagnosis: 1

[ShockedToday]

Your date of diagnosis: Today, Dec 3, 2008
Type of MS: I don't know yet
The med, if any you are on: None.  I was told we (dr & I) would figure that out after I have my LP done.
Time from first symptoms to diagnosis: 5 months, though 4 months after starting to seek help after realizing the symptoms weren't going away.  Though thinking back and discussing things with the dr, it appears that I've had symptoms for even as much as 20 years.
How many neuros before diagnosis: Just this 1.  Though an ophthamologist put 2 & 2 together and ordered the MRI.

[grannyhotwheels]

date of diagnosis:  August 2007
type of MS:  Primary Progressive
Medications:  Lyrica, Methadone, Oxycodone, Dicyclomine, Lasix, Detrol, Doxepin, Sertraline, B12 inj.
Time from first symptoms to diagnosis: 4 years
How many neuro's before diagnosis:  5 but I'm on my 6th neuro.
                                                        

[mae1]

Date of dx. ---  Nov. 2006
Type of MS ---- RR
Medication ---  Tysabri  (very successful)
Time from first sx. to dx. ---  about 1 year
how many Neuro's before dx. ---- 1
april

[labwrkr]

Your date of diagnosis: August 8, 2007

Type of MS: Relapsing-Remitting

The med, if any you are on: Rebif

Time from first symptoms to diagnosis:

My first symptoms were during college, summer 2003.  I had double vision for approx. a month and half. I ignored the suggestion to get an MRI after brain tumor was ruled out by a neuro-opthamologist, only because I wanted to get back to campus to continue working and finish my summer courses, and the diplopia had vanished. Double vision returned in June 2007, and lasted until August. I also had vertigo and nausea, pretty consistent fatigue, conistent headaches, and lhermitte's sign.

How many neuros before diagnosis:

Just 1. My MRI radiology report had measurements of some of my lesions, and a pretty good case for MS, which was mentioned several times in the report. My neurologist all but diagnosed me on my first appt., but wanted to run some additional tests (B12 defic., Lyme's). Once those and some others came back negative, she diagnosed me and started me on the Rebif.

[ge97511]

Your date of diagnosis:  September 30, 2008

Type of MS: I don't know yet.

The med, if any you are on: Rebif and 12 other ones.

Time for first symptoms to diagnosis: Not really sure.  I think I started having the psychological symptoms that go with MS a few years back. The physical ones really started in September 08

How many neuros before diagnosis: A ton.  Being treated in the ER mostly because it's taken forever to get into the neurology clinic. Have appt. on 12/12/08.  Hopefully then I'll finally get assigned to a neurologist.

[tanky]

Date of Diagnosis:  initially July 2007 with confirmation November 2007

Type of MS:  RRMS (although I'm not so sure)

Meds:  Avonex, neurontin (suspending all medication until after I deliver baby # 2 in June - yeah)

Time from first symptom to diagnosis:  1 month

How many neuros:  1

[Siddy1]

Your date of diagnosis:             December 30, 2005
Type of MS:                             SPMS
Meds:                                     None  (by choice)
Time from first symptom
to dx:                                     1 month
Specialist opinion:                    3 months
How many neuros:                   2.  Both diagnosed MS
Status:                                    Progressive disability

[needanswers54]

This is great!  

Quix, are you doing statistics on all of this?

How many of you went to immunologists or rheumatologists or were simply miss diagnosed, initially?  Did you get lots of tests for lupus, etc. after your lesions were found?  Who was given an ABC drug before being fully diagnosed?  Was this after other tests were run?  Does anyone else have their lesions in the spinal cord before any definitive lesions in the brain?

I was just wondering.

This should possibly be a separate post.

But, if any of you can let me know, I would be appreciative.  

Thank you!

God bless and happy holidays and better health to all of us!

Torey

[willowwoman7]

Your date of diagnosis:                November 2007
Type of MS:                                RRMS possibly now secondary progressive
Meds:                                         copaxone - modified dosage
Time from first symptom
        to dx:                                   about 22 years
Specialist opinion:                         about 25 years
How many nueros to dx:                2

[ShadowsSister]

I'll try to keep this short...
I was diagnosed on Jan.29Th, 1986 at 3:15 PM the very same day I had my first MRI
I have Chronic Progressive MS
Medications at this time are  Morphine  by internal pump
                                          Oral Morphine (60mg) for pain break through
                                          Oxybutynin(5mg)
                                           Zanaflex(4MG)
                                           Lasix (20mg), to make kidneys to work better  
we have ran out of drugs for the MS, and because of being labeled Chronic Progressive I can't get any of the newer drugs...
I had a high white count for two years with flu like symptoms in May of 1985 I started having burning in the hands and feet, cramping of the fingers and toes, falling and walking into walls...Saw new Dr. Jan 4Th of 1986 and he sent me to Neurosurgeon the next day, Had many test for two weeks, the last one was the MRI.Jan 29Th at 11:30 AM.
I guess you might say in a weird way I was rather lucky to be given a diagnosed that fast. They (Dr.s) felt that I had had MS for a long time and that it progressed to become CP. by the time I had the 1st MRI. So I only saw the one Neurosurgeon but after the DX there were many too many Neuros  to count, no one agree with each other, they were awful, so I fired them all.

[BOK2Bjan]

Hi, I was just recently diagnosed - 11/08.  I have had SSc for several years, with many complications; Barretts & Scleroderma Esophagus, Pulmonary Hypertension, Gastroparesis, Chronic Aspiration while sleeping (big problem), Raynauds, Erythromelalgia, etc.  Also Interstitial Cystitis, Low Thyroid, & Osteoporosis.  An MRI showed several while matter lesions they "watched".  Few months later - more.  Few months later - more.  I had a Spinal Tap which confirmed MS.  Positive for Olig... bands, & proteins.  It was an instant "slam dunk" according to my neurologist.

I'll start Copaxone soon.  I chose it due to it having relatively fewer side effects than others. ??

I had symptoms long before diagnosis - 1/2 face burning - Paresthesias - shooting pains - numbness and pins and needles - dizzy spells - loss of balance w/ falls.  Now I'm having several memory and cognitive problems.

I could use some support, as I'm already so ill, I wouldn't have dreamed I could have yet another serious illness!

Thanks, Jan

[doublevision1]

Your date of diagnosis:  Oct 2007

Type of MS:  RRMS

The med, if any you are on: Copaxone since June 2008 (Rebif from Feb - April 2008)

Time for first symptoms to diagnosis: 14 months

How many neuros before diagnosis: 2


Is it possible for Medhelp to include a signature option that is always attached to our screen name?  Our signature could include all of this info so it is visible with each post.  This would be an easy way to keep track of everyone's status and details.

[JENNIEO]

Your date of diagnosis: August 4,2008
Type of MS: RRMS
The med, if any you are on: Copaxone, neurontin, provigil
Time for first symptoms to diagnosis: probably years of vague stuff, but more recently just from Feb to August - 6 months.
How many neuros before diagnosis: one for a nerve test, then the second for MRI results and diagnosis

Peace -
Jennie

[Sam1106]

Your date of diagnosis:  Dec 2006
Type of MS: RRMS
The med, if any you are on: Rebif, now copaxone, starting tysabri in a couple of months.
Time of first symptoms to diagnosis: 8 months
How many neuros before diagnosis: 1

[lmax0021]

Your date of diagnosis: 11/20/08
Type of MS: RRMS
Medication: Copaxone
Time of first symptom to diagnosis: 3 weeks, but looking back I feel that I had 2 other flares in the last 2 years
How many neuros before diagnosis: 1

[Lookingpast]

Date of Diagnosis: September, 2001
Type of MS:   RRMS but I think it's shifting to SPMS
Medication: Copaxone
Time of first symptom to diagnosis:  first symptoms not recognized, but looking back I believe I was having symptoms for about 8 - 9 years before diagnosis
How many neuros before diagnosis:  1  Since then, I've had 3 and am currently back seeing my original doctor.

MRI shows 50+ brain lesions, nothing in spinal cord.  

[lorettagrace]

Date of Diagnosis-July 8th 2008
Type of MS-   RRMS   (possible SPMS)
Medication-    Copaxone, Provigil, Antivert, & an anti-depressant
Time of first symptoms- 15 yrs ago (March 1993)

Seen many,many Doctors and 2 neurologists before being diagnosed....about to meet a new neurologist

Not really sure how many brain lesions I have...

[Quixotic1]

Okay now.  We have had a whole bunch of people get a firm diagnosis.  If you haven't added or if you were previously a Limbolander, please tell us your story:

Onset of Symptoms

Date of Dx

Type of MS

DMD?

How many doctors and Neuros before diagnosis?  How long to diagnosis once you told the doctor?

Let's hear from you!

Quix

[fortywhat2]

Onset of symptoms...  frequent falls for years... fell at work 3/08 (worked as manager of my primary care physician) had MRI

Date of DX...  3/8  Positive MRI (lesions)
                    7/8  Positive Lumbar Puncture
                    8/8  given DX by Neuro

Type of MS... PPMS

DMD... No (PPMS)

How many Drs... How long...  Primary started the ball... suspected MS from MRI referred
                                           1st neuro agreed with primary  ordered LP to be sure
                                           2nd neuro did LP  clicked with her so I stayed with her
                                           turns out she is specialist at Beth Israel Hospital Boston's
                                           MS clinic... love her!

[PatHC]

I posted on the limbolander check you were doing as neuro said I had 'mild ms' but also said 'if you force me to make a diagnosis I would have to say the symptoms are caused by ms' - does that make me limbo or dx'd in your poll - cos  I'm not sure so?

sorry to be a pain

pat

[gooddays]

:

Onset of Symptoms        11/90

Date of Dx                       05/05

Type of MS                     RRMS going on SPMS

DMD?                             Avonex

How many doctors and Neuros before diagnosis?  How long to diagnosis once you told tho doctor?    5     18 years

Have a good weekend:)

Zulma

[cuttersmom]

Your date of diagnosis: 1/09

Type of MS: RRMS

The med, if any you are on: Copaxone

Time for first symptoms to diagnosis: Had frequent urination for about 3 years. Finally went to urologist in Sept. 08. After t spine MRI was referred to Neuro in Dec. 08. Four weeks later...POOF...frequent urination went to lifetime disease!!

How many neuros before diagnosis: 1


Kristen

[Karen99]

Your date of diagnosis:  April 1, 2001 (of course April fools Day)
Type of MS: RRMS  1 major exacerbation from hell that got me dx.  None since, 1 new lesion seen with T3 MRI.  
The med, if any you are on: was on Copaxone, well tolerated but stopped for other reasons
Time for first symptoms to diagnosis: 1 1/2 years
How many neuros before diagnosis: 1

[ChunkyMonkeysMommy]

Your date of diagnosis: June, 2007
Type of MS: RRMS
The med, if any you are on: Was on Avonex, but too many side effects. Had a baby, trying to wean to get on Copaxone.
Time for first symptoms to diagnosis: I believe I had been having symptoms for at least 11 years prior to dx, but possible longer. Hard to tell as I also had thyroid cancer at the time.
How many neuros before diagnosis: Only one before the current one that dx'd me. The previous tried to give me a script for antivert (anti-dizziness med) and told me to take vitamin A, repeatedly asked if I did something to injure my leg, then sent me on my way. Oh, and that was WITH an MRI showing a lesion on my spine. Those radiologists didn't actually call it a lesion, they left it as possibly being some sort of "inflammatory disease" or a "neoplasm". If he had done a brain MRI, he'd have seen the other 6 lesions.

[opie74]

Your date of diagnosis:   October 13, 2008    (My birthday)

Type of MS:    RRMS

The med, if any you are on:     Betaseron since Jan 09

Time for first symptoms to diagnosis:     I don't know.  My body is strange, and I just account alot of things as nothing.  There is no telling how long.  Seriously, after the first baby, it was obvious to my opthomologist. 2005

How many neuros before diagnosis:    4 ot 5.    Last year I was laughed at.  Double vision and 20 lesions.  My Optho sent me to a different Neuro this year and he Dx me right away.  Sent me for a second opinion on Dec 1st confermed on Dec 22.  

Opie

[deborah0904]

1st date of dx: November 11, 2008 by Neurologist # 3

12/07/08  Neurologist #4 disagreed and took back dx on

02/10/09 Neurologist #4 confirmed MS Dx after MRI of C-spine T-Spine showed spinal cord lesion.

MS is rare and I will be seeing Dr. Becky Parks on Feb. 24th @ Washington University   in St. Louis.  I am hoping then to find out exactly what form of MS I have and what the prognosis is.  

I am not yet on DMD's.

I have had this since I was a child but have had noticeable symptoms for more than 20 years.

[WarKitten2008]

Dx: Feb 2008

1 neurologist, Also went to an MS Specialist for a 2nd opinion and he agreed with the
first neuro.  Staying with MS specialist for my continued care.

Used copaxone, had to stop per awful injection site reactions. I am still in process
of considering avonex or betaseron.  Insurance wont cover rebiff.

RRMS

[truelove47]

Dx'ed                       oct           1986

Type                        secondary progressive

med                         avonex  10 years or more

first symptom            bells palsy 1979 and 1984 (same side of face)

dx'ed symptom(1986          lightening pain in right hand and foot,bad enough to make
                                hand     and foot curl in at same time. neuro called it posturing.  
                                (like you hit your crazy bone)  hemi parisis
                                Double vision and loss of hearing in one ear on same side
                                 Positive MRI and spinal tap  15 lesions in brain
                                 pins and needles  in extremeties       positive babinski

dx,ed by ms specialist in philadelphia,pa   at Jefferson  fairly quickly.   Linda

[sayadia]

Diagnosed around 1994
RRMS with progression currently
saw 1 neuro
2 months from first s/s
on neurontin and morphine
spent 12 years ignoring due to wanting to keep my job. have no thyroid so not eligable for dmd

[dcgallegos]

your date of diagnosis: Dec 27, 2005
Type of MS: RRMS
The med, if any you are on: Copaxone, bacoflen, neurotin, provigil
Time for the first sysptoms to diagnosis: symptoms started in 1998 and blew them off.    MRI showed lesions in 05
How many neuros before diagnosis: 1

[novakf]

Your date of diagnosis:  Feb 24, 2009
Type of MS: Not sure, doctor used word mild but is that actually a type of MS?
The med, if any you are on: None yet, neuro has proposed Betaferon to start with
Time for first symptoms to diagnosis: 15 months
How many neuros before diagnosis: 1 neuro + 3 eye docs, not in that order.

[Zacksmomi]

Date of Dx: Feb 10, 2009

Type of MS: RRMS

Meds: Starting Rebif hopefully this week, Baclofen, Gabapentin

Time from symptoms to dx: Developed right arm parasthesia Dec 7 08 so from that 2 months.  MRI shows several brain lesions so probably had mild unrecognized symptoms for up to 15 years.

One Neuro

[student01]

Your date of diagnosis:12/27/08

Type of MS:RRMS , I think not really sure

The med, if any you are on:prescribed copaxone have not started waiting for my 2nd opinion, which is comming up on 4/01/09

Time for first symptoms to diagnosis:first sx at least 2 1/2 years ago


Lynn

How many neuros before diagnosis:going to see number two in a few weeks

[BentBarbie]

Your date of diagnosis:  October 2008
Type of MS: RRMS
The med, if any you are on: Copaxone
Time for first symptoms to diagnosis: September 2007 (but I think it goes as far back as 1999)
How many neuros before diagnosis: 1

[Farrahlicious]

Date of diagnosis:  March, 2008
Type of MS: RRMS, although not sure. Mine is extremely aggressive, and it seems it's quite determined to keeeel me!
Med you're on: NONE! i'm a rebel!
Time for first symptoms to diagnosis: it hit me like a hammer. Maybe because of my SA i ignored the symptoms
How many neuros before diagnosis: 1!!! he's awesome. But i did get a false negative on my first MRI

[HVAC]

Your date of diagnosis: 4/7/2009
Type of MS:RRMS
The med, if any you are on: will be starting Copaxone
Time for first symptoms to diagnosis:Spring 2007, Spring 2009
How many neuros before diagnosis: 3
Three abnormal  Brain MRI's
Abnormal VEP and BAER in 2007
12 o-bands 1.69 IgG
   Alex

[jdhecaj]

Onset of Symptoms 1985, ON

Date of Dx: FRIDAY 8/13/2004

Type of MS:RRMS

DMD:Refused for first 8 months, which turned out to be a very active MS year. Then when DMV would not renew my DL without a doc signature & doc wouldn't sign form unless I began betaseron...I decided to start betaseron. to keep my DL. It settled thing down right away. Then 3 years later doc said betaseron wasn't working for me anymore and recommended I switch to Tysabri. Which I did and it's working well for me for the last 8 months.

How many doctors and Neuros before diagnosis?  How long to diagnosis once you told the doctor? No neuro doc until diagnosed-3 since along with 1 PA & 1 NP. An Opthamalogist to diagnose ON (19 years before diagnosis), then a few Family Practice doc's to tell me "these things sometimes happen don't worry about it, they clear up." A psychiatrist.An ER doc to finally diagnose me with current symptoms and an MRI within 2&1/2 hours of going to a walk in clinic then being transferred to the ER. A neuro who confirmed MS, said I didn't need a lumber puncture the MRI was proof enough, and accepted me as his patient..... and .....a partridge in a pear tree.....

[rendean]

Your date of diagnosis: "officially" 4/13/09
Type of MS: RRMS
The med, if any you are on: Will start Copaxone
Time for first symptoms to diagnosis: 10 yrs
How many neuros before diagnosis; 6 if count all the ones who were too chicken to make the diagnosis. 5 if I give credit to the local neuro who suspected it on a gut level 3.5 years ago.

[jed9999]

Finally decided to post even though I couldn't imagine I was supposed to count.
MS of 36 years duration
Probable diagnosis in Jan 1973 after having had optic neuitis, double vision, numbness and vertigo at different times in college years.

Took one neuro to diagnosis. Confirmed by one of the first MRI's in 1986--classic MS lesions. Course relatively mild until this year when chronic bronchitis has changed a great deal about walking.

Type--secondary progressive says new neuro; old one still saying benign
I've just changed to my 4th neuro in 36 years.

no meds--lots of patience and prayer

[Heather3418]

Your date of diagnosis: 1995
Type of MS: RRMS
The med, if any you are on: Copaxone
Time for first symptoms to diagnosis: 2 weeks
How many neuros before diagnosis: one, then taken away by next Neuro, then diagnosed with MS again by third Neuro, saying second Neuro was an idiot


Heather

[grannyhotwheels]

Date of Diagnosis: August 2008

Type of MS:  Primary Progressive Multiple Sclerosis

The med if any you are on:  Methadone, Oxycodone, Oxybutynin, Dicyclomine, Sertraline, Doxepin, B12 Injections, and Baclofen

Time for first symptom until diagnosis:  August 2004 - August 2008

Number of Neuro's before being diagnosed:  5 but in October of 2004 my family physician told us it was MS.

I'll be praying,
Carol (grannyhotwheels)

[Heather8]

Your date of diagnosis: September 6th 2005
Type of MS: RRMS
The med, if any you are on: Copaxone and Percocet
Time for first symptoms to diagnosis: Childhood . I've always had MS symptoms since I can remember. I went blind in 2005 and then the doctors decided to look more into it.
How many neuros before diagnosis: First

[michelleric]

Your date of diagnosis:  April 10, 2009
Type of MS: RRMS
The med, if any you are on: Currently prednisone, trileptal, baclofen
Time for first symptoms to diagnosis: about a year
How many neuros before diagnosis:2

[ShoreMom]

Your date of diagnosis: March 2009
Type of MS: CIS Clinically Isolated Syndrome
The med, if any you are on: Avonex
Time for first symptoms to diagnosis: 5 months
How many neuros before diagnosis: one, and confirmed with second opinion

[spikot]

Date of Diagonosis-February 2008
Type of MS-Relapsing Remitting
Med-Copaxone
Timeof first symptoms to Diagnoses-8 years
Neuros-1

[landksmom]

Date of Diagonosis-April 1st 2009
Type of MS-Relapsing Remitting
Medication - Copaxone (not yet started- soon)
Time of first symptoms to Diagnoses-12 years
How many neuros before diagnosis:1

[Guitar_grrrl]

Date of Diagnosis - May 5 2009
Type - RRMS
Medication - Probably Copaxone, haven't started, yet.  Will start soon, along with Baclofen.
Time of Symptoms to Diagnosis - 4 1/2 years
Neurologists - 1

Guitar_grrrl

[Sarahsmom46]

Date of Diagnosis - May 18, 2009
Type - RRMS
Medications - Copaxone (will start next week), baclofen (spasicity), cymbalta (neuropathic pain)
Time of symptoms to diagnosis - Officially one year, most likely going on for at least 5
Number of Neurologists - 2

[MCBCON]

I have been diagnosed with MS.  It has been at least 3 or 4 years now.

Michael

[Military_Wifey]

Symptoms since August 2004, but blown off.
Lesions found on MRI brainscan ordered for migraines 24 March 2009, reffered to MS specialist for further testing/rule out mimics, Diagnosed 11 May 2009.
On Copaxone for RRMS.

-Dee

[roncart]

Hi I just read your post and had to ask you about the I/2 burning face that you mentioned because that happened to me a few weeks ago. I woke up at night to go to the restroom and half of my face felt as though someone lit it on fire. I did not know what was going on .It burned like hell so I got up and put a cold rag on it. The burning lasted for 14 hours and then went away all of a sudden. People thought I was crazy. I had to go to a party that day and I was telling them how much my face burned and they told me it didn't look like there was anything wrong. About 2 weeks latr again I woke up at night and half of my back felt the same thing. Thank God that only lasted about an hour and then it went away. Could you give me the details of your experience? Thanks. Roncart

[Heather8]

Your date of diagnosis: September 6th 2005 (my birthday gift)

Type of MS: RRMS

The med, if any you are on: Copaxone and Percocet

Time for first symptoms to diagnosis: I've had MS symptoms since childhood. (was blown off like many others) I was not Dx'd until I lost my vision.

How many neuros before diagnosis: 1 but I'm on my second since the first one left the state.

[b125]

Date of diagnosis: May 25, 2009
Type of MS: .....too soon to tell....it gives me anxiety....
Meds: none, yet, other than prednisone for Optic Neuritis
Time from symptoms to first Dx:
   The more I read, I may have had symptoms and never really thought much of it.  I had a "burning face" at night once, but I blamed it on having had a facial treatment.  I had experiencied "sparklies" in my vision, but never anything severe, and it had been very transient. I blamed that on not eating enough for breakfast, or on stress. And muscle aches, well, I always blamed that on normal muscle aches.  
   I had started noticing blurry vision in my left eye on May 21, and originally believed it was a dirty contact lens. I later thought it was likely that I needed a new lens prescription and had just suddenly noticed. At the time, it was an inconvienience, but I didn't worry too terribly much, other than wondering why I would suddenly notice a change. The morning of May 23, I awoke with almost no vision in my left eye, and visited two ERs, saw a resident ophamologist, and had two xrays and an hour of MRI. I was admitted for three nights and recieved visitations from a few members of the neurology team, as well as the opthamology resident, over the holiday weekend. On the basis of my optic neuritis and MRI scans, the diagnosis of MS was given by Monday.

[needanswers54]

Searching for answers for well over ten years.  Diagnosed also with fibromyalgia (still) and also lupus which switched to yes, probably, and possibly (now).

Told be doctor(s) 2005 probably MS.  Diagnosed by a neuro in 2007.  "Possible" and also " that I was looking for something to be wrong" and "no way" by other neuros since then.

Rheumy which originally diagnosed me with lupus probably and then told me in 2006 or 2007 that I may have MS--wrote that he was not convinced with my neuro's 2007 diagnosis of MS.  (He wanted it from an MS center to prove it to him.)  Finally evaluated by MS center this summer and diagnosed [2009].

Doctor wrote in my chart how "I thought" I had MS and transverse myelitis with it.  It was confirmed MS with multiple myelitis, encephalitis and/or encephalomyelitis in past or somewhat going on now, and cervical transverse myelitis.  He decided to drop me as a patient after being with him a decade.  I went to office and told him that my thoughts now have been confirmed.

Original diagnosing doctor said that it was negligence on part of other neuro(s).

Started on daily copaxone injections.

I am glad to FINALLY be validated and getting treatment as I believe that I have really gone downhill these past years--especially since the last one or two years.

The injections are well worth it if the progression of this disease decreases.

Good luck to all!

[Lulu54]

Hi Needsanswers, I tried to leave you a note but you have that turned off for now.  Just wanted to say I'm glad you finally have some answers and are on treatment for your MS.  I hope you will stick around here and share more of your journey with everyone else here.  be well, Lulu

[fortywhat2]

Your date of diagnosis: 8/2008
Type of MS: primary progressive
The med, if any you are on: adderal XR
Time from first First symptoms to diagnosis: I guess may symptoms that I ignored for years they say I've probably had for 10 - 20 years
How many neuros before diagnosis: 2 but 1st said MS 2nd was for spinal tap and I just liked her better

[fortywhat2]

Hi,
Let me introduce myself first, I'm Debbie haven't been on in a while you'll find me more in the winter months(but that's not really important).  I want to share some information that was shared with me by my neurologist.  I should begin by telling you that I have primary progressive multiple sclerosis which there is no known medication for because I don't have flair-ups I'm just on a steady decline.  When I was first dx'd (diagnosed) I was looking for a medication that would help me.  My neurologist (who is among one of the best, she works out of Beth Israel Hospital in Boston MA), explained to me that the injectable medications that are out there only decrease the intensitly and frequency of the flair-ups of those who have RRMS.  She told me that she could put me on something if I wanted to stick a needle in myself daily but the end results would be the same.  She went on to explain (this is why I love my neurologist) that in an 18 month study done with patients who received injections and some who didn't the end result was the same as far as progression.  She stated that the injections (doesn't matter  which one, they all do the same thing it's just different people tolerate different ones better)only decrease the amount and severity of the flair ups they don;t change the progression of the desease. Unfortunately no one has come up with a medication to  decrease progression.
I do hope your injections help with your flairs and make your daily life much better for you... sorry for being so long winded I just thought you'd like the information I have been able to seek out.  I bounce in and out of here but will always respond if you'd like to chat.

Hi everyone... hope all is well!!!
Debbie

[Quixotic1]

bump for all the newcomers with diagnoses and the newly diagnosed

[Wobbly]

Dx Aug 2009

PPMS - No Meds
only meds to treat symptoms

took 4 years to Dx

5 Neuros

[LoveMyBostons]

Date of Diagnosis - 9/15/09
Type - RRMS
Medication - Copaxone (will start soon, waiting to hear from pharmacy)
Time of Symptoms to Diagnosis - 6 months
Neurologists - 1

[patc21]

Your date of diagnosis: 7/6/2009
Type of MS :RRMS
The med, if any you are on: Copaxone, Tegretol
Time for first symptoms to diagnosis: 1 Month
How many neuros before diagnosis:0
Luck to be sent for an MRI by a urgent care DR, DX on the same day.

[poker247]

Your date of diagnosis: March 2009
Type of MS: RRMS
The med, if any you are on: Copaxone was on Rebif to start but it did not agree with me
Time for first symptoms to diagnosis: Started in 2004 multiple MRI's, Tests, Blood work. No one would diagnose me till I had trouble walking 1/2/09 repeat MRI showed old lesions grew and 4 new lesions
How many neuros before diagnosis: Two..... One for the testing (even though I wasn't getting answers I trusted him..he is GREAT and LISTENS)  and one for the second opinion (He is the Director of the MS Society in New York and heavily involved in research)

[green924]

Think I have forgot what all info you wanted since I got to the bottom, but...

DX'd - 9-10-09

Neuro says its RRMS, but I'm really not sure. I have other DX's to and I'm having trouble figuring out what is what, but whatever "IT" is it has progressed over the last 9 1/2 years.

Supposed to be starting Copaxone but having trouble with assistance app (uninsurable due to other pre-ex conditions)...

First "autoimmune symptoms" started in 2000, had what I now know was a severe flare in 2002, but Neuro at that time dismissed possibility of MS because I had just had an auto accident and they believed all probs stemmed from that...

2 Neuros, 1 (crazy) Rheumy, and a great PCP who is trying to find me a better neuro somewhere other than our little podunk town in KY that will see me being a self-pay patient...

Hope thats everything cause I don't feel like I know anything anymore! LOL!

Live, Laugh, Love
Melanie - 28

[Weakandfalling]

Hi, Quix!  Glad to see you're back!  This cooler weather is great isn't it!

I'm still in limbo land but hope to exit soon!  Recent MRI of head somewhat positive with lesions in periventricular white matter and optic nerve involvement (going along with blurred vision).  Because of my age, they want to say "microvascular disease."

The tiebreaker comes tomorrow:  Finally am having MRI of cervical and thoracic spine on a 3 Tesla.  Never had thoracic spine MRI before.  Got my Xanax ready.

Lately, have been VERY symptomatic with continued blurred vision periodically and all-too-frequent mega-Charlie-horse spasms in the thighs or calves that make me jump out of bed a few times at night and have interrupted my work today.  My posterior thigh muscles take turns torturing me - I have to jump up and stand on my affected leg - but the spasm remains for 5 to 10 minutes!  Pain!!!!   Very tight muscles lately.  Sometimes right foot somewhat draggy.
Have also had some breathing issues - still scared it could be ALS!

MS lesions gotta show up on the spine MRI with my gait and lower extremity symptoms!!  Also have felt MS hug.  Must have thoracic lesions!!

History of distinct attacks? Yes (see above).  Also have had periodic numbness of right face and arm.  Sensory weirdness - like I'm walking in thigh-high boots filled with wet sand etc.

Also have continuing weakness, fatigue, and gait/balance issues.  I fell the other day (WITH my rolator) onto my right hip.  What a joy!  No harm done (it pays to have natural padding).

MRI lesions:  Yes.
LP : Negative (but may not have actually been sent).
How many Neuros so far: # 9 (4 were for ALS eval)

Keep your fingers crossed for me that MS lesions will be seen on my MRIs of the spine tomorrow!

Hugs!

WAF

[JonGalt]

Your date of diagnosis:  June 2009
Type of MS: ? Relapse Remitting MS ?
The med, if any you are on: None
Time for first symptoms to diagnosis: About 2 months,  the time it took to see the doc
How many neuros before diagnosis: 1

[Weakandfalling]

Quix,

Hey, I just noticed that your post was in the year 2008 - not a current post as I had thought!  I hope you are feeling better in the cooler weather and that you are enjoying having your parents live with you.

Second, I honestly don't know how my response got under the "diagnosed" header when I distinctly remember clicking on the "not diagnosed yet" heading before responding.  But I did have trouble posting my response and had to jump through a number of hoops before I could post my info, so maybe that threw it off and the computer placed it under the wrong header.  Or maybe it's a sign that I was meant to be in the diagnosed" column and soon will be officially!!!  I'm going to stay with that thought!!  

Today I go for my spine MRIs (cervical and thoracic). I'm excited and hopeful!  Think "diagnosis" for me!!

WAF

[madison130]

Your date of diagnosis:  9/9/09
Type of MS: RRMS
The med, if any you are on: Getting ready to start Rebif next week.
Time for first symptoms to diagnosis: About 1 month...  well, at least the first symptoms I noticed.  But thinking back, I've had symptoms for about 3 years, but none were ever severe enough for me to think there was a serious problem...  everyone gets dizzy sometimes, right?  haha  =))
How many neuros before diagnosis: 1 neuro, and my GP.

[ErinZoe23]

Your date of diagnosis: July of 2009
Type of MS: RRMS
The med, if any you are on:  Nuerotin, baclofen, Avenox
Time for first symptoms to diagnosis: First Attack in April of 09 diagnosed in july of 09
How many neuros before diagnosis: 1 neuro diagnosed on the first visit

[Mustang0064]

This is my story..
Type RRMS
Med  Wellbutrin, cyclobenzaprine
FirstDx 1999
#neuro   2

All this started 10years ago, I thought it was too much playstation hands then arms went numb. Then couldn't get out of bed for new years day.  Went to local E/R they sent me to another hospital to see a neuro and he kept me there for 3+weeks on prednisolone I/V.  Got out went about my life, saw neuro every couple of mths.  Felt ok, have to, had 3 children and a new boyfriend. Started new job on goat farm,  worked hard physically, very demanding not an ordinary farm it is in biotech industry, all has to be done according to Standard Operating Procedures and logged.
Been there 9 years, now children are gone and i think my body said ok now it's your turn to rest.  I have been off since april 09 and still have not rested to my liking...i think it is due to the guilty mom syndrome.

Today i am on my way to my GP to beg for more time off.  My neuro seems to think i should rest and ENJOY life which i have a lot of trouble doing

MRI in 99 didn't see results myself and no one seems to have a copy of it.
MRI in aug 09 saystherare multiple punctate, oval and round hyperintense signals on FLAIR sequences as well as T2 involving prdominantly the corona radiata, periventricular, pericallosal and centrum semiovale. range from a few mm to 1.0cm.
the sagittal T2 demonstrate that the hyperintense signals are somewhat perpendicular to the coprpus callosum consistent with Dawson's  fingers. blah,blah,blah.  Impression MS as per clinical diagnosis.

So am i wrong to want to stay off work?

[newclevelander]

Your date of diagnosis: 27 June 2008
Type of MS: RRMS
The med, if any you are on: rituximab (Rituxan)
Time for first symptoms to diagnosis: 14 days
How many neuros before diagnosis: 1

[2BHappy179]

Date Diagnosed: August 2009
Type: RRMS
Medication: Capaxone
First known symptoms: Optic Neuritis July 09 although neuro think's I have had it for 9 year's..
Neuro's B4 Diagnosis: First visit diagnosed!! Doh!!

[maartu]

Your date of diagnosis: possibly first attack 1980 but never diagnosed
Type of MS: never diagnosed only told probably had MS; type???
The med, if any you are on: N/A
Time for first symptoms to diagnosis: 1980 foot drag, blind in right eye, protrusion on brain but never diagnosed
How many neuros before diagnosis: don't understand term Neuros??; August 2009 had MRI which showed 1 large white spot on right side and 1 small white spot on left side; written report indicated that spots are consistent with dawson fingers and someone who has MS. Scheduled to do MRI of spine October 2009.

[tick123]

date-diagnosed   ?  think  2007
started wierd symp.  -    1995
went through- 4  neuros
last one a keeper
rrms-i think---its worse-
had tumor removed 1995- had lessions then-
on  copaxone     tick

[stras58]

Your date of diagnosis: September 07 with mild MS, March 08 with RRMS
Type of MS: RRMS
The med, if any you are on: Betaseron
Time for first symptoms to diagnosis: 9 months
How many neuros before diagnosis: 2

[Jessjazzi]

Your date of diagnosis: September 08
Type of MS: RRMS
The med, if any you are on: tysarbi
Time for first symptoms to diagnosis: 2months
How many neuros before diagnosis: 1

[twopack]

Your date of diagnosis: October 27, 2009
Type of MS: Haven't been told yet.
The med, if any, you are on: Will hopefully know next week.
Time for first symptoms to diagnosis: Over 20 years but I didn't persue it after the first MS specialist refused diagnosis.  From recent presentation to PCP to diagnosis was 2 months.
How many neuros before diagnosis: 3

[Fluffysmom]

Date of diagnosis:  October 19, 2009

Type of MS:  RRMS

Medication:  Avonex

Time from first symptoms to diagnosis:  20 months (possibly more, in hindsight)

How many neurologists before diagnosis:  4

[momma2abcd]

Your date of diagnosis:  August 2007
Type of MS: RRMS - I think?
The med, if any you are on: Copaxone
Time for first symptoms to diagnosis: 6 months
How many neuros before diagnosis: 2