WOBBLY,
IT WAS GOOD FOR YOU TO HAVE THAT GOOD CRY MANY OF US HAS DONE THAT HERE MORE THAN ONCE.
IT RELEASES MUCH WE HAVE HAD HELD IN.
THE TEST WERE EXPLAINED VERY WELL ABOVE.YOUR DR. IS BEING VERY AGGRESSIVE IN TESTING AND ITS ABOUT DANG GONE TIME.
YOUR DRS. HAVE MONKEY BUTTED AROUND AND HAVE BEEN DISSMISSIVE AND ITS ABOUT TIME THEY HEARD YOU , READ YOUR TIMELIME AND YOU DONE VERY GOOD AT BEING VOICEFUL AND PROACTIVE IN YOUR HEALTH. I'M PROUD OF YOU!
SWEETIE WE ARE HERE FOR YOU AS ALWAYS,I KNOW I HAVE BEEN MISSING IN ACTION FOR SO LONG THAT I FEEL I HAVE SO MUCH TO CATCH UP ON.
I'M SENDING YOU HUGS AND PRAYERS,YOU HANG TOUGH,YOU WILL GET A DX.THIS DR DID LISTEN.
IN MANY CLINICAL FACILTIES THE CLERK OR PHYSICIAN ASSISTANT DOES MUCH OF THE PRE-WORK THE THE SPECIALIST COMES IN AND THEN THE APPOINTMENT ENDS WITH THE CLERK.
THE NEXT APPOINTMENT WILL BE DIFFERENT AFTER ALL THE TEST RESULTS ARE IN.
HUGS AND PRAYERS
T-LYNN
thanks for the info guys...that's good to know... I'm in Canada...we don't get our MRI that quickly...I hope by next year..it can take up to 6 months.....that's what drive me abit crazy...it knowing it will be another long wait...
thanks again...
wobbly
undx
ooops, meant to say lots of "imaging" NOT, lots of "imagine" LOL!
Hey you,
The test were explained well above, just wanted you to know that it sounds to me that the Dr is being aggressive with testing. As we discuss so very much, this is a very lengthy workup, and it takes time. i.e., lots of bloodwork to rule in or out mimics, lots of imagine to be able to "see" what your central nervous system looks like.
The results of these test will "hopefully" tell them a lot. I know this is probably not reassuring to you right now. But, we are here while you go through this, always. When is the MRI scheduled for? Next week?
Think of this as progress Wobbs, it will comfort you. Dr. is going to get more info and hopefully be able to find out more of what is going on.
Pulling for you all the way,
Shell
Here's my take on it..
Whole spine. Forgive me for not checking prior posts to see what you've had done so far. I'm in the middle of a whole spine bit right now, too. You can have lesions anywhere in your central nervous system, which consists of your brain and spinal cord. MS lesions are found most often in the cervical cord, but can also be in the thoracic. Your spinal cord doesn't reach down into the lumbar. You might also find non-lesion troubles in the MRIs that are causing symptoms, like a disc out of line, or a problem with a vertebra.
Since one of my differential dx's is transverse myelitis, I know that the lesions in it are more commonly found in the thoracic spine, and that they are usually longer than a couple of vertebral segments, whereas the ones from MS are more discrete, and more often cervical.
A VEP measures the time it takes an electrical signal to travel from your eyes to the back of your head, where your brain sees things. You watch a changing checkerboard, and electrodes placed on the back of your head on the scalp sense how you're seeing it. If the signal gets to your vision center maintaining its wave shape, but with a longer-than-normal delay, it's being slowed by demyelination along its path. This test can show delays even with no visible lesions.
Don't know about the bladder scan, but people with MS sometimes have problems with emptying their bladders completely--maybe it measures that?
I'm getting the autoimmune things tested again, too. One of the tests is for an antibody to neuromyelitis optica (Devic's disease), which affects only the eyes and spinal cord. Maybe some of the diagnosed folks can share their expertise with the sed rate and CRP tests, like whether they get them annually or not.
Take care, and good luck.