Z

[essdipity]

Hey there, been looking for you. How did the MRIs go, and how are you feeling?

ess

[Momzilla]

You go, girl!

I just posted a q about how it went.  Bad timing on my part.  I hope you get a chance to post about it for others...

Glad it's all right so far.  Sorry she was wrong about the stinging.  Drat her!

Go buy something terrific!

Love,

Z*

[essdipity]

Well, I'm here to tell ya that I'm here to tell ya.

I survived, and I'm no longer a Copaxone virgin. The injection site stings, but that's all that's happened thus far. The nurse downplayed all the reaction business, which is to be expected, I guess, and told me that it had stopped stinging when it hadn't. But not a big deal. To be honest I was a bit apprehensive about getting the paplpitations/anxiety reaction. I haven't, though, and the nurse said that if it does occur it's immediate. So that bridge is crossed.

Anyway, I'm hoping this is the first day of the rest of my life in terms of MS. Soon I will go out and treat myself to some shopping and something yummy to eat. Who was it who said that Copaxone took away her appetite? Why can't that ever happen to me? If I don't eat I'm REALLY sick.

ess

[monotreme]

Hi Zilla,
   Craig is ok.  He is taking Provigil (one quarter of a 200 mg tablet) so it is 50 mg a day.,  That helps him to stay awake even though he is very tired and looks it.

   He goes to the Physical therapy center on Friday for an evaluation and then can start treatment.  The PT center is actually a rehab center where they are used to people with neuro disorders who need extensive leg strengthening.  Craig is hoping the "muscle re-education" will help his legs to move in the water this summer.

   The physiatrist likes Cymbalta for nerve pain instead of neurontin which Dr. M ordered.  So far Craig has not taken either but since he tends to have high fasting blood sugars of 100 to 105, which is pre-diabetic, I think he would be better off on the Cymbalta.  We will discuss that with M. and I am sure the physiatrist will write some kind of summary for M too.

   I am praying that you will get some answers on March 25.  Maybe the neuro could give you Provigil for your fatigue.

   Good decision on telling the person next to you about your hearing difficulties in crowded places.  It is always better to tell people up front about something.  Quix taught Craig that.

   Ok, so let's hope the nurse appt for ess went well.

   Good Luck ess and let us know how it went!!

  Elaine

[Momzilla]

Yes, please don't gross out the nurse!  You're too funny.

Good luck, ess.  Please report back.  I know a crusty broad like you is going to do just fine.

Hope you feel well.

Z*

[essdipity]

Hi. This Copaxone nurse is coming shortly and I think it'd be nice if I showered first! Don't want to gross her out. I guess she'll walk me through the whole deal first time around.

Will report on how it goes.

ess

[Momzilla]

How is Craig holding up?  Anything new?  Have you spoken to Dr. M. recently?  I haven't really looked at the forum well.  So tired.  Went to sleep at 7:30 last night.  Made dinner and went to bed.  Thank goodness for older children!

My evoked potentials are now scheduled for next Tuesday.  The tech is going to miss half her lunch hour, because she felt badly about messing up the schedule.  I hate to ask her to, I know things happen.  But I am eager to get this show on the road.  My next appointment with the doctor is March 25th, and I'd like all the tests he ordered to have been interpreted by then.

The Mom's thing is monthly and I think it's in a couple of weeks.  They always go to a swanky restaurant, which is my idea of a good time.  Hanging with the girls!  My hearing is so bad, though, especially in places like crowded restaurants, so I decided I'm just going to tell whomever I'm sitting with that my hearing aids don't work well in public places like that.  Get it out of the way early.

Anyway, I'll be interested to find out what's up with you guys.  Do tell.

Zilla*

[monotreme]

Hi Zilla,
   yes, I was thinking of you yesterday and hoping the MRI went well.  When are the evoked potentials scheduled for now??

   I just read an article yesterday and Black Cohosh and St Johns Wort are recommended for hot flashes and mood swings related to menopause.

    So, when is the next neuro appt?  Did you go to the mom's meeting??
  
  Elaine

[Momzilla]

Hey, ess!

Thanks for thinking of me.  I went for my C-spine MRI yesterday (3T, of course, dahling.  The only way to go!), but they had to reschedule my evoked potentials.  Dagnabbit!  They overbooked.  I'm so eager to get that done.

As to how I'm feeling...it's the day after my day off, so I'm pooped, as always.  I'm usually a zombie on Wednesdays and Sundays, after doing too much on my "days off!"  But, don't listen to me complain!  

As a side note--my 'warm epiphanies' have subsided.  I talked to my mom about them.  She said that although she and her sister both had hysterectomies very young, my grandmother started menopause at age 35!  My mom's hot flashes started up and stopped for a while, too.

My eye thing is subsiding, too, I think.  It really only stays shut if I wake in the night, or very early.  I do wonder why.  Isn't that funny?  I have to give it a good effort to open it, but, once open, it's good to go!

Now, I'm rambling about moi.  How are vous?  What have you decided about your care?

Z*