a little horrified and embarrased right now

[mamiJ]

I am in limbo..my last visit with my neuro, he attributed everything to fibro and gave me new meds
(mind you, I have had fibro for 9 years now and these symptoms have been around for about six months or so)

this is embarrassing, but since I know you all can relate....

this morning, I dressed for work and was getting ready to leave and felt a strange gush of fluid on my pants. I had no sensation of having to urinate..it just seemed like clear fluid.

I have gyn issues off/on and thought it was something weird with my endometriosis, so I cleaned up and changed clothes and went to work.

I have been at work for three hours, sitting and I just stood up to get water and again....the gush of fluid.

but now, I 'm thinking that it was actually urine and not something else.

not sure what to do.

thanks

[Quixotic1]

The "dumping" episodes you had make me worry that you are retaining urine and then suddenly dumping it because it is overfull.  Retention can be serious because it leads to UTIs and if it progresses untreated it can back up and damage the kidneys.

Make sure you use pad for incontinence and not for periods.  They are often absorbent in different ways.

Really stay opn top of the referral to the Uro-G.  Call until the referral goes through, and if the appointment isn't for some time, ask to be put on a cancellation list.

Quix

[treebranches]

While I have no idea how this is making you feel, you have my sympathies.  I truly hope the problem is resolved soon for you.

I can understand why you're basically afraid to take in any fluids, but you need to try to drink water because otherwise you risk dehydration, especially if you're in a hot climate.  Remember that if you're thirsty, you're already dehydrated.

Unfortunately if your bladder problem is found to be neurological in nature, there usually isn't way to predict when it can occur that applies to every one.  It is possible, however, that you might notice your own body's trend, like if you're sitting for a while and then stand up?  Hopefully whatever the cause is has a solution.

Good luck.  :)

[mamiJ]

I have another question.

If the bladder problem is neurological, is there any pattern of when it can or will happen?

It hasn't happened today.

Thanks

[mamiJ]

Thanks everyone for your responses.I have a referral to a urogyn (just left PCP office)

He again said this is not fibro.

he said it is a different neurological issue, or a pending neuro issue (whatever that means)

I have been wearing a maxi pad since yesterday afternoon.

Not to sound gross,but I looked at my pants when I got home. There was a spot about the size of my thumb and forefinger together and it was hard.

It didn't have a strong smell, but did smell like urine.

I had some small leakage last night,but none today. I can tell by the way the urine specimen looked that I'm not drinking enough...guess I'm scared to.

My bladder has felt full all day. (Sigh) guess I'll just have to wait

Thanks again

[Quixotic1]

I agree with above

See doctor, preferably Urogynecologist, ASAP.  

Get a new neuro - this isn't Fibro.  I think Mary's assessment is spot on.

Avoid bladder irritants in the meantime - caffeine, citrus, chocolate (for some), sodas, dairy (for some).  When I read the list it was basically my whole diet,  :((

I wear an "Ultimate" pad 24/7.  You might consider doing this until you get this figured out.  I am so sensitive about losing it in public.  I just hate it and you have my sympathy.

If you let the clothes dry a little bit, you'll know it was urine immediately.  But, honestly there is no other source for clear fluid like that.

Quix

[twopack]

It was sudden and complete involuntary loss of bladder contents that got me back on the MS diagnostic track after 20 years of "not worrying about it" per doctor's instructions.  There is nothing I know of about fibromyalgia or the normal female aging process that would cause this.

Personally, I'd be looking for an opinion from a different neuro.  I suspect your present neuro stays safely inside the fibro diagnosis because there is no test that can dispute it.  I'm beginning to think the problem docs have with diagnosing MS on clinical evidence may be that somewhere down the line they fear another doc may prove their diagnosis false.  They can't tolerate that.  They are more comfortable claiming lack of supportive independent laboratory evidence to make a diagnosis at this time.  They don't believe that what looks, sounds, and acts like a duck is in fact, a duck.  Unfortunately, they aren't the ones who have the most to lose as a result of their indecision and fear!

I don't have any idea if you have MS or not.  I do think you need to be able to go forward with treatment or feel confident that it is not possible to settle on a diagnosis at this time.  I don't hear that you are there.

Mary

[Lulu54]

How embarassing for you - I'm so sorry this has happened.

Ess is tright - you definitely need to see a urogynecologist to determine the cause.  The total release of your bladder can be a sign of something neurogenic going on.  You definitely need to be evaluated to find the proper help for you.

be well,
Lulu

[essdipity]

I'm sorry you had this experience. I think you need to see a urogynecologist as soon as you can. This is definitely not normal! Not to mention embarrassing.

Save your soiled clothes to make sure what the fluid is, though I'm betting it's urine.

Sending best wishes,
ess