I am in limbo..my last visit with my neuro, he attributed everything to fibro and gave me new meds
(mind you, I have had fibro for 9 years now and these symptoms have been around for about six months or so)
this is embarrassing, but since I know you all can relate....
this morning, I dressed for work and was getting ready to leave and felt a strange gush of fluid on my pants. I had no sensation of having to urinate..it just seemed like clear fluid.
I have gyn issues off/on and thought it was something weird with my endometriosis, so I cleaned up and changed clothes and went to work.
I have been at work for three hours, sitting and I just stood up to get water and again....the gush of fluid.
but now, I 'm thinking that it was actually urine and not something else.
How embarassing for you - I'm so sorry this has happened.
Ess is tright - you definitely need to see a urogynecologist to determine the cause. The total release of your bladder can be a sign of something neurogenic going on. You definitely need to be evaluated to find the proper help for you.
It was sudden and complete involuntary loss of bladder contents that got me back on the MS diagnostic track after 20 years of "not worrying about it" per doctor's instructions. There is nothing I know of about fibromyalgia or the normal female aging process that would cause this.
Personally, I'd be looking for an opinion from a different neuro. I suspect your present neuro stays safely inside the fibro diagnosis because there is no test that can dispute it. I'm beginning to think the problem docs have with diagnosing MS on clinical evidence may be that somewhere down the line they fear another doc may prove their diagnosis false. They can't tolerate that. They are more comfortable claiming lack of supportive independent laboratory evidence to make a diagnosis at this time. They don't believe that what looks, sounds, and acts like a duck is in fact, a duck. Unfortunately, they aren't the ones who have the most to lose as a result of their indecision and fear!
I don't have any idea if you have MS or not. I do think you need to be able to go forward with treatment or feel confident that it is not possible to settle on a diagnosis at this time. I don't hear that you are there.
While I have no idea how this is making you feel, you have my sympathies. I truly hope the problem is resolved soon for you.
I can understand why you're basically afraid to take in any fluids, but you need to try to drink water because otherwise you risk dehydration, especially if you're in a hot climate. Remember that if you're thirsty, you're already dehydrated.
Unfortunately if your bladder problem is found to be neurological in nature, there usually isn't way to predict when it can occur that applies to every one. It is possible, however, that you might notice your own body's trend, like if you're sitting for a while and then stand up? Hopefully whatever the cause is has a solution.
The "dumping" episodes you had make me worry that you are retaining urine and then suddenly dumping it because it is overfull. Retention can be serious because it leads to UTIs and if it progresses untreated it can back up and damage the kidneys.
Make sure you use pad for incontinence and not for periods. They are often absorbent in different ways.
Really stay opn top of the referral to the Uro-G. Call until the referral goes through, and if the appointment isn't for some time, ask to be put on a cancellation list.
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