The name of the book is "The Lyme Disease Solution". by Kenneth Singleton, M.D. It is a good book with many good suggestions on how to reduce your symptoms when you have Lyme.
That makes sense about the Vitamin D deficiency explanation. I have auto immune thyroid disease so I guess there is the answer on how my immune system is functioning!!
Please keep us posted. I can definitely relate to your disappointment in not being able to do your yardwork. Hang in there and I hope Hopkins will have a true answer for you.
Elaine
My vitamin D is now normal.... it was 25. I was treated for 4 weeks. I was told by my doctor that normal is 32-100. which seems like a huge range. My vitamin D is now normal but I am not. My symptoms definately cycle.
They always start with eyes (blurred visoin the eye ball fasciculates) then jaw then arms and legs.Then I have a 1-2 days of cruel normal days. i mean normal not a nuero symptom to be had then it starts all over again.
Each cycle seems to decrease in intensity and duration. I worked in my yard today and it would be nothing for me to fill wheel barrel after wheel barrel of mulch and spread it. Today ...not even close I am brought to tears over the loss. My husband, kids and I always do the yard before Easter. We have a lot of family friends over..... it was hard to ask my 12 year old to take on the majority of the load. I was so tired after the first load.
Many doctors have told me that Vitamin D deficiency is a symptom and an overall picture of how your immune system is functioning. Not a diagnosis.
How is Craig. How are you? It sound like you have some stuff going on as well. Thank you for listening and responding.
I am very sorry for all the diagnoses being tossed around. Craig and I can definitely relate to your troubles.
On the vitamin D opinion, I do have one comment. I was found to have severe vitamin D deficiency, much below the normal range. I also have severe vit B12 deficiency.
I have been having leg weakness, and much leg pain when trying to walk for pleasure...say a mile or more. If I tried, I would have a very hard time running. I can feel the weakness in the legs, and now that I am on high doses of vit D, things are not returning to normal yet. And I was up all night with muscle pain last night from going on a walk.
How low was your D level??
I would doubt that is what is causing all your problems, but I would have to say from my experiences, I have definitely seen a weakness issue from my vitamin deficiencies.
As I posted to you before, Craig has been in limbo and he did pursue the Lyme diagnosis in the beginning.
I am reading a very good book on Lyme. Would you like the name of it? It is written by a Lyme neuro who had chronic Lyme himself and was cured. He is the one that uses LDN in chronic Lyme with good results.
Elaine