anyone have or had transverse myelitis?

[MShasMS]

I've asked before but I figured I'd post this again. I'm still recovering from transverse myelitis attack that I had in January and I'm just trying to find anyone else that's had it and what their their lasting symptoms are. I know that only 1-5 people out of every million get it so not sure how many answers I'll get to this but if you've had it or are having symptoms right now love to hear how it's going for you.

[MShasMS]

Thanks JJ. I'm one of the " lucky " ones, my TM led me to a quick MS diagnosis. My TM attack put me in the hospital on 1/9/15 and I'm not healing as fast as I hoped. I found out today that it might be because last week's repeat MRI shows that instead of getting better my lesion has gotten bigger. So now we are looking at a five day IV course of steroids that luckily I can do from home this time instead of having to go in the hospital. I'm ready for this "1 time" event to be over so I can get on with finding out how the MS is going to go. I will also be starting Copaxone within about a week or so, so we'll see how that does too.

[supermum_ms]

"The Relationship between Transverse Myelitis and Multiple Sclerosis
Transverse myelitis (TM) and multiple sclerosis (MS) are both inflammatory disorders of the central nervous system where the immune system becomes abnormal and attacks the nervous system.

TM is largely a “one-time” disease (monophasic) that involves only the spinal cord. MS is always a “many-time” disease (multiphasic) that involves the brain, optic nerves and spinal cord. Regardless of the regional specificity and temporality, the underlying mechanisms of these two diseases are largely similar.

What makes this collaboration interesting and productive is that, depending on the series, 15-to-43% of TM patients may ultimately be diagnosed with MS."

http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/project_restore/conditions/

Radiology assistant is a teaching tool which has a lot of good information in general, i refer the national ms society quite a bit and it has TM page...

http://www.radiologyassistant.nl/en/p4f789faf60fa4/spine-myelopathy.html

http://www.nationalmssociety.org/What-is-MS/Related-Conditions/Transverse-Myelitis

Cheers........JJ

[supermum_ms]

I actually read something the other day about TM, it seems to be linked to MS but it also seems that it was possible to be misdiagnosed with TM and later dx with MS and visa versa. I'll try and find it for you and post it after my nanny nap lol but what stood out was relating to recovery of TM which was something like 1/3 fully recover 1/3 partially recover and 1/3 continue to be effected. The other things was in relation to TM lesion size typically being bigger/longer and causing more symptoms than MS spinal cord lesions. I'll find it for you because it was interesting and might be of some help....

Cheers.........JJ