bowel troubles

[candy158]

y candy158
, less than a minute ago
To: everyone
this is a difficult question to ask people.  But, I have to anyways.   How many of us with MS end up in the hospital because of bowel  prpoblems.  I don't have a name for it, but I can tell you it hurts like..( well , you know)..... I have been researching, and have found that IBS is common with people with MS..... has anyone else found this out.  ?  and if so, what have they done to help you. ??   Please help, I don't want to end up back in the hospital......

Scared and tired of hospitals, \
Candy

[meg321]

Okay, im back..i had diverticulitis..they are little pockets attached to the wall of the colon..yiu can read about it on here...

http://tiny.cc/xgmpl

let me know if that works for you or just do a seach for diverticulitis

good luck,

meg

[meg321]

Hi Candy,

There is definitely something wrong...I would get on the phone immediately and get very assertive...

Or find another Dr...

The colonoscopy is a very good idea, you will proobably need to make the appt yourself.
I had very bad pain at one time, it was before my MS diagnosis..I can't remember what was causing it.  But I went on some very heavy-duty antibiotics.  

I will find it and let yiu know..

be back...
meg

[candy158]

Thanks for your posts.  I will explain my troubles..... for over a year, I have been having excruatiangng (sp) pains in my abdomen and it has sent me to the ER on more that 6 occasions.  Last April they finally did more tests, had MRI's, cat scans, ultrasounds, blood work till I didn't think I would have anyt left...... then NOTHING.   I was still in this horrible pain, that was paralalyzing... it made you belch horribly, and then within a few minutes the PAIN hit, then I was vomitting ...... it was horrible.  Went to a new hopsital, and they did anaother Cat scan and found my 9 cm. tumors oln the ovaries, and I lost both of them on \april 10 last year.

The pain never really left.   So, back to the ER and am sick of it..... thought everythinbg was going well, with fruit, prunes, barley, bran, bran flakes, stool softeners, metamucil, benefibre, and whatever else we could get our hands on.   Then Last sunday, had my
daughter and her hubby for dinner, went to the bathroom to wash up before dinner,
walked back into the kitchen, and was doubled over in pain, and starting vomitting in the sink.  Within 45 min. hubby, daughter, and soninlaw werre all at the ER with me.

They admitted me right away because of my surgery in April, and they did not want to have any troubles.  So, one week later, I'm on the same regiment of stuff that I was on before, but still more.... a new one called LAZ-A-Day, and Modulon prescriptions. and Milk of Magnesia, ............... seems to be working for right now, until I sit down to type this.

The belching is coming again, and I'm afraid so is the pain.  So, if I end this adruptly you know why.  

The Dr.'s at the hospital said that the tumors in Aprill were a fluke find, that the pain was actually the intestines and bowels.   They said I made history for them as they had NEVER given so much bowel care to someone and have them take 6 days to do anything.  It was so horrible, being poked, proded, and made to drink this horrible stuff ....
one day I was told I had to drink 4 litres of this awful stuff............   gag, gag, gag,
but we did it, trying to help oneself..

So, now we are back athome.... said we needed out patient care, and a colonscopy and stuff, but no appts. were made, or anything, so we have to contact the hopsital to see what they are doing.

gO TO THE nEURO  NEXT WEEK, AND AM GLAD FOR THAT BECAUSE OF SO MANY OTHER THINGS THAT SEEM TO BE GOING ON.   HAD TO GO TO LARGE TYPE, SORRY .....

WAS TOLD THIS MORNING THAT I LOOKED FANTASTIC AND LOOKIED LIKE NOTHING WAS WRONG WITH ME, AND I WANTED TO PUNCH THEM IN THE FACE......

THEY SAID IF IT WERENOT FOR THE CANE, THEY WOULD NOT KNOW ANYTHING.

THAT IS UNTIL THEY START TO SIT DOWN, AND I SHUDDER AND SHAKE, AND CAN'T REMEMBER WHAT THEY SAY, AND HAVE TO LEAVE BECAUSE THE NOISE IT TO MUCH, AND SUCH..........

ANYWAYS, THAT IS THE STORY I THINK I GOT IT ALL ANYWAYS, OF MY LIFE THE LAST FEW MONTHS,

PLEASE KEEP IN TOUCH AND LET ME KNOW IF YOU GUYS HAVE ANY SUGGESTIONS,

I DO TAKE VITAMINS, AND VITAMIN D.... APPARTENTLY MY POTASSIUM LEVELS WERE LOW, BUT WAS ON IV FOR THAT FOR 2 DAYS, AND IT WAS OK NOW...

THANKS FOR LISTENING,
SORRY THIS IS SO LONG,

TAKE CARE EVERYONE,
CANDY

[janine01]

I'm glad this was brought up again. I have only been on this forum for several months since I was diagnosed with MS.
I was diagnosed with Crohns disease after a colonoscopy  in 2006. I do have diarrhea almost always. I am always bloated and gassy after most meals. No joint pain though.
I was diagnosed with MS this year. What I have read is they are both auto-immune diseases.
How ironic. I don't know if there is a link between bowel problem with all people with MS, but I did have my vitamin D checked for deficiency which is linked to both diseases and I was surprised to find mine to be very low.
I would never have known to check this if I had not been on this site. My doctor recommends 1,000 iu 2x a day. This was most interesting.
I think Quix is my hero for all the info and insight she gives. I bet she has some answers regarding this question.

[meg321]

Hi Candy,  thanks for the post, it is something people dont like to talk about, its a bit strange when you think about it.

I have been fighting constipation for as long as i can remember.   I understand your fear, i have never been in the hospital because I always did anything to stay out of that situation.  I took all kinds of laxitives and Drs. just didnt want to do anything about it, they would rather just not talk about it.

I have been having a problem lately too, but I think I got off track and its hard to get back to normal, or MY normal anyway.  All I use now are stool softeners, you just have to find what you need to keep you YOUR normal.

I was in worse shape before my MS diagnosis. Now its much better.  Try it and see if it helps and don't be shy about the amount of stool softeners you start with. Drs might not agree with this, but they have not said anything to me.  You can't live like this..fear is not a good thing !!

Let me know how this works for you.  Prunes help too and lots of fruit...

Shut up, meg

hugs

[RedFlame]

Hi Candy,  I am glad that you brought this topic up.  This group is never afraid to talk about anything!!

I have never been hospitalized for bowel problems.

I do have alot of problems with my bowels though.  My problem is chronic diarrhea.  There are days when I am totally wiped out in more ways than one.  It is debilitating and exhausting and feels like I am being emptied out of everything in my body including mucuos and fat.

I have no idea what constipation feels like.

Have you been screened for celiac or crohn disease?


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