Multiple Sclerosis Community
changng meds t o tysbri or gylina
About This Community:

Our Patient-to-Patient MS Forum is where you can communicate with other people who share your interest in Multiple Sclerosis. This forum is not monitored by medical professionals.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

changng meds t o tysbri or gylina

Sorry i have not ipdated ot posted much or answer much this year..prob only third time on here in like  4 yreas.... the

specialists no lnger thinks avenox is working for me for, the consistant flare up every other week and good for a cpl

weeks than back to a relapse.

Tysabri or gylinie is anyone on? i got brochures and bother scare the hell out of me for the od to me are not good

at all but the odd of staying on avenox is just going to cripple.

An experience with either as my packets said only 2,500 on the pill and like 4 deaths and 1 out of 100 went

blind... on the infusuion 52,000 and 2 deaths... has anyone xperinced either of these meds and if so how did u do

on them and how long have u been? both said they been out for 2 years..... any knowledge of ur experience would

be great!!!!! Oh and if no one knew Avenox was the top but noe 37percent afect and the pill is 50 percent and if u

want to go right for the bug guns ( as my neuro said lol) the infudson (tysabri is 87 effective.. kk thanks

them and ur experience and side effects?  thank,  love alway Erin  hope you all hav e a fun easter!
4 Comments Post a Comment
Blank
Avatar_f_tn
I've been on Tysabri for 14 months and am very happy, the big risk is always there  true, but neuro keeps a close eye and Tysabri gives you a caseworker, I can call anytime I need help, reassurance, have a question, they are great.

I had a chance to go with gly... But didn't like the cardiac data.  We have people on here who have been on Ty for over 4 yrs
Blank
984138_tn?1359816673
thank you sarah for your experiencing, and yes my main concern is the fatal brain infection with tysabri and was thinking if i have to change might as well go with the best effective.. before i wrote deaths out of 52,000 ... meant 52 so same as the pill 1out 1000.  I am getting my blood done monday and will be picking on the 26th which one... im scared but im pretty sure tysabri is what i am going to go with. had ms from 22 to 26.. also scared that if this dont work than what? you know? there aint nothing else out there so that also scares me

thank you for ur quick reply!
Blank
Avatar_f_tn
Call Tysabri, and talk with them they will talk to you even tho you are not a pt yet.  They can explain how you rule out how vulnerable you are much better than I can
Blank
1396846_tn?1332463110
I was on Gilenya for a while, the side effects were too much for me, dr took me off. I am no on Avonex. Going on 6 months (I think) and it is going well for me.

I hope you find something that works for you.

I am right there with you about not updating or posting much anymore, life gets busy and we learn to accept what we had so many questions about before, but I still pop in from time to time.

Take care,
Paula
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Multiple Sclerosis Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
Avatar_f_tn
Blank
SarahL2491
Alagash, ME
1831849_tn?1383231992
Blank
kwarendorf
Great Neck, NY
667078_tn?1316004535
Blank
HVAC
Durham, NC
987762_tn?1331031553
Blank
supermum_ms
Australia
572651_tn?1333939396
Blank
Lulu54
Dayton, OH
147426_tn?1317269232
Blank
Quixotic1
Washougal, WA