For 8 years every 6 months or so after a cold usually I get extreme fatigue that knocks me flat for a week. I've also had numbness and tingling in my hands, last year I lost my perifrial(sp) vision in my left eye for a couple of hours. I've tested poss. for Epstein bar 4x in the passed 5 yrs. I have always had a low white cell count and have had pneumonia 4 times.Recently for the passed 3 months when I take a hot shower or just do dishes my pinky,ring,and middle fingers on my left hand go numb. I have aching in my inner thigh and my face feels warm and itchy.Last week my wbc was 2.and I tested poss. for ebv, the rest of my blood work was normal. My thyroid is good and I'm neg. for lyme.I have catacts in both eyes and have floaters that come and go(yellow spots). My eyes hurt and give me headaches. The inside of my left hand itches but insn't dry and has no spots. I get dizzy sometimes and feel like I'm in a constant state of brain fog.THe inside of my ears feel itchy,and full of pressure,but theres no infection or even wax build-up. When I'm laying in bed my legs are often numb no matter how I lay and twitch alot When I role over the room spins for a few minutes almost every time. I don't know if this sounds like anything some one else might relate to, or if I'm nuts. I had an MRI on wed. and I'm waiting for the results. Does anyone think this sounds like MS?
this is really a hard question to answer... probably why you haven't had much people responding yet?? We really can't say if we think it sounds like MS...cause it could be so many things...as you probably know already..there are so many mimics to MS.. and yes some of your symptoms could be MS... but it's really difficult to say.
I hope you find answers soon and let us know what your results of the MRI are OK...did you ask for copies of the CD MRI and Radiologist report?? If not, you should request a copy for your record...I always get copies of my blood tests as well.
Thank you for responding. I understand exactly what you mean. So thank you for saying so. I will definately keep you posted. And thanks for mentioning the reports I didn't know you could request them.
I'm sorry you have so much going on in the way of symptoms. Since we aren't doctors we can't diagnose you here on the internet as Wobbly said. What we can do is offer suggestions and support.
There are a lot of mimics to MS including Lyme which you say you test negative to. What other blood work was done other than the Epstein Barr? Were there any tests for Vitamin B levels, autoimmune diseases such as Lupus or any others?
You said the MRI was normal. Do you know if it was done with MS protocol? This technique in an MRI takes views of smaller slices of the brain since some lesions are very small and would be missed by a regular MRI. Did you have a cervical or thoracic (spine) MRI as well?
My advice is to sit down and make a timeline. Below is the link on how to make a timeline from our Health Pages:
Ask your PCP about seeing a neurologist. Take your timeline with you and show him all your symptoms.
Don't tell your doctors you have been on the internet looking up MS, etc. As a rule docs do not like it when you do this and may not take you seriously. As for your current PCP, if he doesn't seem to know what to do maybe it's time to seek another opinion and change PCPs.
BTW, Low white counts are not considered a symptom of MS but some of your other symptoms may be. But, this is for a doctor to decide.
If you go to the upper right hand side of this page you will find a wealth of information in our Health Pages next to the yellow icon.
Good luck and keep us informed,
One more tip. When posting on this forum you need to know that some of us have vision problems and when you post everything in one long paragraph it is too difficult to read so some have to pass your post by because they cannot read it. Post in smaller separate paragraphs like I have done.
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