dmd

[marymoto]

ok who is on disease modifying drugs and are they helping which type are you on?how long have you been on it and are they reducing your relapses?

[Mike_Shuswap]

I've been prescribed Rebif but haven't received it yet and haven't heard from the health nurse yet for injection training.

Mike

[QTPieRN433]

Hello..have been on Rebif for about 9 weeks so it is  too soon to say about relapses but I havent had any so far. Had some very mild flu symptoms when I started the 44mcg dose but that resolved quickly. Lots of painless red spots..and some stinging with injection. doesent feel "routine" to me yet but hoping I will get there

[Growing2Boys]

I just started Copaxone, so too early to tell for me. I have over 20 lesions on MRI & have symtoms for about 5 years, but newly diagnosed.
I am currently having a relapse- I have had 3 since this year began (so every month) I may have progressive MS. We are not sure. I get an MRI in 6 months to compare. I will post an update then.
Apparently Copaxone isn't the best med for progressive MS, but I have 2 small children & I work 14 hour shifts. I can't handle the side effects of the other drugs available. If Copaxone doesn't work I'm not sure if I will try another or what I will do.

Sarah

[sllowe]

Mary - check out this list - hope it helps.

http://www.medhelp.org/posts/Multiple-Sclerosis/DMD-Users-Past--Present---Copaxone--Rebif--Avonex--Betaseron--Tysabri--other/show/1193746

  Considering how I was a few yrs back, I say yes, they are working for me. And, I thing they are warding off large attacks.

-shell

[Ufrustrated2]

i'm on copaxone for about 2 months now.

cannot say it has done anything, too early too tell.

i have had one 10day episode/relapse and few smaller flares since. (note: small flares/episodes are a norm for me. that is, what is rare is for me to feel really great, & energetic)

the injections are easy, some small rashes and raised spots which either isn't an deal for me.  isn't a burden at all, glad i have the op to try it out.

take care

[rendean]

I'm have been on copaxone for one year now. I can't honestly say if it has stopped any relapses since I have had several since I was officially diagnosed. That being said , I've had symptoms dating 20 years prior,in hindsight, and it wasn't until the symptoms flared that I was even diagnosed.

As for the drug, I have no issues with it. Easy to use no side effects. MRI has stayed stable.

Ren

[marymoto]

hi lulu i am not on anything yet i am newly diagnosed i had my first seriuos outburst of ms in 2006.before that i had vertigo three bouts of it and times where i felt wobbly with the vertigo. then nothing since 2006. except a couple bouts of vertigo. thenin 2009 major relapse and again in 2010. so i am hoping the neuro will get on with things.it is good to hear a positive that the betaseron is helping. this keeps me positive as well that i may get on treatment soon.

[Lulu54]

I'm on copaxone.  I have been on it since I was dx'd in Sept. 08.  I have had no serious relapses since I've  been on it and my recent MRI showed no increase in lesions or deterioration in existing ones.  in fact, some of my minor lesions appear to have improved.

Like Many, the injection routine becomes second nature.  We just do it, knowing it is our best defense right now until something better comes along.


how about you?
Lulu

[Mand125]

Hi there

I am on Betaseron and have been for about 20 months now. I have had one (pretty bad) relapse in that time. I had lots of small relapses in the year or so leading up to going on the drug.

I was diagnosed in 1994 with "mild"!! MS. It started to get bad in 2007.

As to whether the drug is helping - I can only guess, who knows how many relapses I may have had if I wasn't on it.

It has become almost routine to do my shots every second day. I do not have any side-effects, just raised areas where I have injected sometimes.

Mand