Aa
does any one need help or someone to talk to?
My father use to have MS, it would be so nice to talk to someone, im very knolegable with this topic and my father actuly inspired me to be an RN for the home Hopsice Program. Hope all is going well with everyone xoxo
miss mary
miss mary
hi everyone. just got back from mammoth! just wanted to see how ya'll are doing, and how everyones weekend was =)
Hi Everybody!!! I just wanted to say hello, and see how ya'll are doing. had anyone talked to their DR.S recently about the LDN? and CAROL how is it working out for you? was the first night a tough one? let me know!
i acctually leave thursday at 5 am for Mammoth Lakes for a memoral for my Father, im excited and dreading it at the same time =) my whole fathers side of the family is going as well! ill let you all know how it whent when i get back.
Love & Prayers,
Miss Mary
i acctually leave thursday at 5 am for Mammoth Lakes for a memoral for my Father, im excited and dreading it at the same time =) my whole fathers side of the family is going as well! ill let you all know how it whent when i get back.
Love & Prayers,
Miss Mary
In Breif: over the past few years, growing experience with the clinical use of LDN demonstrates its consistency in preventing further attacks in people with MS. In addition, a majority of such patients note reductions in spasticity and fatigue. i also belive it is a controled substence the drs dont give out easily. but keep pushing it! =) Love & prayers
-Miss Mary
-Miss Mary
I was wondering if anyone knows of some type of med, to help give you orgasms, even if once in awhile? Does anyone know? Is anyone currently taking anything that helps? I am concered I'll never be able to have them anymore. Being newly diagnosed, am curious. Know I mention something similar before. Just curious as to you all and if you've had similar prob or if just numbness!
This is probably a stupid question, but what is LDN? Is it a regular drug? A supplement? What does it do? Where is a good place to find info on it? I only have net til end of July. Thanks for all your help.
Karina
Karina
hi there! we to be honest, yes my father had extrodany un-controlable pain. but he also have primary progressive MS. as i said before i would deff. try LDN. you have to keep bugging them, its not something they are just going to offer you, any questions feel free to ask, -Mary
YAY carol! That is exactally what i was talking about. LDN is suppost to do wonders and i HIGHLY belive in it, some tips: log your journey, each nich will be different so keep a journal ype thing! the 1st night so or was kinda intence foe my father, so just a heads up. let me know how it goes!! be patient and give it time good luck carol! love & prayers
-Mary
-Mary
How wonderful! Welcome! I just wasn't so sure what you needed/ meant at first. I'm sorry. It's usually the other way around here. We're glad to have you! We're happy to support anyone in this forum, and now we're happy to have you, too.
Look around to get to know everyone! I'm really busy getting ready for a party for my son's graduation this week, but I'll be back soon! It's a very friendly community. You'll get to know everyone well and quickly. Thank you for jumping in!
Chris*
Look around to get to know everyone! I'm really busy getting ready for a party for my son's graduation this week, but I'll be back soon! It's a very friendly community. You'll get to know everyone well and quickly. Thank you for jumping in!
Chris*
That is strange that you mentioned this because my doctor called this morning and wants to start me on low dose naltrexone. I'm assuming that's what you are talking about right?
I start it tomorrow. Wish me luck.
Carol
I start it tomorrow. Wish me luck.
Carol
Welcome to our forum , its always great to get imput and knowledge from all.
I was Dx'd in Dec.2006 or should I say reDX'd actually Dx'd in 1998 after a tramatic back surgery and disregarded the original diagnosis.
I have relapsing/remitting here lately more relapses then remittence.but there many contributing factors also.STRESS(oh I hate that word) summer heat has been imbearable.Plus the location of my lesions.
I have done my research on LDN and my neuro won't budge but I keep after him .I think he's starting to budge a little.he always says lets wait and see what the Rebif does.
Once again welcome off to PT.
I was Dx'd in Dec.2006 or should I say reDX'd actually Dx'd in 1998 after a tramatic back surgery and disregarded the original diagnosis.
I have relapsing/remitting here lately more relapses then remittence.but there many contributing factors also.STRESS(oh I hate that word) summer heat has been imbearable.Plus the location of my lesions.
I have done my research on LDN and my neuro won't budge but I keep after him .I think he's starting to budge a little.he always says lets wait and see what the Rebif does.
Once again welcome off to PT.
I was diagnosed with MS in May. Just 12 days before my birthday. Not a great present. I'm 33 y old female and have been having pains in my left thigh for about 2-3 weeks or so. I am having trouble working. I gave a note to my boss yesterday, to let her know I'm trying to get into drs sooner. That my left thigh REALLY hurts. So might be on disabbility sooner. She's known my diagnosis, when I found out. She has not been supportive and doesn't know much at all about MS.
Anyways I work in the laundry at a nursing home 4-10hr days. I just told her, because she has complained in the past about not having enough notice, for filling for my dr apts. So now the head nurse says I have to get a release from a dr to say I can go back to work. That REALLY made me mad that she went to him. I was letting HER know, not everyone.
I guess my question for you is, is bad pain in thigh normal with MS? I had my left arm and thigh x-rayed and they found a clear spot in my arm bone. So now I have to go and have a body bone scan, to rule out cancer or something else. I am REALLy scared and am not sure if I should of told her. I don't understand why she took it to the head nurse. I can still work, though I'm not as fast. I walk with a limp sometimes due to the pain. I have tried creams, tylenol, advil, and nothing helps. Ice packs numb it for awhile, but then it's back.
My Neuro wants me to move, but I can't afford to. So my sister told me last night, that she'd lend me the money. She is my best friend and was there when the dr told me MS. God sure blessed me with her. Sorry this is so long. Any advice would be helpful.
Frustrated, Karina
Anyways I work in the laundry at a nursing home 4-10hr days. I just told her, because she has complained in the past about not having enough notice, for filling for my dr apts. So now the head nurse says I have to get a release from a dr to say I can go back to work. That REALLY made me mad that she went to him. I was letting HER know, not everyone.
I guess my question for you is, is bad pain in thigh normal with MS? I had my left arm and thigh x-rayed and they found a clear spot in my arm bone. So now I have to go and have a body bone scan, to rule out cancer or something else. I am REALLy scared and am not sure if I should of told her. I don't understand why she took it to the head nurse. I can still work, though I'm not as fast. I walk with a limp sometimes due to the pain. I have tried creams, tylenol, advil, and nothing helps. Ice packs numb it for awhile, but then it's back.
My Neuro wants me to move, but I can't afford to. So my sister told me last night, that she'd lend me the money. She is my best friend and was there when the dr told me MS. God sure blessed me with her. Sorry this is so long. Any advice would be helpful.
Frustrated, Karina
carol, i am so sorry about your resent diasnosis, what type do you have? I guessing RELAPSIVE REMITTING?!?
my father had primary(cronic) prgressive, unfourtunatly there isnt to much know about this type and there wernt to many effective meds. he basically toughed it out, till his end of life experiance the pain was to bad soall the could do was give him INTENCE pain killers, and sleep aids. BUTTTTT he did find somthing that WORKED!!!! even though he was to far along with the MS he didnt no wish to continue any treament, what it does is stop it in its tracks!!! it doesnt cure it but it does stop it right where its at see my father didnt want to continue it, because he was completly parilized and di not with to stay that way.
so its basically a great idea for some one is newly diahnosed, its called LDN, and they dont hand it out eaisly, you really have to fight to get it and know who to talk to, do your reseach on it, my family and i truley belive this could REALLY help!!! if you have a "myspace" i could put you in contact with a wonderful woman who has MS and has been on LDN for YEARS and is doing FABULOUS =) best wishes and prayers
-Mary
my father had primary(cronic) prgressive, unfourtunatly there isnt to much know about this type and there wernt to many effective meds. he basically toughed it out, till his end of life experiance the pain was to bad soall the could do was give him INTENCE pain killers, and sleep aids. BUTTTTT he did find somthing that WORKED!!!! even though he was to far along with the MS he didnt no wish to continue any treament, what it does is stop it in its tracks!!! it doesnt cure it but it does stop it right where its at see my father didnt want to continue it, because he was completly parilized and di not with to stay that way.
so its basically a great idea for some one is newly diahnosed, its called LDN, and they dont hand it out eaisly, you really have to fight to get it and know who to talk to, do your reseach on it, my family and i truley belive this could REALLY help!!! if you have a "myspace" i could put you in contact with a wonderful woman who has MS and has been on LDN for YEARS and is doing FABULOUS =) best wishes and prayers
-Mary
hi there!! yes i am offering my help to people, i like to do traveling work (volenteering) before i get my nurses degree, im not personally going through treatment no, but, was one of my father main care givers for aboue 8 years =) and im not sure honoring him would be the right word for this ( though i do very much) but he was such a positive figure in my life and has insired me to some how make a difference with this damn MS.
hi pat that you so much! i hpe all is doing well with you!! how long have you had MS and why type??
I was just recently diagnosed with MS and it scares me to death. I have'nt started treatment for it yet but I am supposed to in the next couple of weeks.
What type of MS did your father have? What meds did he take? I have'nt had any flare ups or other symptoms arrise in a while but I have such severe nerve damage that I'm in a wheelchair from it. I also live in terrible and constant pain which I take several different meds for. Did your father have the chronic pain and did it get better after he started treatment?
I'm glad that you have joined us and I hope you feel welcome.
Carol
What type of MS did your father have? What meds did he take? I have'nt had any flare ups or other symptoms arrise in a while but I have such severe nerve damage that I'm in a wheelchair from it. I also live in terrible and constant pain which I take several different meds for. Did your father have the chronic pain and did it get better after he started treatment?
I'm glad that you have joined us and I hope you feel welcome.
Carol
Hi Mary,
Welcome to the forum and thank you for offering to help us out here. I'm new to this forum and am currently un-Dx'd. I've posted all of my Sx and tests down in the "Newbie and Still Seeking a Dx" thread down below.
Glad to have you here. This seems like such a warm, supportive board and look forward to hearing more from you!
Take care, Pat
Welcome to the forum and thank you for offering to help us out here. I'm new to this forum and am currently un-Dx'd. I've posted all of my Sx and tests down in the "Newbie and Still Seeking a Dx" thread down below.
Glad to have you here. This seems like such a warm, supportive board and look forward to hearing more from you!
Take care, Pat
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