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I talked with one of the MS trained nurses for the MS specialist I started seeing last fall. I covered all the symptoms with her from amnesiaMemory loss, memoryMemory loss Mental status tests difficulties, tiredness, brain fog, to jerking/flailing limbs. She says this sounds like I am having seizures. When I looked up MS and seizures and compared it to my symptoms it was a match.
there are so many different types of seizures - do you have a particular type of one that appears to fit your symptoms? What would the nurse base this suggestion on since these also match MS symptoms, without seizures?
My neurologist thought that my jerking back muscles were a result of myoclonus in the spine. I also have it in my left leg and neck, although not to the extent you experience.
Hi, I'm glad to see someone else is thinking the same way. I hope an EEG is in your future soon. What did the nurse suggest as far as seeing the doc or being worked up?
Hi all,
I have to share this - shortly after I had posted this response this morning a student rushed into our office and told us to call 911 because a student had gone down in the hall. While my office partner dialed, I went out to assess the situation and found a young man on the floor, convulsing from a seizure. I think because we had just discussed this topic it was current in my brain and I immediately recognized what was going on with him. I was able to sit with him on the floor and wait out the seizure with him and then keep him calm and focused after it passed until the paramedics arrived.
Until this past year, I had minimal knowledge about seizures, their symptoms, and what to do.... now I have two dear heart sisters who regularly have seizures and a great-niece who has developed night seizures. I also have a grandDOG who has seizures.
Seizures are a supposedly common problem with MS patients, I would strongly recommend that we all educate ourselves a bit more about this neurological problem. Seizures come in so many varieties it can be confusing.
Incidentally, he is a local commuter student and I was able to call his mother and she met him and the ambulance at the hospital. I checked in before leaving work tonight and he was home and resting. And yes, they were waking him every 30 minutes or so because he took a rather nasty blow to his head as well
Please take a few minutes to familiarize yourself with seizures and what you should do in the event of one - knowledge does make it much less frightening.
Interested in knowing more,
Lulu
My neurologist thought that my jerking back muscles were a result of myoclonus in the spine. I also have it in my left leg and neck, although not to the extent you experience.
Quix
I have to share this - shortly after I had posted this response this morning a student rushed into our office and told us to call 911 because a student had gone down in the hall. While my office partner dialed, I went out to assess the situation and found a young man on the floor, convulsing from a seizure. I think because we had just discussed this topic it was current in my brain and I immediately recognized what was going on with him. I was able to sit with him on the floor and wait out the seizure with him and then keep him calm and focused after it passed until the paramedics arrived.
Until this past year, I had minimal knowledge about seizures, their symptoms, and what to do.... now I have two dear heart sisters who regularly have seizures and a great-niece who has developed night seizures. I also have a grandDOG who has seizures.
Seizures are a supposedly common problem with MS patients, I would strongly recommend that we all educate ourselves a bit more about this neurological problem. Seizures come in so many varieties it can be confusing.
Incidentally, he is a local commuter student and I was able to call his mother and she met him and the ambulance at the hospital. I checked in before leaving work tonight and he was home and resting. And yes, they were waking him every 30 minutes or so because he took a rather nasty blow to his head as well
Please take a few minutes to familiarize yourself with seizures and what you should do in the event of one - knowledge does make it much less frightening.
as always,
Laura