Grrr this fatigue,tiredness, etc is just terrible. How do others cope? and is there any medication for this symptom? It really is horrible, and seems to be getting worse. It also seems to bring on burning prickles all over the skin sensation. Any advice would be much appreciated. Should I see my doctor to see if he can give me anything?
I am sure people must think, snap out of it. But you just can't, as you all know.
Do any of you have times when it seems to be triggered off/made worse by anything? driving makes mine worse.
I have terrible fatigue and with the heat it's been much worse. I normally do acupuncture to help with energy. It helps a lot and it also helps with the prickling sensations. My neuro gave me amantadine to help on bad days and that helped for quite a while, but recently stopped. I have nuvigil now and that really helps. I don't take it every day just when it's severe. I find that not eating gluten helps a lot! Cooling my body temperature also seems to help.
Best wishes and I'm really looking forward to other answers you get!
I haven't entirely figured this one out either... I have mostly been relying on caffeine. However, in the last couple of days I have been reading about taking 4-6 grams of acetyl L-carnitine. I recommend looking it up. There is info about it on the internet. I will be picking some up on the way home from my IVSM infusion today. (Hopefully.)
I'm interested to see what others have to say about this problem though. There are lots of people here with more experience/education on the subject though.
I have this problem also. The doctor also gave me amantadine. Some recommend COQ10, but can't say I tell much of a difference. I do drink some coffee but the one think I find really helpful is a cold shower, an ice pack around the neck or back - sometimes just on top of my head, or an ice vest. This seems to help me feel better and a little bit perkier.
I'm sure there will be many others that have suggestions for this stumbling block.
I could not do the medications they made me too jittery. I find for me exercise really helps. It was very hard at first. Now I walk every day I can or do therapeutic riding. Some days with my cancer I am very weak but I just start walking and amaze myself. I also take caffine, generic nodoze pills at times. I can't drink coffee because of my stomach. A good diet also helps my energy. I use an ice vest in warm weather to walk.
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