finally found my blood work ..Quix

[cherby]

Happy holiday's to you all !

Well I go my medical recordslike most suggested and foun the blood work info.
now I'm not sure what to look for ...lol

After being sick with another resp infection or hell could be pneumonia (sp) again (had itin nov) for a week my family s ready to toss me out the door.

It seems as if noone understands me and my mood swings. Im scared, confused and angry because the all just think I'm crazy. They feel with no DX I just must be crazy.. go figure........... i was told "it's not like they gave you 2 days to live!!!!!!!!

I feel sooooo ALONE!!! except when I come here! damn I cant stay here all day long...LOL

So any info is greatly appreciated and i've left post of my mri results.. fel free to explore.

Thanks For letting me vent
Cherby... Cheryl

[cherby]

Hi there! thanks for your kindness and most of all understanding. My husband has gone to the 2 neuro visits and at the 3nd one he said to the doc "i would have those lesions on my brain to , right " the doc said uhhh not necessarly!
He still doesn't get the importance of this whole situation.
Im having mood swings so bad. i even have outburts of anger.
My kids in there 20's act the same as your son... mom is just a drama queen......
Thanks Zulma for the vote of confidence! Ive never met such a great group of people as i have in this forum!
Cheryl

[gooddays]

I hope your pneumonia clears soon.  It seems that we all have been in the same path.  I have been dealing with MS for the past 14 years, but looking back, I think I have had it since I was a teenager.  Like you guys, I had doctors, family members and friends saying that I was just craving for attention.  They said that my best bet would be to see a shrink.

I was finally diagnosed in 2003 and have been in Avonex for the past three years.  I know what it feels to loose one of your children.  I have a 25 year old son, who lives with me, but to him I do not have MS, no way Jose.  To him, it is impossible that his mom has a degenerative disease that she may end end up bed ridden or in a wheelchair.  the way he sees it, it is not happening.

I think that you have read my story, I am the one who has to wear an eye patch for at least 18 hours a day for a period of 6 months to a year.  I was just fitted for leg braces for both legs, which my doctor indicated that the braces and my cane would be my lifetime companions.

Your doctor in on the right track and make sure to some of your friends and family members go with you to his appointments so that they can hear it from the horses mouth instead of yours.

take good care of yourself and count on me as a friend,

Zulma

[Heather3418]

It sounds like your doctor is on the ball.  He is ordering the proper tests and I would feel very comfortable with his approach to all of this.  I have a feeling, if anyone is going to find answers, he will be the doc to do it.

We are with you kiddo.  Now lay down and rest.  You need to regain your strength.  I hope that you will get your pneumonia vaccine after you are well.  It doesn't protect against all the different strains, but the most common strains.  I understand they are effective for many years.  I've had one myself....

Be well and feel better,
Heather

[cherby]

Glad to hear SOMEBODY CARES... Im sitting her in my room w a fever and chills and since arriving home well... need i say anymore??? This is in my head also. But hey I brought the x-rays home and showed what it looks like to have pnuemonia... lol
ok verbatim this is my mri results...
NUMEROUS NONSPECIFIC FOCI OF HIGH T2 SIGNAL WITHIN THE WHITE MATTER OF BOTH CEREBREAL HEMISPHERES.

He is making me do a sleep study and spinal mri and llumbar pun.. all to be skd soon.
This has been a nightmare since may 2007. that is when i broke my wrist 2 times and the ortho sent me to the neuro who did the mri due to falling, numbness, tingling, then shaking on one side, memory loss. etc..... it goes on and on Heath.
Thanks for being so kind.
Cheryl

[Heather3418]

Oh honey...no!  Pneumonia AGAIN?  Oh Cher, I am so sorry to hear about this.  

Now to your MRI...This is SO typical of WHERE MS lesions are seen.  Oh honey....Now you have me worried.  Please let me know what YOUR feelings are about this and what is your doctor saying about where these lesions are lcoated?

Anxious to hear from you....

Heather

[cherby]

WOW!!!!! what a comfort you girls are! So looks like im addicted... to here...lol
Just got back fr the doc and have pnuemonia AGAIN!!! OMG if it aint one thing its another!
My MRI came back with numerous lesions in both hemispheres and sub cortal blah blah blah......  but hey like you said Heather..."IT's ALL IN OUR HEADS'..
Literally   lol lol lol
Thanks so much for lending an ear and understanding me!!!!!!!
Cheryl

[Heather3418]

I was diagnosed 12 years the FIRST time and re-diagnosed again, 10 years ago.

[Wobbly]

I know where you are both coming from... I too have not being Dx, and my family and some friends say I'm a Drama Queen!!!!... not impressed, my twin sister came up with that one.  My other sisters won't even talk to me.  

My Mom says start walking and get into shape.  It has been so frustrating, but after awhile I just ignored them, I do have a loving understanding husband Don, who I don't know what I would do without.  One Dr told me as well, when I said my shoulders were really sore, he said untighten you bra strap....I didn't appreciate that either.

Heather when were you Dx, how long ago...

Cheryl, I know how you feel about being lonely, it's been a very difficult season for me... my hubby and I were expecting to have my older daughter visit from Edmonton and stay with us for a few days, we haven't seen her and a couple of years.  She decided to stay somewhere else and only visited us on Christmas morning for an hour or so.. she didn't want to speak to me about how I was.  I feel like I've lost my daughter as well.

But we must keep going, even though it might be difficult.  I'm telling myself to take care of myself even more and to deal with what I must do.... We are all here for each other and I don't know what I would do without these people.  I don't remember how I dealt with it before I found this forum?  

Take care and we will talk again soon.

Andrea  

[Heather3418]

If it's of any comfort to you...I had family, friends and a Neuro tell me that all of it was in my head.  Some of my friends told me that I was being melodramatic and just wanted attention.  I had one NURSE tell me that the reason I had right torso numbness was because my "bra was too tight."  My family was fed up with me complaining about the terrible pain I was in, thinking that I just wanted to get out of housework.

Then my first MRI was done.  Guess what?  Is WAS all in my head.  I had 5 lesions in the brain and one in the spinal cord.  My first Neuro diagnosed MS right away.  When I left his care because he didn't have time for me, my second Neuro said that "the lesions were a "flow-void" in my spine and the lesions in my brain were not consistent with MS. They were from migraines"  I put up with his c r a p for two years, before heading to a teaching hospital, where my MS diagnosis was confirmed.  Today I now have 12 lesions in my brain, with the spinal MRI to be done next week.

My friend and even some family members, were standing in line to apologize for all the bad things they said about me.  Needless to say, some of those "friends" are no longer friends of mine.  When I needed support the most, they were the ones that made the most fun of my pain.

Oh for that nurse...my right torso numbness WAS caused by a lesion on the right hand side of my spine at the level of my bra.  So much for my bra being too tight....  I think the rubber band in HER HAIR was too tight....

It hurts to be ridiculed.  It hurts to be doubted.  But I knew that something was wrong with my body and I kept in the "fight" until I had answers.

I pray you will also find peace in some answers.  You are NOT alone!

Heather