Hi, I wanted to add that I did have a little dizziness but that went away fairly quickly.
Take care and Good luck.
Wildcat
Hello.
I also had a little bit of a problem with Fatigue as well when I went on Gilenya. The dr. did recommend that if fatigued I should switch to early evening but do it over a couple days (though most people on the gilenya facebook didn't they just switched to evening and it helped without problems.) This may help you sleep like a rock lol. (Also it seems to take a few days to a week after the switch for the fatigue to lesson.)
I have no problems with heart rate either. My hair was falling out a little bit before I started but after about a month it is starting to fall out more rapidly (not in patches but thinning). One of the suggestions is to use Nioxin, which I will be trying to see if it helps. Alopecia (thinning hair/loss) can be a side effect of Gilenya.
Other than that I have been feeling good.
Good luck.
wildcat
I am not on Gilenya yet, just getting ready to start. But wanted to say that I hope the fatigue improves. Please keep us posted :-)
April
Hi jifr, I'm sorry but I don't remember if you were on another dmd and it wasn't working, or if you just started out on Gilenya.
We have only a few Gilenya users here so far, but I expect that number will grow. I have no personal experience with this that I can share. I hope your fatigue lessens and you begin to feel better.
Lulu
I am glad you did not have a drop in heart rate. I have never been on Gilenya so I do not know what to tell you. I guess you just have to play with it.
Alex