Well, I got over my extreme fear and went ahead with the Gilenya.
I did not experience any significant drop of heart rate.
I have been experiencing mind numbing bone crushing ridiculous fatigue. I've been taking the pill about 8:30 am. The fatigue doesn't hit me until mid morning. I go through a spell of dizziness/disorientation....I have some chest tightness/heaviness and then fatigue like you wouldn't believe! It seems to affect me all day and even into the night.
I'll consider switching it to night time but since the fatigue doesn't hit immediately but then seems to affect me all day - I'm not sure switching to night is going to alleviate the excessive fatigue I've been feeling.
This is day...3 so, I'll be keeping a close eye on it and keeping my fingers crossed that the fatigue doesn't keep me feeling like I'm paralyzed.
I also had a little bit of a problem with Fatigue as well when I went on Gilenya. The dr. did recommend that if fatigued I should switch to early evening but do it over a couple days (though most people on the gilenya facebook didn't they just switched to evening and it helped without problems.) This may help you sleep like a rock lol. (Also it seems to take a few days to a week after the switch for the fatigue to lesson.)
I have no problems with heart rate either. My hair was falling out a little bit before I started but after about a month it is starting to fall out more rapidly (not in patches but thinning). One of the suggestions is to use Nioxin, which I will be trying to see if it helps. Alopecia (thinning hair/loss) can be a side effect of Gilenya.
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