headaches and ms

I was wondering if thier is someone on this forum for ms who suffers from headaches. I have a lot of headaches, some of which are in my head,ear neck and arm. some are in the back of my head when i wake up.they are very hard to stop with pain medicine.hope to get an answer soon.
                                                                                        thanks roaseanna

[keddy1221]

Hi Roaseanna, I've not been dx'd w/MS, but I do suffer from MS-like symptoms.  My headaches began about a month ago and are not like headaches I've had in the past.  The pain is most often in the front of my head, right behind my forehead.  I've also been getting very sharp pains that last for very brief periods of time.  The pains are on both my left and right sides of my head.  I also get split-second shots of pain in both my ears.

This is the weirdest thing, and it's going to sound crazy, but my forehead tingles whenever I touch my upper lip. I asked my neuro about this and he gave me an extremely medical explanation of how the nerves in the face are connected to the brain, very hard for me to understand.  It's almost an electric sensation.  

Anyway, I do get headaches frequently, and I've never been a headache person.

Kelly

[Erin0313]

Hi! I have MS and used to suffer from daily headaches that were horrible. I tried probably 20 meds including pain pills (which I hate because they make be woozy). My headaches were the entire back of my head and neck and two things have worked.

One is a "pain pill" called butalbital (spelling?) I didn't love it but it helped the headaches and the side effects weren't as bad as other pain pills.

The real helper was found by accident. I started having muscle jerks& charlie horses that were quite painful and they put me on Baclofen for it. Within a couple of days I realized that my headaches were nowhere near as intense or constant.

Maybe you could ask your doctor if you could try the Baclofen. Mine was quite surprised and pleased that treating one thing helped something else.

Good luck :)
Erin

[goofysmom1]

I too have headaches - almost daily - mine sound very much like what Kelly describes as pain in the forehead.  I get the sharp, quick pains in my head too.

I am not diagnosed, but currently looking for answers.  Tylenol works some of the time for me, but that is all I have tried.  Have you tried Excedrin?  I have a co worker who gets cluster headaches & she says that Excedrin is the only thing that works for her.  I can't take Excedrin because of a sensitivity to caffeine.

Good luck & Hugs,
Chrisy

[diemyn]

Hi =]
I'm not diagnosed with MS, but I have a lot of MS like problems. For two years I've been getting really severe headaches. They aren't gone, but since I have cut out MSG, which is hard cuz it's in soooo many things under soooo many names they have improved a lot. I get them less often. They go from 0 to 100 less often. They don't last for days on end as often.

My headaches are deep stabbing pain behind either or both eyes, sharp tender pain at top, back, and sides near my ears, and tight jaw pain. I've been taking MSM and using MSM and aloe pain relieving gel which is helping when I have them, but again they don't go away cuz I use it.

What I'm trying to do myself is to just be in the pain. It's very hard to do and I'm having a really hard accepting such bad pain, but I know it does little good to resist that which I wish to release or change.

I hope you get some relief =]
Love and light to you, dear human