help

[travis1972]

are MS symptoms present all the time,i have balance issues for 3 weeks including numbess in hands arms and legs and vision,i understand most ms symptoms are not long lasting,could it be something else,going to see a neuro in 2 weeks

[Hepsibah]

I have some MS symptoms that do not ever go away. My neuro explained it this way - when you have a relapse and it isn't treated, after a while the damage is permanent and the symptoms do not let up. He said that is why it is so important to treat an exacerbation. Do I have some better days where the symptoms seem to be not as bad? Sure, but it doesn't last long.

[cheri_lee]

well ... i went to see my neuro today and she said that she cant figure me out and so shes sending me on the the U of M ...if they cant figure anything out its off to the MAYO clinic for me .. so i really hope you have better luck! :)

[travis1972]

god i hope we both get answers cause i have a ton of living left to do

[cheri_lee]

Oh yes I to have had a cardiologist check me .. even wore a heart monitor for for a week....everything fine there too!

[cheri_lee]

Well about a year ago it started by things looking differently...i described it as "out of sorts"...i could see fine it just didnt seem like reality. Then I got a couple spells of actual dizziness over a 2 week period. After that I just feel like I'm drunk all the time. I feel like i'm falling over even though I'm not. Its hard for me to go to shopping centers or anything like that because it makes me feel worse ( not to mention the bright light sensitivity) I get this strange feeling in my eyes that I really cant describe either, it's hard for me to look off at a distance. I'm an optician so I have seen the doctor numerous times and everything looks great with my eyes.I have had visual field testing, ENG, visual evoked potential, MRI of brain 2 times, CT scan of brain, MRI of back & neck (which showed a few protruding disks in back) but isnt bothering with my spinal cord signal and I'm pretty sure every blood test imaginable! I do about once every three months get this terrible burning pain down my neck into my arm and wrist for less than a day and then it completely goes away.(thought maybe pinched nerve) My fingers get tingly and fall asleep only in the middle of the night while im sleeping..as soon as i move them around it goes away but I have never had that before not sure if its related. Also I get alot of headaches and always have. EXTREME fatigue, which began probably 3 or 4 months before the rest of the symptoms. I almost think the doctors think I'm crazy because they cant figure me out when EVERYTHING comes back normal. I'm am very tired of this and all I want at this point is answers....its very hard to live like this. How did I go from a completely healthy and normal life to this overnight? It just doesnt make any sense :(  I hope we can get figured out soon....

[travis1972]

and i wish all of you out there with various health problems the best and i hope all of us can find answers and go on with our lives i have alot of living to do still like everyone of us ill never give up till the day i fall over dead and neither should you

[travis1972]

i have thought about lyme disease as culprit

[travis1972]

List of my symtoms
1.Eyes-blurryness,floaters for 4 months.went to a optomologist and he says my eyes are fine(my assumption its neorologcally associated)
2.Balance issues-been bed ridden for about 2 weeks.dizzyness when i stand,like a drunk felling.Tinnitus with no hearing loss.Been diagnosed with Vestibular neuritis 2 weeks ago by the ER.Not comfirmed by a ET.
My eyesight and tinnutus and occasional dizzyness started about 4 months ago
3.Tremors-one in my trunk that doesnt stop,feels like a accelrated heartbeat but my heartbeat is calm.Sometimes in my head and my jaw feels like its shaking,but only started when i got vestibular neuritis)
4.Sudden jerks especially when almost asleep,it happens more than once but only started when i  goit vestibular neuritis
5.Numbness and tingling-in my extremeties my feet have been numb for about 6 months on and off sometimes with sharp quick pains.
6.Extreme fatigue-started about 05 but i have been .diagnosed with Obstructive sleep apnea in 05.
7.Been taking Tums for years for what i thought was Gurd for severe acid reflex
8.I what i thought was a pinched nerve that when aggravated it starts between my shoulder blades and comes up through my shoulder and into my right elbow with numbness and pain
9.Cognitive-only in hand writing ,just isnt fleunt anymore
10.Heart palputation-heart beat will climb to 120 sometimes stgay there for a few minutes or hours,gradually comes back down-had every test on my heard including a heart monitor as well ultrasound,all normal
11.I have said to me and a few family members"i just dont feel right whats wrong with me"
12.Overall felling of blah.like you know how you used to feel but you just cant feel that way no more

[travis1972]

What are all your systoms

[cheri_lee]

I have had this 'off balanced' feeling for almost a year now, i know what your going through. I have had every test imaginable and everything is coming back normal. I have been seeing an MS specialist even though I havent been diagnosed with MS. The feeling never goes away (unless I'm sitting or laying down) It is difficult for me to work everyday & take care of my kids and take care of everyday things. Also my eyes are very light sensitive, I sometimes wear sun glasses indoors. So I am very curious to hear more about you and your symptoms because I too am looking for answers. Just wanted to let you know that I know what your going through.

[Lulu54]

it sounds like you are noodling this out on your own - this is what I think you are saying ....

diabetes=numbness and tingling

vision problems = balance issues

viral infections = tingling that can last up to a year.

anxiety = borrowing trouble.

Here's to getting answers from the neurologist!
Lulu

[travis1972]

i thank you so much,and i wish you all the best

[JaneK1975]

Travis: I am so sorry to hear that you are feeling so bad. I am new to MS and unfortunately have no idea whether what your going through is the MS, the diabetes, or something else altogether, but I wanted to let you know that I'm wishing you well. I'm glad you're getting into a doctor soon.

Best wishes,
J

[travis1972]

well the balance is really not bad its my eues that make me dizzy,i am a type 2 diabetic who didnt bother to take care of it for 10 years so the numbness can be attributed to that,numbness started 2 years ago after i got the hives

[travis1972]

yes constant do you think maybe some form of ataxia the doctors have diagnosed with with verstibular neuritis but the vision problems came 4 monbths before the VN,im just not sure whats going on,maybe something serious or life threatening or my anxiety level has just been driven up by having this balance disorder my mind is freakin my body out,im thinking lyme disease

[Lulu54]

Hi travis,  we are not doctors here and can't diagnose anyone but can just share our experiences.  By constant, are you saying 24/7 that these sensations never go away?  If so, that doesn't quite fit the MS symptom pattern I know.  

There are so many things that fit these symptoms - unfortunately if you google any of these symptoms you list, MS always comes up as a possibility. I am glad you don't have to wait long for the neurologist appointment and can begin testing for answers.  Be sure to feel like you can come back here at any time to ask questions about this process.

be well,
Lulu

[travis1972]

also a trunk tremor that i can feel when i go to sleep kinda like a whirrly feeling in my chest and head sometimes my hands throb