Every time I think I will back away from this forum, after all, I have it so much easier than the folks here......something else comes up. Please tell me, is this wacky? Am I nuts? This can't be a symptom of MS? (I am undiagnosed, all tests are normal.)
We are a huggy, snuggly type of family. A few days ago my kids gathered around me as I sat on the couch with my laptop. My son was squished in close due to the pillows and YIKES oh MAN, it was all I could do to not scream at him to get away from me. His very presence so close to me overwhelmed me immediately. It was ghastly and has never ever happened before. I just moved the pillows to give him more room, and then it was over. WHEW like you would not believe.
Tonight: dh and I watching tv, he and I are holding hands. He absentmindedly is twirling my wedding rings and after about two minutes of this, my heart is racing, it is HURTING my heart, I begged him to please STOP. It took a few minutes for the pain in my chest to stop.
These are actual physical pains. I felt exceedingly overwhelmed; it's hard to explain. It grieves me that it has happened when being close to my family. I am praying these will be the only and last incidents of this garbage. :-(
These are more than symptoms of MS. It sounds like heightened anxiety to me. Since I was a panic and anxiety sufferer for over 20 years, I can totally indentify with these feelings. I am serious here...I really do not think this is any symptom of MS.
You should contact your doctor and talk to him about it. I would be interested if he feels the same as I do. There is treatment for this Suzanne and I only wish you the best.
I HAVE TO AGREE WITH HEATHER ON THIS,YOU REALLY NEED TO CALL YOUR GP.
ANXIETY CAN CAUSE SOME BIZZARE SYMPTOMS,BUT BEING UNDIAGNOSED CAN CAUSE ANXIETY,SO ITS LIKE A CATCH 22.
YOU TALKED ABOUT YOU SON SNUGGLING UP WITH YOU AND IT HURTING,I GET A PAINFUL PARETHESIS IN MY RIGHT SIDE TORSAL,I HAVE SOMEDAYS THAT IT SENDS ME THROUGH THE ROOF WHEN MY SHIRT TOUCHS MY SKIN.FOR THAT MY NEURO HAS ME ON NEURONTIN.
SO I'M UNCLEAR IF THAT IS WHAT YOU MEANT WHEN YOUR SON SNUGGLED WITH YOU.
I TAKE A MILD ANXIETY MED,IT HELPS A GREAT DEAL,I TAKE AN OLDER ANXIETY MED,NONADDICTIVE AND I CAN TAKE IT ONLY WHEN NEED TO BE.
SUZANNE NO MATTER IF YOUR DX'D OR NOT ,NO MATTER HOW MINIMAL OR MAXIUM YOUR SYMPTOMS ARE YOU WILL ALWAYS BE PART OF THIS CYBER FAMILY.SOME HAVE A TRYING TIME NOW WITH SYMPTOMS AND OTHERS ARE BLESSED WITH REMISSION.
PLEASE DON'T STAY AWAY,YOUR SYMPTOMS AND EXPERIENCES ARE VALUED BY MANY HERE AND WE ALL CAN RELATE TO THE UNDIAGNOSED TIME PERIOD.
This can be a symnptom of fibro. I know it sounds crazy. But some fibro pts. are so sensitive to touch it's like being stabbed with knives. Also fibro can cause you to be sound or motion sensitive. I hate loud music, or any repetative noises drive me nuts. Makes me literally want to scream. So don't feel this is a new "formerly unknown" symptom of some new dread disease. I know it's hard to pull back, but I got to where I even hated for anyone to touch me it hurt so bad, and then it hurt not to be touched.... I hope you can find some relief from this pain, it is emotionally devastating.
Try using Wikipedia to look up 'allodynia.' This is a condition often caused by fibro, but other things can be factors too.
I'm quite sure I don't have one of these going on, and MS is plenty, but I've noticed that at times my skin is supersensitive for no reason I can fathom. One example of this is tags on the insides of clothes. Usually they don't bother me much, or not more than most people complain about them, but there are times when I absolutely stop what I'm doing, practically rip off the offending garment, and either find something else to wear or attack it with scissors, it's that bothersome.
Occasionally I get other irritations that temporarily drive me wild, and I too go nuts with loud repetitive noise (same tone pulsing and pulsing). Mostly though these things aren't a big deal for me, but it's interesting to know I'm not the only one.
Suzanne, if you continue to get such strong reactions from harmless or even pleasant stimuli, I think that's something you certainly should investigate. After all, knowledge is power.
I have Firbomyalgia in addition to MS and this does not sound like hypersensitivity. Now the loud noises that T describes and the touching of a shirt tag like Ess descrbes, are signs of hypersensitivy. But the "heart pain" from a husband twirling a ring, is not a Fibro symptom.
Please re-read how Suzanne desribes her discomfort and her reactions. Folks, I have suffered from anxiety and panic, this would have been the way I described the very same things to you,if I was Suzanne; when I have was having anxiety symptoms.
This is not meant to be an agruementative post. I am concerned for Suzanne, because so much is going on in her life. I think it's worth mentioning to her doctor. This needs to be sorted out by her doctor.
I need to add one thing...if this is anxiety, you are NOT NUTS. This has been experienced by more people than you realize. I occasionally go over to the Anxiety Forum and read some of the posts. I really think if you copied and pasted your post over there, you would hear the other's that post there, most probably will tell you the same thing.
Anxiety is a true disorder. If someone had called me nuts when I was going through it, they wouldn't have been a friend of mine anymore. Suzanne, I am genuienly worried about you. I hope you totally understand that. The pressure and stress you have been under can create all kinds of different reactions. I want to help and I want you to know that I understand. I would be doing you a huge disservice if I told you that i thought what you experienced what from Fibro.
Thank you one and all for the insights: you've all given me a lot to think about.
I've never thought about those two reactions being anxiety. But in thinking about it, I got rather confused. I have such a deep faith in God, try to do His Will and accept everything that comes as a matter of course. Would this mean my faith is in trouble? No, people with anxiety can and DO love God. So that means it is okay for me to be anxious.
But let me ask this: WHY? WHY would I feel anxious out of the blue?! This didn't happen after being dismissed by the neuro. It didn't happen during the vertigo, or the electric shocks or the facial numbness or the twitching leg. It happened while relaxing.
And I do have that as a streak in my personality! I get guilty feelings more often than most, am concerned more than most, etc.
But to have such a tangible FEELING like those two incidents is very very confusing. My dh, my love of my life, sitting next to me, holding hands after 20 years of marriage. What a guy~ and then EEKKKK..........the wacky feeling in my heart, like there was a nerve from the finger on up there to the chest and the nerve was really bothered by the ring twirling. That's just downright weird. ??
So that's why I connected or attempted to draw a parallel between that and MS, since MS is a nerve issue.
As for fibro, well, I'm not really well-read on the topic, but I do have some things that drive me batty. My dh says I am "sensitive", my son and daughters now use the phrase with reckless abandon, lol. :-) I am motion sensitive (dh zipping into the driveway while backing in, ughhhh; or the motion of the elevator, ughhhh).
Now the hard part: I am so afraid of mentioning this to my dr. (appt. w/pcp next Friday). I will have normal results on the MS testing, several complaints about the neuro, and oh, by the way, I am feeling anxious. Wahhhh. So then will I get to wear the dreaded red H on my chest, the Hypochondriac woman, with it written down in my files? This appt. is an important one, where I accept the idea that I am fine, or speak up and go to the MS neuro in the same place as the dismissive neuro.
I love the phrase knowledge is power, I've used it here myself. So I am off to read an anxiety forum, use Wikipedia, look up more on fibro, etc.
Big hugs to all of you, you give me such comfort. I am glad to be here.
Somewhere, I know I read that lesions in the area of the brain which deals with, or handles emotions, can cause odd emotions. Ones which don't fit the situation you are in. Fear, anger, tears for no apparent reason. No apparent cause. So, definately your doctor, for all the reasons mentionned above, should be told.
May I open my big trap one more time. I would talk about this with your Primary Care Physican, not the Neurologist. I am with you, that the Neruologist may chaulk this up to hypochondria. Neurologists are famous for blaming things on our "nerves." And I don't mean nerve damage from MS.
I hope you took no offense to my suggestion of anxiety related symptoms. Heck with all that you have been going through in limboland, I would be anxious too. Just to make you feel a little better, my doctor told me that people that have anxiety or panic are actually very intellectual people.
MS CAN make you hypersensitive to noises, too many people talking at one time, etc. and it is caused by the location of a lesion in a specific area of the brain. So it's not unheard of. It's the WAY you described your reaction, that made me feel that it was anxiety related.
If you can finally get some answer from your Neurologist about what is going on with your other symptoms, maybe the anxiety will resolve itself. This whole process of diagnosis is very stressful. I've been there. It's one of the worst places to be.
Hang in there sweetheart. I pray that things will get better for you and you WILL get the answers you seek from the Neruologist and your testing.
I have to agree with most of the others. It can be a symptom of MS as so many things are, but it sounds like an anxiety attack. I had one in my whole life and it sounds just like what you are describing. I told my doctor about it and that's what he said it was.
Heather: No, I wasn't offended in the least. I did want ideas as to what it was. You can "open your trap" any time you want, lol!
Question: you and Erica mentioned that a lesion in the brain can cause these type of reactions. But my brain mri (with and without contrast) came back as normal. ??
As for the neuro, he has dismissed me. The appt. is the handoff back to the pcp.
Neuro said I don't have MS, so he told me to go back to the pcp. My dh was there and said Okay, if she doesn't have MS, why all the symptoms, the twitching legs, etc? What could it be? And the neuro threw out his arms and said You wanted me to rule out MS, she doesn't have it, so she should go back to Dr. C (my pcp). And that was that. With a smile of course! (hmph, I am GLAD to leave the likes of him!) He didn't even offer to pursue other avenues!!!!!!!!!!
Carol, I saw your other post, know that you are on limited availability here; and yet you stopped by to offer me support. For that I say THANK YOU!
In mulling over the situation a bit more, I am wondering the two incidents could be chalked up to sensory overload? Is that a subcategory of anxiety? Sitting too close or ring-twirling for too long just taxed my system?
Hi to Suzanne,Carol,and Heather & as to who else might be here
Hey,I found all of comments helpful.I am a mess. A 43 yr.old female w/two young boys.OHHHH....frustrated @ everything,PAIN...mostly but, pain can for sure cause anxiety and depression.I finally got my comp. going so I am here now and hope I to can find some sort of relief on my own.The Neuro. I have , I truely believe he has messed me up. I have been suffering since Feb.'06. This is ridiculous.So many people going through this stuff.Now they say I have DDD, Spinal Stenosis,Myofascial pain,Cervicalgia,Fibro,and overall he**!! I have even been told 2 yrs. after the surgery that I didn't even need the surgery by two other docs. OHHHHHHHHHHH....in pain. It hurts me to write.My rt. arm muscle. I can't lift my arms to do anything. I am losing pressure in my grip. My rt. is only 5per.and left 20. I feel like I have a hard rock in my rt. shoulder muscle, guess it's time for my TENS unit to do it's thing. WOnderful invention.
Ok, I'm back.Well, I am going back to the Neuro that did my surgery. No one else will touch me.I just pray that I'm doing the right thing. I don't know what else to do but give them a piece of my mind tactfully if they try to rush me on out the door. I am not leaving this time until I get some sort of answer. Heck, this doc. knew I had and still have a T3-T4 compressed fractured vertebrea and hasn't even told me that I had it. I mean come on. At least be up front w/me and let me know what I have and what you are going to do @ it.Sorry if I seem a little pushy or strong, I am just so tired.I am beyond tired but I do have a friend that keeps me on going. THE LORD. I don't know what I would do w/out Him.I know He has kept me going. He knows I gotta lot to do.I am a singer. I worked at a theme park,Opryland USA.That was when I was in my prime, a whole 24.I sang in The show called Country Music USA, a show that did renditions of all the older great stars.I loved it and do miss it. I still sing and play or should I say played the guitar, my hand gives me a tough time but I am a singer first and thank God I can still do that. Both my boys are so talented.My youngest is a ham. I'll set my profile soon and have pics. and I will even include some of the shots I have from the Grand Ole Opry and all the people that I have worked with.A coulple would be Dean Sams from Lonestar and Chely Wright.Oh and the real mess Ken Mellons.We didn't get along to well, we clashed.It wasn't me...lol
Well, I've kept yall enough and enjoyed venting. I do have a post on Neuro. By the way, someone said to me the other day that I should get checked out for MS. They noticed the way I was carrying myself, my hands and how my legs hurt. My feet sometimes feel like risons and I can't even walk on them. I don't know. Maybe I will find out after the appt. on 4-13
p.s. on Neuro site I am under skeetelmore65
Hope all are well...GOD BLESS.........K
In no way does this mean your faith is in trouble. In no way does this mean you don't rely on God. Anxiety is also caused by medical conditions and has nothing to do with one's faith in God or the lack thereof. I think Anxiety brings one closer to God because we heavily depend on Him during these episodes. Anxiety happens when you least expect it and doesn't have to have a reason to rear its ugly head. I hate you are going through this. Best wishes and lots of prayers to you and all our members of this forum who are suffering!!!
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