i have been diagnose but not with ms

[summerluvr]

I was at the internal medicine clinic on thurs and they took a history and did an exam then went over blood work.they told me I have multiple myeloma
A rare blood cancer that normally older people get. They did bone marrow biopsie today and a ctscan to check for a blood clot in my heart.
I am typing this from my smartphone hooked up to heavy steroids. There is no cure and I would be lucky to make years. Please pray for me
My first symptoms were blurry eyes doctor today says I have swollen disks. This is a big shock to myself and family. Over two years I probably went to
20 doctors what finally let to the diagnose
Was the elevated proteins in blood they found in ER    

[rothexl]

so glad to learn you are getting the best treatment!! sending you all my good wishes and i'll keep thinking of you!

[Wobbly]

I'm glad you live close to all the resource to help you... keep us updated...

take care of yourself
wobbly
dx

[Mike_Shuswap]

Thanks so much for the update! There are a lot of people in here concerned and hoping for the best for you.

It's wonderful that St Michaels is supplying the expensive chemo drugs. I know you and your family have enough on your minds without adding major financial burdens to the mix. I'm also pleased to hear the potential side effects might not be as severe as with other chemo treatments (or did I read between the lines?).

I sure hope the stem cell transplant comes through for you quickly!

Maybe your MS dr was trying to say sorry when he stopped by your room. I hope he/she learned something from not being able to help you.

Anyway, please take care

              Mike

[summerluvr]

Just an update

I got out of the hospital yesteraday.  I feel quite wiped out as I am on pulsed steroids and yesterday was my first "off" day.  I started chemo today as an out patient.  It is a very targeted chemo to the myeloma and only takes 10 mins to infuse, and doesn't have the typical side effects.  The side effects are numbness tingling, and leg spasms, sounds familiar!.  I meet with the top myeloma specialist in two weeks at Princess Margaret Hospital in Toronto.  Cancer care Ontario would not pay for the chemo drugs (very new treatment) but St. Michaels hospital is supplying them on a compasionate basis (they are very expensive!) I feel blessed to live in Toronto with care avaialable to me.  The goal is to put me in remision with a stem cell transplant asap!

THe MS dr who kept telling me I was healthy  came to my room the day before I got out and said well, at least you know now why you felt so bad and can start treatment.  It was a bit wierd.  He kept telling me I was well, I kept saying I felt like s*** now I gues he finally agreed.

[Guitar_grrrl]

Whoahhh, sad news...(sniff...)  Playing and sending soft, gentle, yet strong tunes on my guitar for you.

Blessed Be,
Guitar_grrrl

[biowham]

I am so sorry. Everyone's written everything that can be said, but I would especially suggest when you need support that you read this thread again and especially read the posts that Lu and Ess wrote.

And keep yourself strong. You are in my thoughts.

Bio