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1617130 tn?1299964142

just dx

Hi everyone ive just joined the forum, ive just been dx today with ms, ive kinda knew ive had it for years, but was treated for  strokes., what id like to ask everyone is how will i know what type i have.  thanks rosie
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1437229 tn?1296070020
Hi Rosie,

Welcome to the forum.  This is certainly a wonderful place for information and support.

I am sorry for your diagnosis.  Having a sister with MS gives you an idea what to expect, I am sure.  

Beth
Helpful - 0
1218873 tn?1300091216
Hi Rosie

welcome to the forum there is a few of us here from the UK. I am yet to be Dx, but there is definitly odd things going on that are clearly visable. I Would be interested in your journey to an MS Dx.

This forum is very supportive and a great source of info.

All the best
twist
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1253197 tn?1331209110
Hi Rosie

Welcome to the forum and I am sorry to hear about your recent diagnosis. I was diaagnosed in Uk just under a year ago and am the same age as you. I had also felt there was something wrong wtih me for a while but never dreampt it would be MS.

I am surprised that your neuro has not discussed what type of MS you have and treatment options as it feels quite a long time to wait till June, but as the other have indicated it is most likely to be RRMS/

I love your pictures that you have posted and what a young granny you are! Anyhow good to meet you and this is a great place to learn more about MS and to meet others who understand.

With love

Sarah x
Helpful - 0
Avatar universal
Hi Rosie,

I'm sorry to hear about your DX. You and I are sort of in the same boat. I was just diagnosed on Feb 23rd.

I have so far found this forum to be very helpful the past few months and I hope that you will too.
Helpful - 0
198419 tn?1360242356
Hi Rosie,

Sorry for the dx, but glad to have you with us. When is your appt? And, how is your sister getting along?

Adding on a big welcome to you and hope you enjoy it here amongst friends. Tell us how you are feeling, what brought you to dx, etc., if you feel comfortable telling us.

thanks for joining!
-Shell

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1221035 tn?1301000508
Hi and welcome....
I was dx a year ago....and have yet to feel any better; I am dx with RRMS, however, I continue to wonder, if it is another type.
I have read here that most doctors will keep you in the RRMS category, so you can get treatment; insurance companies will not approve treatment if you are in the progressive MS categories.
I wish you the best.....:)
Helpful - 0
704043 tn?1298056844
hi!!  welcome!!  glad to meet you-just wished it was diff.  yes  it comes and goes with rrms so -lots here know about it so just ask!!  hugs  tick
Helpful - 0
1617130 tn?1299964142
ty everyone again, rosie
Helpful - 0
559187 tn?1330782856
I'd also like to welcome you.  I was the same age at diagnosis as you and that I'd probably had it for years as well.  You have found a good forum here and are so happy you have joined.

Hope to learn more about you in the future.  Again, welocme.

Julie
Helpful - 0
405614 tn?1329144114
Hello from me too, Rosie.  I'm glad you found us: this is a great place to make friends and learn more about life with MS.  Getting to know people at different points in their MS journies all over the world, somehow makes it seem more normal to me, if that makes any sense.

Welcome.

Kathy
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Avatar universal
Welcome, Rosie! Hope to see a lot of you here.

ess
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338416 tn?1420045702
I think the neuros will diagnose with RRMS at first, mainly because they haven't seen your history of symptoms.  As you progress, they can see whether you have relapses and recovery.  If you don't have relapses, but continue to progress, they can decide whether you still fit in the RRMS category.

However, from what I've seen recently, the RRMS designation isn't really accurate - it looks like there's a lot of different kinds of MS out there.
Helpful - 0
1617130 tn?1299964142
Hi Addi,
yes i have an appointment with my neuro in june hopefully ill get something then,  My sister has had ms for last 17 years so i know some about it,

i have been reading a lot on this site about it, i think it is so informative and a great place to find out stuff. thanks again for welcome
                                          
                                                              Rosie
Helpful - 0
1318483 tn?1318347182

Hi there, Rosie.  Welcome to our forum.  I am sorry that you have ended up with MS but now that you have a diagnosis, you can get treatment.  You should be starting this as soon as possible.  Do you have an appointment with your neuro to discuss your options?

I don't know how much you know about MS and all the symptoms that people seem to get.  We have a Health Pages section on our forum.  There is a lot of really good info in there.  You might want to explore though them.  there is a link in the upper right hand corner.  

Again welcome~
Addi
Helpful - 0
1617130 tn?1299964142
Thank you lulu
Helpful - 0
572651 tn?1530999357
Hi Rosie, Welcome to this forum - I am glad you found us here.  The neurologist should tell you what type you have - most people begin with relapsing remitting MS, where the symptoms come and go and come and go.

I hope we will see you around a lot - this group has a lot to offer.

be well, Lulu
Helpful - 0
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