lost

[zaria98]

How do u deal with something science has not even found all the answers to. I was diagnosed on my birthday and its hard to accept what you dont understand

[bbassel]

I was diagnosed in march 2013 aand like everyone the first year was so hard! It came as a shock because I had my first big relapse in jan/feb and diagnosed in march. I had a total of four relapses in the first year and it felt like the carpet kept getting pulled out from under me.

After the first year though I was put on a medication that worked and I haven't had another relapse since( knock on wood).

MS is a hard disease to have because you lose control. That was the part that was the hardest for me.

There are many people that have MS that lead almost normal lives who you wouldn't guess from seeing them on the street. Also another good thing is the wonderful drugs we have that can help keep the 'monster' at bay.

I have had nothing but great things to say about everyone here! It really is a wonderful place like no other on the web.

Welcome and please know you are not alone in your battle.
Hugs,
Barb

[Corriel]

Hi Z, and welcome to the group. Like you, a lot of us have struggled with a diagnosis and the emotions that it can trigger.

Not sure what your history is with respect to symptoms or if you had to wait a while to get a diagnosis but this group has a tremendous amount of experience.

When I was diagnosed with MS in April 2013, I did a lot of research on MS. Some of my symptoms fit, some didn't. When it came time to decide on a disease modifying drug (DMD) my neuro gave me a list of 4 drugs and said they were equal in effectiveness and to choose one and come back a month later to get a prescription.

Looking up symptoms is one thing, deciding about treatment is a whole other scenario.

Feel free to ask questions or scan old posts (you can use the search option with the magnifying glass and check out a term or symptom).

Gentle hugs and be good to yourself, I am not sure how recent your birthday/diagnosis was but the first year after a diagnosis is what a lot of us call the emotional rollercoaster.

Corrie

[firerescue9]

Welcome, and you are right it is hard to accept something that is not understood.  I have been struggling myself with the "why's".  For me, this forum has helped me to understand more then any doctor can tell me.  These people on this forum are going through what you are and understand better of your concerns and fears.  I do not think that I would have the good state-of-mind that I have at this point without the people here.  I have a very great doc and he is doing everything for me that I need.  But there is only so much the doctors can do.  
I hope you find the reassurance that I have with this community.

Leanne

[suspiciouscombo]

You nailed it with, "hard to accept what you don't understand". That said, this community is a great place to begin understanding what many in your position endure. This MS community in particular is impressive, intelligent and compassionate alike.

Truly .... you are in good hands here and others will soon chime in with support.

Ox