Aa
ms?? all test r normal
Hi, I am 28 yrs old, and at this point my dr has no idea whats wrong with me. Next step is an EEG this month then i will talk to a neurologist after that. Where to even start.... ok, i was normal no medical issues at all, then i start losing my vision and my face and hands go numb pretty well at the same time, that happenes several times a day, i almost felt like i was drunk, and i was going to pass out, plus i have no energy for ANYTHING. Then it got to the point that i would start blacking out while driving my car, then the blackouts started happeneing more often, i have been losing my balance alot lately, be walking and next thing i know i leaning against the wall or falling over nothing at all. It is to the point i can not drive, due to many close calls on wrecking. So far i have had a ctscan, mri, glucose test and thyroid test plus lots of blood taken to b tested. So far it has all came back normal, yet this is not normal for me. My mom was at work talking to her friend about it and he said that us what he goes through to a T and he has ms. But he also said he just was diagnosed with it a frw yrs ago in jos 40's. I need some advice. I have 3 young kids that depend on me, and i cant do much for them when i am like this. This has lasted for the past 3 months and i am scared really, just the thought of not knowing what is wrong and the dr saying nothing is wrong, does not make me feel good insode. Please help me!!
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COMMUNITY LEADER
Hi and welcome to our little MS community,
I personally didn't think what you first wrote sounded enough like MS for MS to be the 'most likely' explanation, but with the additional details what you've been experiencing wouldn't typically be what happen's when MS is the cause, it actually sound more like migraine with aura to me.
"What is aura?
Aura is a term used to describe a neurological symptom of migraine, most commonly visual disturbances. These can be:
blind spots
coloured spots
sparkles or stars
flashing lights before the eyes
tunnel vision
zig zag lines
temporary blindness.
Other aura symptoms can include:
numbness or tingling
weakness
dizziness
a feeling of spinning (vertigo).
Speech and hearing can be affected and some people have reported memory changes, feelings of fear and confusion and, more rarely, partial paralysis or fainting. These neurological symptoms usually happen before the headache itself."
http://www.migrainetrust.org/factsheet-migraine-what-is-it-10504
In regards to when your sx's started and child birth......with MS it's fairly common for a pwMS to experience an attack within the first few months after giving birth, but with your last child born years prior to this starting, there wouldn't be any similarity going on there.
I think seeing a neurologist and an ophthalmologist is a really good idea, try not to overly worry about what it might be, you'll have a better idea after you've been assessed by a neuro, so take one step at a time....
Cheers......JJ
I personally didn't think what you first wrote sounded enough like MS for MS to be the 'most likely' explanation, but with the additional details what you've been experiencing wouldn't typically be what happen's when MS is the cause, it actually sound more like migraine with aura to me.
"What is aura?
Aura is a term used to describe a neurological symptom of migraine, most commonly visual disturbances. These can be:
blind spots
coloured spots
sparkles or stars
flashing lights before the eyes
tunnel vision
zig zag lines
temporary blindness.
Other aura symptoms can include:
numbness or tingling
weakness
dizziness
a feeling of spinning (vertigo).
Speech and hearing can be affected and some people have reported memory changes, feelings of fear and confusion and, more rarely, partial paralysis or fainting. These neurological symptoms usually happen before the headache itself."
http://www.migrainetrust.org/factsheet-migraine-what-is-it-10504
In regards to when your sx's started and child birth......with MS it's fairly common for a pwMS to experience an attack within the first few months after giving birth, but with your last child born years prior to this starting, there wouldn't be any similarity going on there.
I think seeing a neurologist and an ophthalmologist is a really good idea, try not to overly worry about what it might be, you'll have a better idea after you've been assessed by a neuro, so take one step at a time....
Cheers......JJ
All of this started after my last kid, she will b 3 in feb, so she was 2 and a half when all of this started. It just started 3 months ago.
At first my vision issues was kinda like a tv channel not coming in very good with the fuzzy lines, then it was like my eyes would not stop going back and forth, then kinda double vision, for example, i was driving at night, when the spell happened, i seen a bunch of lights (street lights, head lights, and tail lights) everywhere and couldn't tell where anything was, so of course i had to pull over until i could see again. Now sometimes everything goes completely black and i feel like i just about passed out, for example i got my laptop and went to grab some papers and i come to falling into a wall about a half foot away from me. That is always the start and then my face and hands go numb, then im fine within 5 mins, sometimes just a few seconds.
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Some of what you describe sounds MSish, some does not.
Balance issues and fatigue are in the realm of MS symptoms. Blacking out and numbness that comes and goes not so much. MS mumbness tends to be on one side or the other and tends to stick around for extended periods of time, days/weeks rather than hours.
There are also different kinds of visual issues associated with MS. Some are optical and caused by inflammation of the optic nerve. Others, such as nystagmus, are caused by damage to the nerves that control eye movement. You said that you lose your vision. Can you be more specific?
At this point I think seeing a neurologist is the right thing to do. You should see one that specializes in MS if possible. You should be prepared for more MRI's, blood tests and in necessay a lumbar puncture.
Finding the cause of seemingly random symptoms can be a long and frustrating process. Be persisten, but patient :-)
Kyle