ms or what

[tess533]

what do you think of this im confused. i had suspect ms about 25 yrs ago ok but never got told i had ms they said i was ok checked by nuro 1 yr after and he said i was ok , never seen anyone since up till 3 yrs ago because optic nuritis started playing up and in last 2 and a half yrs ive had stiff joints vertigo swelling calf (only one leg ) i get sick tummy numb toes on one foot constant ok and very stiff neck and lower back chills so bad i would go to bed dressed lol am am still seeing optomologist every 3 months for past 3 yrs who i might add is convinced i have ms and sent me for mri 2 yrs ago and it was clear .         i felt  so bad last week i went to the doc and he was shocked that i am still waiting to see a rumo for 20 mth s he will speed him up we hope . But here's the thing i want to tell you's lulu if you' around  he is sending me for a dexa scan i will pay private ok so made my app for may 30th  i could not help myself and open'ed the letter and guess what it says i had ms yrs ago and would like advise on lumber scan and risk  as i have had  a few xrays on lumber back   neck and shoulders and at that time x ray person said to me that i have cervical neck sooo ?   my question   is will dexes scan bring me any nearer to them telling me i have ms ??  doc has been telling me foy yrs that i have artrithis and said the other day some people get ms once and may never get it agin because i said i am convinced that i have it so i am double confused now what the heck ???  you may remember i posted last yr about the horrid nuro that said if i was younger he would be more concerned  CHEEK lol and that i have migraines and thats all ?? but i dont get head aches i told him soo any advise you could give me would be great  cos im getting depressd now :(( xxx                                                                                                                                                                            

[tess533]

thank you very much for your reply  will keep you posted :)

[tess533]

thank you for your reply hope you are keeping well yourself ? very windy here for past few weeks i think we had summer last month lol . I guess i was expecting to hear yes if all is excluded in bone scan then yes it must be the ms ? i have never sprained a bone let alone broke one in my life (  tuch wood ) i  just think the way my stiffnes is that it may have been spacisaty thing  prob spelt that wrong sorry hope you can understand my spelling . i will have it done on the 30th so will let you know the outcome ok and many thanks agin for listening :) x

[Sumanadevii]

Tess, I am not sure if I am understanding but MS does not show in the lumber spine.  It shows on the cervical and thoratic spine.  

And age for being dxed with MS?  This board has many that were dxed in their 50's and 60's,  Like you, I had symptoms but put it off to other things.  Sure wish I hadn't.  

Best of luck getting answers.

[Lulu54]

Hi tess and welcome back.  how is life on the Emerald Isles?  

I know you asked about the scan in the other question you posted but let me repeat here  - the dexa scan is used to check bone density.  It would have nothing to do with diagnosing MS.  

If your doctor is thinking you have osteoarthritis you would want to have the scan done to check on your bone strength.  If it is showing signs of thinning, the doctor should put you on drugs to help with that problem.

I have no idea what he might have meant that some people only get MS once.  MS is forever  - if you have it, it won't go away.  Could he have said some people only have one attack of MS and then it gets quiet?

Of course you're confused when the doctor is telling you these things which make no sense.

good luck,
Lulu