Hi Sandie,
Sorry you are having these same issues. I am dx'd. Well, MS doctor dx'd me then retired.
New doctor decided to undx me after 3 visits. I have been off of my Betaseron for 3 months now.
This is the second time I have had bladder issues while I was asleep. The first time was minor but eye opening.
This time was major and very upsetting. I was never a bed wetter even as a child. So this is ridiculous.
I am waiting on my LP results. We will see.
Hope you get answers soon.
LA
Hi LA
I'm not dx yet, I'm going through all the tests right now. One of the problems I've been having is bladder. There have been times when my bladder just let loose like that, right before I could make it to the toilet. I get this constant leakage, sometimes a little more than leakage, and I never feel it coming out.
Then there are times when it feels like something is coming out, but there is nothing happening. I just left a post about my sx, and I get the numb feeling, burning, tingling, pressure, urgency, ete. I was told by my urologist, that it's not my bladder, it's neurological. I just started taking Vesicare.
I getcha, there are times when my bladder is so whacky all day, that I'll bring a change with me just in case. Are you dx? Maybe you're having a flare. I feel so bad that you're having such a rough time. Let us know what comes of all this, and what the Docs say. Take care huh. Hugs
Sandie
I was soaked. I know I did not wake up while I was going because the wet blankets were cold.
This has happened to me once before. I woke up and realized I was releasing urine in little spurts all over myself & my bed. I can only guess there was some sort of muscle spasm going on down there.
I do know exactly how scary/frustrating/embarrassing/confusing this is. It was a real eye-opener and a literal wake-up call that there was something serious going on with my body.