now i am a one legit bandit!

2 yrs of being told its phyciatric even though physio, eye specialist, and friends and nurse practioners all say its early stages of M.S. 2 yrs of slurred speech, off balance, blotchy vision, double vision, partial paryalis, trouble swallowing. these symptoms would come and go for the last 2 yrs. neurolists turning a blind eye. now i have for the last 2mths permanent disabilit with my right leg. It is heavy feeling, tight and wants to move in to the center{ almost pigeon toed} still get all the pulsating twitching in lower extremities and as well numbness and tingling in legs and arms. now that i have disability in right leg will i get a diagnosis?

[Sparkysarah]

I think we joined the forum around the same time although I am not sure we have "met" yet so really just wanted to say Hi.  I am also wondering what tests you have had done so far as you have been suffering for what feels a very long time having looked at your journal and posts.

No-one can tell you if and when you will get a diagnosis and a lot will depend on where you are with previous investigations. All I can suggest is that you hobble along asap to your neuro again and plonk yourself in their way and demand an appointment and some answers. Someone must be able to throw some light on your right leg disability and sounds like you have seen duffer neuros previously. Maybe time to find a new one?

Cheers for now and keep that lovely smile going that I spotted in your photo.

Sarah

[LisaJF]

Hi Lori,

Can you elaborate on tests that may have been performed? Did you have a MRI of the brain and spine?  How about blood work?  I wonder why the NP's would say its early stages of MS without any tests or have they done so?

You do have quite a lot of symptoms that would mimic MS, but have any of your doctors ordered tests to come to that conclusion if the feel its "early stages of MS"?

I'm so sorry to hear that you are going through such a hard time. I  can't imagine.  Welcome to the forum (unless you've been here for quite sometime and I happen to be slow on the uptake).  

Let us know ok?

Best wishes,

Lisa

[Sparkysarah]

I think we joined the forum around the same time although I am not sure we have "met" yet so really just wanted to say Hi.  I am also wondering what tests you have had done so far as you have been suffering for what feels a very long time having looked at your journal and posts.

No-one can tell you if and when you will get a diagnosis and a lot will depend on where you are with previous investigations. All I can suggest is that you hobble along asap to your neuro again and plonk yourself in their way and demand an appointment and some answers. Someone must be able to throw some light on your right leg disability and sounds like you have seen duffer neuros previously. Maybe time to find a new one?

Cheers for now and keep that lovely smile going that I spotted in your photo.

Sarah

[lori115]

thanks love, I have been through alot. I have an appt. with a nurse practioner tomorrow as i am hoping for more answers from her. last month when i seen her she helped me write a letter to a female m.s. specialist- neurologist and i am just waiting to get an appt  to go to edmonton. I am 6 hrs away from any neurologist and with my off and on vision problems i do not trust myself to drive. I have been fighting so hard for answers and i have become very blunt as someone needs to do something. I am writing a letter to the paper and i am going to forward it to the mla . I told my dr. off back in september as he just tells me to sleep it off. so any medical care i need i go to the walk in clinic.thanks for your positive words and encouragement it means alot. hugs to you and thanks for responding

[lori115]

i have had heart ultrasound, mri's x2 head and neck xrays. 2 cat scans and spinaltap. blood work galore. ultrasound of my neck. the mri's show a flare, 2 small lesions, grey and white matter on the brain. the two interns suggested symptoms kind of mimic, M.S.  or cebral palsy or a for of Muscular dystrophy  that is as close as we are. physio says it looks like m.s.  I had vision problems so i was sent to a eye surgeon - specialist as i had double vision and he pulled up my m.r. and said that these lesions represent early stages of m.s  still no farther ahead then i was 2 yrs ago. other than i have permanent disability with my right leg even after the last 2 mths of the symptoms. now the symptoms are gone and my leg is disabled.  someone has to do something.  thanks for your reply lovey i hope i answered all of your questions, Lori