I have had a variety of symptoms since 07 -in 07/08 I did the round of tests for MS, was told I did not have it, though I did have 2 lesions on my brain. Symptoms went away for a while but came back in the fall of 2011 & have been around since then. The biggest issue is fatigue, which is severe! My body feels heavy and achy and tired and I could sleep all the time.
Other symptoms are pretty minor: tingling in my hands and feet, one episode of numbness in my leg that lasted 2 days, several episodes of the "light halo" around my eyes, headaches (migraines, not so much a problem now that I take Tomapmax).
I had another MRI in 2011, this one with a newer machine. I didn't get much information from the neurologist. Just that it "looked okay." I was frustrated and kind of gave up. Things have continued and I recently met someone from the MS Society...was encouraged to get another opinion and have a neurologist who specialized in MS read my MRI's.
I made an appointment, which was yesterday. The first surprise was that it was with a nurse practictioner, not a neurologist. She took a history, listened to me describe my symptoms. She did a physical exam... the "strength tests", an eye test and evaluated my gait. Then she told me I DO NOT HAVE MS. She told me several times THIS IS NOT MS.
I really want to believe her. But later I couldn't shake this niggling feeling in the back of my mind. She didn't even have a copy of my most recent MRI, had never looked at it. She based her statement on tests from 2007 and 2008. Knowing what I know about MS, does this even make sense? Or maybe the lesions on the MRI from back then are just SO not indicative of MS she can be so positive?? A little input from those with experience with doctors in the field would be appreciated! Thanks!