oral steroid question. need your help

[figuerpa]

Well as you know I started a round of oral steroids. I woke up today and felt really weird. My legs are so weak and feel so heavy. They feel like they are trying to wake up but I was better than this before the steroids. Let me see if I can describe this in a way that will make sense. I am sure the ladies will understand, well the ones who have had an epidural.

It is like when you get an epideral, you can't really feel anything then when it starts wearing off your legs feel heavy and like they are waking up. You get up for the first time to try to walk but it is too soon and you feel like you are going to colapse because your legs can't hold the weight. Does that make sense?

I put in a call to my neuro but I am still waiting for a return call. Not sure if I should go to the hospital or just wait for his call. Is this normal for the steroids or is this just my flare getting worse even with the steroids and maybe I need the IVSM? Can the steroids cause this.

I am laying here in my bed debating what to do and I can't decide. It is kind of scary the way my legs are feeling. My left arm is kind of week too but not as bad as my legs. Should I take the steroids now or wait for my doctor to call? I am so confused, I just don't know what is going on. I have never had it this bad before and I hope it doesn't last too long.

Thanks for reading and I really hope you all can point me in the right direction.

Paula

[figuerpa]

I actually have 2 canes, need to pull them  out. Have been drinking very little in order to not have to go to the bathroom to often. I have been pretty much laying or sitting around.

He still hasn't called me and don't expect him to until tomorrow. I will call again because I need them to fax a note to my job to let them know what is going on and that I can't work right now.

This is crazy stuff, this is the worse I have been with this since it all started. I am scared to go to sleep cause I am afraid my legs wont work when I wake up...silly I know but it is in my head and I can't help it.

Paula

[jensequitur]

I went through several months with that same problem.  My legs would feel sleepy and not really there in the morning, and sometimes during the day.  I would stand up, and find that my legs won't hold me, and I have to sit back down.  There was one notable day when I woke up to answer the phone, and got up from bed - only to fall on the floor, because my right leg wouldn't hold me up.  I couldn't feel it at all.  It wasn't like it was numb - it was like it wasn't there.

This has been an on-and-off problem since 2007.  Fortunately right now it's not on the symptom buffet - instead I've got the chest hug and constipation and arm spasticity.  But when it's bad, my back has these myoclonic jerks, and my legs get weak.

Do you have a cane?  I would see if you can find something to use as a cane, if you don't have one - an umbrella or something.  I hung on to walls a lot, and used a cane when necessary.

[Millsinc]

I'd say a special pray for you! I can identify fully with what you're feeling and going through right now, I've been there twice in one year, hand and foot. Try and keep strong, remember you still have life and folks that love you and the support all of us here at the forum! I pray and hope your neuro calls u ASAP! and ur able to get some answers and relief.

Keep Strong...Keep your head up!

Tricia

[figuerpa]

Thank you two,

I am getting worse and worse. My legs are buckling from under me. I can barely make it to the bathroom before my legs give out. I don't know waht to do. Still waiting for the neuro to call. Hopefully he can do something. I do think its my MS and the oral steroids just may not be strong enough or something. I don't know I just know I am miserable right now and not liking it one bit.

Paula

[Millsinc]

Hi Paula, sorry to hear of your troubles, I am no med specialist but this sounds like a problem I had last year with my left  hand and had to eventually go to the hospital for the IVSM. I started the oral and the problem didn't get any better, rather it got worst. What my neuro boiled it down to, was a really stubborn relapse. I did the three days of IVSM, back to oral for almost a month before I started to get back to normal. PLEASE! I don't want to scare you, but if you're not comfortable with what's happening I'd suggest you go back to your neuro.

I do hope you get some relief soon though!

~Hugs & Kisses~
Tricia

[Lulu54]

Paula, I really don't think this type of feelings can be from steroids, but you know I am often wrong when I dip into the medical side of things here.  :-)  The steroids should be reducing the inflammation.

I'm glad you called the doctor - here's hoping you get a call back, soon.

It's nice the heat dropped for today - enjoy the kindf summer breeze because it's not going to last.

L