post-steroid symptom worsening?

[illinwithoutacause]

i had a 3-day solu-medrol infusion last week after a c-spine MRI revealed possible myelitis.  i have had all the yucky side effects from the steroids which are subsiding--thank heavens--but instead of feeling better, it seems as though my other symptoms are getting worse--buzzing, achey joints, etc.

is this typical?  is it the case where things will get worse before they get better?

best wishes,
binx

[illinwithoutacause]

thank you, quix.  i'll look forward to reading your thoughts about my situation.  like so many others here, i'm just sitting here trying to keep my head attached to my body as it spins out of control and could use some grounding information.

best wishes,
binx

[Quixotic1]

There are rheumatological diseases which cause lesions in the spinal cord.  The one that leaps to mind in Sjogrens.  So can neurosarcoidosis, Lyme Disease, Bechets, and several others.

Sure, bump it up!

Solumedrol can have rebound symptoms in either MS or the autoimmune rheum stuff, but is more likely to occur with the rheum stuff.

Q

[illinwithoutacause]

dear quix,

i thank you for your reply.

it is unclear to date as to what the source of my problems is.  it is unclear if i am i dealing with MS or an inflammatory autoimmune process with neurological presentation.  my neuro-ophtho & rheumie have thought the latter until, but then my neuro did an MRI last week which showed inflammation in my c-spine, hence the solu-medrol treatment.

would it be okay with you if i bumped up my original tale of woe so you could see where i'm coming from?

again, i am grateful for your feedback.

binx

[Quixotic1]

This is not an area of expertise, but I do know this much.  Some people do have an increase in stiffness and pain initially.

But, this far after the steroids you appear to be having a rebound of symptoms.  This can certainly happen to some people.  Their symptoms may improve or stabilize during and right after the infusions, but then there is a rebound of much worse symptoms.  these are the people who the neuros often give a slow 10 to 14 day taper of oral steroids to.  You need to call your doctor and tell him that your symptoms seem to be rebounding.

The achey joints are not a part of MS and they confuse me.  Do you also have arthritis - on the side?

Quix