JB - the good doc tonight, and I really did like him and his open style - said to tell you be thankful it is just RIS. And he meant that in a nice way. He said if you had 100 neuros in a room, 98 of them would want to wait and see about any change in your MRI, or clinical exam before starting you on a drug. He said they don't know enough yet about RIS to make safe guesses for treatment and you are much better off not doing anything.
He said you should be seen every six months - which is what your doc is doing. He also acknowledged how frustrating it must be to have found those lesions and then not know for sure what to do for them, unlike CIS which begs for treatmnet.
One added thing he came back to was he told me to tell you to take Vitamin D. He thinks the neuroprotective nature of D is especially beneficial in RIS. He repeated the take D instruction a couple different times in reference to your situation. He said the optimum range for D is 50-60 - have you had your blood checked lately?
As I said, I really do like this guy - it was the first time I had met him and heard his talk.
Blame it on the pain killers, Mary. Although a shot of copaxone might take my mind off this, too. Feeling a bit dense right now.
Jane - RIS - think of all the people you know who are minding their business and then have some trauma that requires a quick MRI shot of their head. The radiologist goes 'whoa! there's something there that might look like MS' and the patient is referred to a neurologist. Neuro looks and says 'I see the spots but nothing in your exam supports MS dx.' It is happening more often from what the doctor said and understandably frustrating to the JB's of the world who are stuck in limbo.
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