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Avatar universal

recent diagnosis

Hi guys, I'm sat here with a lovely glass off gin reading through your posts and there are so many familiar points I feel like I'm not alone  so ..thanks.
I was diagnosed a fortnight ago after a positive l.p and two progressive Scans..I was slightly relieved as I have had a 7year battle with my G.P over a mountain of symptoms and this resulted in my being referred to the mental heath team, and labelled a hypochondriac...I thought I was losing  it for years!!
B.t.w I have accidentally posted a copy of this on the bowel cancer forum as I get confused with touch screen thingies
I don't think it will tho down too well  :0
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667078 tn?1316000935
It is a relief to finally know what is going on. Sounds like you have waited a long time.

Alex
Helpful - 0
5887915 tn?1383378780
Hi there & welcome.

I am sorry to hear you have been dx'd with MS but I'm sure having a dx is a relief to you as it was to me. I can't imagine how hard it was for you spending 7 years going through the diagnostic process but well done for making it through without throttling a doc in the process.

I know when I was dx'd I felt that all of the things that had made me feel so different from everyone else much of my life were easily explained. I didn't feel as alone & I started to understand ways to help control some of my symptoms.

This is a wonderful community of people with one common goal of helping each other the best we can. You have come to a good place & ask what questions you may have.

Take Care,

Karry.
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Avatar universal
Hi there, sorry to hear about your diagnosis, bit glad you finally have answers to your symtoms. Im sure we can all appreciate how you feel. I too have a diagnosis of MS but also was made to feel like it was all in my head and felt like I was going crazy. It was one neurologist that made me feel like this, but thankfully I had the support of another neurologist and a fantastic GP. Best wishes.  
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
Hi and welcome to our little MS community, it's great you found us but not so great you did because you got dx with MS!

I bet you are pleased as punch to be out of limbo but screaming mad about all you went through to finally get the correct name for the beast, you are sooooo not alone in your medical journey! I've heard there can be a tonne of personal satisfaction, to send an update letter to all the doctors that got it wrong, sort of respectfully informing them to shove their wrong diagnosis.......somewhere :D  

So apart form the the gin, what's your next step are you looking into all the disease modifying drugs (DMD's) yet?

Cheers..........JJ

ps dont worry about any misplaced posts, the mods will move them to their correct forum when necessary, so all's good :o)
Helpful - 0
Avatar universal
Sorry for the diagnosis! But welcome to the forum. This is a great place, with great people. I am originally from England but have been in the states for 35yrs
Helpful - 0
572651 tn?1530999357
As soon as I read you had that lovely glass of gin, I thought your were probably in the UK.  You do know how to unwind at the end of the day and especially at the end of 7 years.  How frustrating that it took so long for one of your consultants to step up and call it MS.  I hope you will be on treatment immediately - you've waited long enough.

You are in good company here and i hope you will come through often to ask your questions and just generally share you status.  This is a gret group of people who will defiinitely hate to here you've joined the club, but will welcome you warmly.

I'm so sorry you have MS but I understand how relieved you must feel to finally have a name for your enemy.best, laura
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