I’ve had these episodes before. I was diagnosed with TMJ about 15 years ago. I’ve had numerous problems with my right jaw. Two years ago, when I had my first attack of MS symptoms, I kept having episodes where the right-side jaw would ‘draw up tight’ and wouldn’t allow me to open my mouth or talk. Then at other times, I would get the “chatter” movements…affecting my speech. I also had several episodes where the left side of my entire face ‘drew up tight.’ I thought I was having a stroke or something and almost had a wreck…scared me to death! I’ve continued to have the right-ear shooting pains over the years, but my jaw pain has gotten better…until yesterday!
I’ve been having burning sensations on my face for over 2 years now…both sides!! (at different times) Lately, in this new flare of symptoms, I’m having facial numbness and tingling. Then, I started getting jaw pain, in not only my right jaw…but now my left jaw too. Every time I chew…it sets it off…just like it used to do to my right jaw. With all these facial/jaw episodes…I’m now wondering if all along, I’ve had Trigeminal Neuralgia. I have a couscin with MS, TN, & Fibro. Any thoughts???
~tj
I do no know anything about this, but I had to comment on the ladies warming you up. It is so sweet and yet it was probably exactly the opposite of what you need.
I did develop an eye twitch after a minor car accident and both my Dr and my PCP said "Yes your wreck (more like a spin out) could cause that."
Cause WHAT a permanent eye twitch?!? No answers to that one!
The twitch has since moved down my entire face and I do clench my teeth alot with no answers except that I have MS (WOOHOO!)
I do hope you are feeling better!
D
I'm trying to remember who it was that talked about their whole-body spasms. They would get tense all over, and sometimes an arm or a leg would flail out. I don't think it was MCBCON, but he has similar symptoms.
Well. I have had the shaking jaw, but at the time I thought it was stress or anxiety. My teeth didn't chatter, but it was certainly bobbing up and down like I was just about to cry - really weird! Before I was diagnosed, I started having problems with numbness and tingling in the right side of my face, following the areas affected by that nerve. Then I started having tremor in the jaw and lips. Everything kinda built up, like you're experiencing, until things got really weird.
So from the research I've done on my symptoms, it sounds like there's something going on with the cranial nerves. The masseter muscle (the muscle that causes your jaw to bite) is controlled by the trigeminal nerve (mandibular division.) The trigeminal is also in charge of your lips and face. Take a look at Wikipedia's entry on the trigeminal nerve. You can see by the illustration that it goes to the tip of the nose, the lips, the chin, and even under the chin.
The body going tense could be a form of myoclonus. I get a stiffening in the legs, when I wake up in the morning - I try to move, and my legs stretch out and freeze in place. I have to consciously think about them relaxing.
Failing that, you could be experiencing a form of hypoglycemia, or even hyperventilating because of anxiety over your symptoms! Numb lips and tingling, accompanied by shortness of breath, is a sign of a panic attack. Personally I think it's perfectly natural to experience anxiety over the symptoms you're experiencing. I had at least one identifiable panic attack early on.
I have been tested for thyroid problems all normal and i take a calcium supplement as i take a mag and calcium supplement.
thanks though, i have up'ed all my vit b and D3 and changed my diet just in case my sx were linked to this and no difference i alos take quinine sulphate for spasms.
sam
Have you ever had your calcium checked? Did you feel faint with it, like you just got super tired and wanted to pass out? Tingly sensations in your head moving downward or from your feet moving upward? It's probably totally unrelated, but there were just a couple of things you said there that reminded me of when I had my thyroid removed and my calcium dropped (due to the parathyroid glands needing a jump start, in my case). Only yours doesn't sound like it overwhelmed you completely, as mine did, and I ended up in ICU. As I said, probably totally unrelated, but maybe worth a check?