I am currently waiting for my results from VEP, MIR (brain and upper back). I have experience 'vibrating; sensation for a number of months now, which seems to be subsiding. However, now I have been left with a strange sensation in my legs and forearms, which is sompletely painless, but it feels like as it water was rushing through my body, especially after I walked somewehre very fast or after any physical activity. As a result I had to stop going to the gym, just doing the occassional swimming and streching at home, every day. I am so so so perplexed if this could be a sign of MS,... No other pains, blurred vision, I think sometimes my legs feel a bit wobbly, but this could be due to stress and extreme fear, what the doc will say. Has anyone else experienced such strange, almost indescribable esnsation? ... Has it stopped anyone from going to the gym?
I have been taking Bvit supplements, kava kava and magnesium.
Constantly looking for answers.
Looking forward to hearing from someone with similar 'sensations'.
Hi! I know what you mean about the strange sensations. I myself have the vibrating sensations, and they can be very bothersome. I also get a feeling like fluid is running down my leg if I am out in the heat. Have you considered that maybe it is not the activity that is causing the sensations, but the fact that your body temperature is rising when you do those activities? If you do have MS, you would be very sensitive to heat and it would intensify your symptoms. You don't seem to have a lot of the symptoms though. What does your neuro who is ordering these tests say?
Thank you so much for your message!
Unfortunately I have only seen my neuro once and she was good to order the tests straight away. They have just taken too long and I think I am having to wait about a month for the results. She did not express any opinion whatsoever, just said she would like to look closer just to make sure,... this was aobut 2 months ago and I have experienced all sorts of painless tingling, ... sometimes I even think my body used to be like that before it is just that I notice it more now.
But the fact is I just can not do any exercise, no running, no cycling without my arms and legs getting 'overexcited' and working 'overtime'. If fact, I have this feeling of 'rushinf water' most of the time. I think this sensation still comes under the parasthesia umbrella.
What about yourself? Have you got your dianosis or are you undergoing any tests?
Hi there! In my opinion, it doesn't sound like MS. Of course I'm not an expert. I think it could have something to do with y ou exercising so much. Sounds like you are working it pretty hard. I would suggest cutting down exercising for a week or so and see if you still feel this way then. Just my opinion. Karina
It can definitely be a long process waiting for test results and such. I have been told by my neurologist (the fourth one I have seen in four years) that I may have MS (after the third MRI in four years showed two old lesions, but were non specific). There is just not yet enough findings on my tests to diagnose me yet. I could also have Lupus, or another autoimmune disease. We just don't know yet. I am being scheduled to have visual evoked potentials soon, and we will discuss a lumbar puncture when I see my neurologist in four weeks. I have a multitude of symptoms (too many to list right now). Your symptoms can fall into the category of MS-type symptoms, but you really don't have enough of the symptoms for me to say that I think you could have MS. The way it has been explained to me, the symptoms of MS can be very non-specific, meaning they could be caused by many other things. It takes having many of the MS symptoms in combination with each other, atleast two flare ups of symptoms lasting more than a month, and having something show up on tests like a lesion on an MRI or something in the spinal fluid to say you have MS. You don't really meet any of that criteria that I can see right now. The symptoms you are describing could be caused from a number of different things. I think you are doing the right thing by seeing a neuro though. There is always the possibility that you are in the very beginning stages of onset of the disease. If this is the case, it will probably take your symptoms worsening, and more symptoms showing up, before anything will show up on an MRI or subsequent testing. I really hope you find the answers you are looking forward. Remember, I am not a doctor and could be very inaccurate in my opinions. I am just going off of what I have learned during my process. Do try and take it easy until you get some clarification on all of this. Best of luck!
You both may be right, currently I can not even go to the gym, however much I would love to. But you may be right, Karzme,.... I will do slightly less streching and see what happens. Jenn, you are propably right, currently I may not be displaying a whole array of symptoms, however it is just my legs and the occassional tighness in my upper forearms. I must I have been observing myself more and more (which propably everyone does under such circumstances) so noticing things I may not have noticed in past. They say even if you display slight symtpoms of MS and is you are diagnosed, even if not progressive symptoms do have tendency to get slightly worse say every decade.
Wish you good luck Jenn with your VEP test, it is not painful nor plesant.
Thank you for your messages, I found them extremely reassuring and I hope you are both correct.
What other symptoms have you experinced? I am really interested in what other people are experiencing and how this is interpreted.
Oh well, back to work now,... at least the weather is doing well here in rainy England.
Hope to hear soon.
Hi, Janey, If I could jump in for a sec here. Your symptoms are concerning to me, though they are non-specific. They would fall under the heading of paresthesias. The weakness and wobbliness following are also concerning. If the sensation was caused by working out too hard, then it should have subsided quickly after you stopped going to the gym. If you also are extremely anxious over the test results, that can give similar feelings. What was the complaint that prompted the MRI and EP? Did you have any abnormalities on her neurologic exam?
Janey - How is then sensation of water running thru you different than the vibration sensation. Also, do you have this all over equally? Or is it stonger (or just present) in some places? Same question with the vibration feeling you had earlier.
Jenn - The definition you neuro gave you of what it takes to fulfill the requirements for MS is WAY, WAY too narrow. The diagnosis can be made presumptively with 1 symptom, especially something like optic neuritis, proper MRI findings, of at least two lesions - Even if there are no abnormalities on physical exam, This would be considered to be a CIS -Clinically Isolated Syndrome. Many MS doc's will begin treatment with a disease altering med as this has been shown to delaY THE ultimate onset of MS. 80% if people with a clearly indicative CIS will progress to clinically definite MS. The definite diagnosis can be made with two lesions and a history of two suggestive relapses. I would have to check, but a relapse can be symptoms of just days. If there are also abnormalities on the physical exam like hyperreactive reflexes, weakness, nystagmus, (cerebellar signs) dysmetria + Babinski, spasticity, optic nerve pallor the diagnosis can be nailed.
Many doctors who are older or insecure of their knowledge of MS hesitate to call the diagnosis for fear of "labeling the patient." Most docs in the field feel that the benefit derived from treating CIS when it presents (this is the first relapse/attack) outweighs the "label problem".
Do you think I should do one of my little lectures on CIS? And maybe the use and meaning of the VEP? Or a discussion of the McDonald Criteria which seem to confuse even some doctors, given the cases we've seen here, who to my mind met the criteria for treatment long ago.
Actually I am going to post this question to the forum at large also. If people are interested, I'd like to write more "Quick and Dirty" Blurbs on things.
If this is choppier than my usual answers, blame my new (used) laptap. I got a little cheapy so I could post from my recliner, but the keyboard is so different, it takes my attention away from what I am saying.
Glad I could give you some advice. I hope it helps some. If you want to know my symptoms here they are. In April I had double vision all of a sudden, blew it off. I thought I just bumped my head. But started to get cocerned, so called eye dr. She did an exam and noticed my eyes weren't tracking right. Right eye never moved, just looked straight. Had double vision for about 3 months.
Took awhile to get use to it. Was really annoying, but atleast I had an excuse for seeing double. LOL. So had 1st MRI done without contrast. Had to wait almost a month for a definite diagnosis. Was told could have brain tumor and/or MS. Found out in June, no brain tumor, but yes to MS. Had 2nd MRI a week or so, before seing 2nd neuro for confirmation. This time with contrast. 1st neuro was a joke. And he has other MS patients. Feel sorry for them.
Now my balance is off. Am numb from waiste down for about 3 weeks or so. Is a scary feeling to not be able to feel legs or especially my feet. Have to concentrate more on walking, because I can't feel what I'm walking on. Is frustrating. I hope it goes away soon, but fear it wont. My memory was bad before, now sometimes it's a joke. Feels like someone stole my brain (so to speak), because it doesn't work real well. At work one day last week I washed my hands 3 times in a row and forgot to turn off the water. Has never happened before. I could hear it, but I guess I forgot I heard it. Realized a minute or so later, it was still on. Weird things happen when you have MS.
Found out on 2nd MRI, also did spine. (Only did my head on 1st one.) That I have alot of lesions on my spine. So not sure if that's what is causing pains shooting up & down back. Or if it's arthritis that I have in back. Anyways, this is getting really long, so will close. Karina
You appear to be extremely knowledgeable regarding all about ms. Yes, I have already looked up info about parasthesia and found it to fit my symptoms quite well. However, at the moment I am experiencing a bit of a numbness near groin area. It has been there for a few days now and I thought I injured myself as I visited my osteopath last week and he had to correct (tryst me very painlessly) one of the bones around my pelvis. He said it would take few days to calm down, so presume my numbness could be due to that,... but you neverf know. I remembered I had exactly the same about 2 years ago, when I visited Rome, I could not even walk,... again, visit to oteopath, few days numbness and then back to normality.
Currently I find just find it strange that even when I walk anywhere, it feels as if I was running to my destination,...ei the amount of effor does not match to how I feel afterwards. The 'tremors' (however slight they were) have subsided, my I do have them in my hands just a bit most of the time. It is not stopping me from writting or typing,...
Quix,... yes I am extremely scared about the results.... what prompted the consultant to order the test was I had a period of nearly 2 weeks where my legs were completedly numb from knee down and a slight painless pulling sensation from heels upwards when I put my head down. This has now gone. Re Vibrations,... I think these are slightly different to the 'running water' feeling, as the 'running water' feeling is not very strong and goes as soon as I start moving. I usually get about 30 seconds vibrations around my face and forehead first thing in the morning when I open my eyes; this I only noticed very recently. Does it mean anything? The running water is usually in my legs, but it not very strong at all and can be ignored. Vibrations were previously in my legs and arms too, but those are gone most of the time too. Thank you very much Quix (and everyone else for any thoughts).
Read the posts. I feel a ticklish sensation in my feet when i try to sleep, which results in me lying on the bed for hours waiting for the sleep to finally come. I do have the same feeling in my hands but not always. The vibration (i dont know if thats what it is called) i normally have below my eyes and its sometimes really annoying. I have been having back ache for years now but it used to get better with passing time. Of late i have been facing problems with my energy levels, getting restless for no reason, lack of appitite and headaches which kinda keep coming back. i have not taken any medication (even for headaches) for almost 5 years now. I do smoke (regularly) and drink occasionally and am not really good with my eating habits (i am 32 years old...if this information helps). After reading your posts, i thought its a good idea to check with you all incase anyone shared the same issues. Please let me know if anyone is experiencing anything like this and the medication / advice doctors have given.
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