I know it's established that 95% of MSers will show lesions in the brain MRI and that 80-90% will show oligoclonal banding in the CSF, but aren't those numbers for those who have been clinically diagnosed with MS? What I mean is that when we figure in all of those who actually do have MS but haven't been clinically diagnosed, isn't it possible that those numbers are actually lower? Does that make any sense?
Makes alot of sense to me...
I have 8 lesions in the white matter of my brain but my spinal came back neg. my first neuro that Dx. me said that happens alot early in the disease. Now my second neuro told me that he is not sure he would have dx. without the positive spinal but he's treating me because I have already recieved the dx. I think it really depends on your doc.
You are correct. You do not have to have a positive spinal or VEP to be diagnosed with MS. And in fact, the CSF can be normal early in the disease and perhaps become positive later. Also, it depends what is going on in your disease process, sometimes.
Additionally, some types of MS DO NOT show a positive LP. Therefore, when it is positive as in relapsing-remitting, it helps rules out some of the other forms. There are many types and forms of MS.
I am not a doctor, but this is what I have interpreted in my readings. Hope this helps!
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