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Avatar universal

unsure

i am 33 and mother of 2 i had a spell back in may where i could not see anything for about 15 min.
it looked liked i was looking through water. freaked me out alot. i called the dr.  and made an appt. they ran abunch of blood test. came back sed rate was 38(HIGH). went back 2 wks later retook the blood work sed rate was 34. a month later went back and it went back up to 39(HIGH). he then sent me to a RA doctor to see what he thought and he ran loads of blood test and a bone scan . bone scan was ok found out that i was vit-D deficinte. he said that when you are vit-D def. you are more septable for immune deiseases. so he wants me to see a neurologists now and it is taking for ever for me to get in and i am getting anxious!! here are some other symptoms i am having. gittery all the time you can't see it but i can feel it, muscles twitching all the time everywhere, dizzy, emotinal mess at times, can't sleep long because my rib cage hurts so bad, tingling in spots of my back not all the time it has happend in the past headaches everyday from am to pm!! no energy severlly fatigue at times when i get warm or hot. no one seems to understand how i feel it is really getting to me. now my legs are achy all day from moring to night along with the twitches(spasms). also i have a reall hard time remembering anything. i have always had a hard time but not this much.someone please help.
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Avatar universal
thanks for the info. i am suppose to go to the dr tuesday wish me luck. i will let everyone know what happens.
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147426 tn?1317265632
Hi,  I just saw your post, even though it's from a few days ago.  I'm sorry you have to have an anxious time over all this.  It's not clear that these things you are going through are likely to be MS.  The very brief loss of vision sound more like the vision loss one might see with a migraine.  In the context of MS we would expect the problem to last a minimum of 24 hours and usually more.  

With the high sed rate one would think of an inflammatory disease.  Do you have all the results of all the blood tests that were done?  It is important to get these, for there are certain ones that are very important to do.  The link between Vit D deficiency is not as strong as your doctor indicated.  There is a link, but it is more toward a long-term Vit D deficiency.  Did your doctor mention MS?  If so, ane, given your slightly higher risk for the disease, it makes a LOT of sense to request that your primary doctor go ahead and order an MRI of your brain with and without contrast.  Then the neurologist will have at least that much information.

MS doen't really run in families.  It is not inherited, but a certain susceptibility to it does occur in the children of people with MS.  In the general population about 1 in 1000 people get MS.  If your own mother or father have the disease your risk is 1 or 2 per 100.  So it's still only a couple percent chance.  With the disease being in a grandparent your risk is somewhere in between.

Some of the things you're going through can be casued by severe anxiety, such as jitteriness, muscle twitching, being emotional, and they can also be very non-specific symptoms of many diseases.  With the moderately high sed rate one would still be concerned at other autoimmune diseases or infections.

The fatigue and muscle aching, while they do occur in MS, also occur in most of the other inflammatory disorders, too.  I still think it would be a very good idea to request the MRI of the brain with and without contrast while you are waiting for the neuro vist.  

Good luck, Quix
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Avatar universal
thanks for your concerns. it is nice to know that there are people out there that understand. my vision episodes only have happened a couple of times. the main concern for me is the other things going on. i am suppose to go see the dr on the 28th. not much longer that originally they moved it up. also i found out that my grandfather had ms. i think it can run in families?? It might not be anything serious hopeful! i have read that with every symptom i have it could be for alot of different things. i am trying to be positive. thanks for answering some of my questions.oh and the RA dr said that there is nothing that he can do for me at this time it is a sit and wait what the other dr says.
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Avatar universal
How long do you have to wait to see the Nuero?  If its a while you might go back to the refering GP and ask them to refer you for an MRI of your brain.  Your Neuro will likely order it anyway and so why wait for that too?

Jon
Helpful - 0
230625 tn?1216761064
I'm sorry you're going through this now and aren't feeling well.

Is your RA doc no longer looking for answers for you?  I'm not sure if an elevated sed rate is indicative of MS or not (someone else here can answer that for you).   It seems like your RA doc should still be testing you concurrently with you seeing a neurologist.   Has he given you any medication for your symptoms?

Maybe you can see an ophthalmologist to check out your visual issues while you're waiting for a neuro appt?  There is a condition called Optic Neuritis (inflammation of the optic nerve) that many MS suffers get.  There is a risk of developing MS after having ON, but is not 100%.   I'm not sure if your visual issues are indicative of ON or not, but it's worth checking out while you are waiting.

I'm not diagnosed yet, but I do have the muscle twitching (lower legs), dizziness, and constant headaches.  

Hang in there!  I know it's so hard to wait when you're not feeling well.  Especially when you are a care-giver to children.

We're here to support you and listen to you vent, if needed.  

Take care!  Pat :)
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