weird neuropothy question

[Tmaw0703]

Fot those of you you who have neuropothy I have an akward question to ask.

Have you ever have the tingling in your groin area?  Not numbness but the tingling.  I get this tingling, and I'm imbarrased to admit that that at times the tingling is so strong that it actually arouses me.  Not major arrouse, but hopefully you understand what I mean.    It feels almost like a mild vibration. All this neuropothy is new to me, so I sometime feel like I'm crazy.

I still have the tingling in legs, feet and forarms too.  I ask the neuorogist about it and he didn't comment, only to say that he wanted to see what the EMG results were.

Another thing. Shouldn't Neuro have suggested MRI, he said I ddid have pereprial Neuropothy, and that he was going to do his best to figure out what was causing it.  He didn't seem to really listen to all that has been going on with me. I think I',m going to type up my journal and make sure he gets a copy of it.he only set up EMG test and put me on Neurotin.

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92%

 (13) 

Yes its common

7%

 (1) 

No never heard of this one before

0%

 (0) 

Must be something else going on with you

14 Members voted

[saveone]

I have had this since 1985.  I was pregnant at the time.  I complained of it to my OBgyn, it was mostly burning at the time.  She thought it was the pressure of the baby on my pelvic floor.

It didn't go away with the birth.  Then I thought I was wearing my jeans to tight or something.  Always an excuse.

take care, terry

[Udkas]

Hi there,
I have had numbness and tingling in my groin, perineum area and now I have burning.  My neurologist did tell me that it certainly does happen with MS, although he doesn't think my latest lot of burning is from neurological origin.

I can't say I found it arousing, I just find it painful and it makes me miserable.

Maybe the neuro thinks all your symptoms sound peripheral in origin, perhaps if the EMG shows nothing he/she will schedule a MRI.  Things like equina caudia can cause problems in that area too, so it might pay to have your lower back checked out.

Good luck with it all.
Udlkas

[Erin0313]

Hi. Sorry you have the icky tingling.

I have had it for years and hate it. Sometimes are worse than others but it is never "normal".

I have had 3 dx for the cause.

  1) neuropathy
  2) disc buldges (sp?) in my lumbar #4 & #5
  3) Transverse Myelitis

I do have MS but have never asked the MS docs what they think. My 3 dx came from 3 other neuro's on my journey to the MS dx and I have never thought to bring it up at any of my MS specialist visits. Maybe I will do that in October just to see what she has to say.

Good luck
Erin :)

[HVAC]

I call it the vibrating cell phone in my lap syndrome. LOL
Alex

[jensequitur]

I've had myoclonic jerks in my spine (or maybe tonic spasms) that also cause a weird tingling sensation in my torso.  And yes, sometimes it feels good, but after the fourth time in a day, it gets old!

[Heather3418]

At my age, I actually look forward to those tingles in that area.  It's been about a year now, since it's happened (sounds like my intimate life) and I can't wait for it to happen again.

Forgive me for being crude.  It's such a strange sensation that I have NEVER mentioned it to my doctor's.  But it's about the only part of having MS for the past fourteen years that I have actually enjoyed.  The "burning" sensations I have had ocassionally....now you can keep that part.

Okay, I am through embarrassing myself.....

Heather

[saveone]

Heather you are hilarious....ROFL

terry

[shoshin]

Well, I can't say I've gotten any pleasant sensations in that or any other area from MS. Unpleasant ones I have in spades.

However, it is interesting that your doctor thinks you have peripheral neuropathy (which is completely different in cause from MS, which is a disease of the central nervous system, but which has some overlapping symptoms, especially sensory ones).

I was actually told I had idiopathic (cause unknown) peripheral neuropathy for six years. I finally went to see a PN specialist who did more tests and ultimately concluded that I actually have MS. I put my story in my journal if you're interested.

The PN specialist told me that most people who have idiopathic PN are in their fifties and sixties when they get it and have painful small fiber neuropathy. If that doesn't describe you and you don't get any satisfactory answers from this neuro, you probably should look for a new one.

An EMG (or the nerve conduction part anyway) is a test of the peripheral nerves and is sometimes done in an MS workup to rule out peripheral nerve problems.

An EMG will only show neuropathy of the large fiber peripheral nerves so you could still theoretically have peripheral neuropathy, but it's less likely. I was initially dx'd with peripheral neuropathy even though I had a normal EMG/NCS.

It seems like there are a lot of causes of tingling, but I hope the neuro will do the right tests to find out what's really going on.

FWIW.

sho

[jensequitur]

Yeah, I never mentioned it to the neuro either.  I just don't trust him to interpret it correctly, to be honest.  He just doesn't have a good track record, so I figured I'd save myself the trouble.

I did describe the rest of my symptoms - the convulsions, the odd sensations in my torso - I just never told him it felt good.

[Tmaw0703]

It's good to hear everones input.  Help me to know I'm not going crazy.  Still have not had EMG and He siad Bloodwork came back neg. I'm not sure what all he was testing me for. He said I could have a copy when I came in to see him in October.