Aa
where can we have the "liberation" procedure now?
Hello, I am new to this site. I am part of the ms community and after reading lots of articled regarding this procedure I would like to ask all of you if you are aware of any place where we can have the procedure done - Canada, USA , Mexico?
I have my ms since 2001 and now my walker does not help me too much...
Thank you in adnab\nce for ANY info!
I have my ms since 2001 and now my walker does not help me too much...
Thank you in adnab\nce for ANY info!
I've just been looking on the internet and there is a place in Ireland offering the test and reports for 195 Euros - approx $250.
They only offer the test, not the treatment but right now I want to wait for more studies to be completed before I would even comtemplate it.
I must admit though it is tempting to get the test done, I am in the UK btw.
Mand
They only offer the test, not the treatment but right now I want to wait for more studies to be completed before I would even comtemplate it.
I must admit though it is tempting to get the test done, I am in the UK btw.
Mand
Hi safe,
The medical tourism business to India really has received high marks for patient treatment while saving those of us who are uninsured/underinsured significant money from having the same treatment done at home. I have read of the work being done with hip replacements, open heart procedures and other proven and safe procedures, most of those with good success rates.
India offering CCSVI is news to me, though. This treatment, while holding promise, is still unproven and not without risks. There is also a CCSVI treatment option through Ireland, Saudi Arabia and Poland.
It appears that many medical groups in non-US countries are more than happy to jump aboard the CCSVI train, without having the thorough knowledge of the final destination. We all hope that CCSVI is going to unlock the answers to this MiSerable disease, but I can't help but think it is much too soon to be buying airplane tickets to go half-way around the world.
Even Dr. Zamoboni recently said in the AAN news conference that patients should wait for treatment until further controlled studies are completed.
be well, Lulu
The medical tourism business to India really has received high marks for patient treatment while saving those of us who are uninsured/underinsured significant money from having the same treatment done at home. I have read of the work being done with hip replacements, open heart procedures and other proven and safe procedures, most of those with good success rates.
India offering CCSVI is news to me, though. This treatment, while holding promise, is still unproven and not without risks. There is also a CCSVI treatment option through Ireland, Saudi Arabia and Poland.
It appears that many medical groups in non-US countries are more than happy to jump aboard the CCSVI train, without having the thorough knowledge of the final destination. We all hope that CCSVI is going to unlock the answers to this MiSerable disease, but I can't help but think it is much too soon to be buying airplane tickets to go half-way around the world.
Even Dr. Zamoboni recently said in the AAN news conference that patients should wait for treatment until further controlled studies are completed.
be well, Lulu
I found this information, but do not know the actually cost of the procdure....this is just for the testing.
Buffalo Neuroimaging Analysis Center (BNAC)
Their website:
http://www.bnac.net/
The following is included:
MRI of the brain and neck: This MRI is designed to collected special pictures of your brain and neck. The MRI will last 60-90 minutes.
Doppler ultrasound: A non-invasive test that uses reflected sound waves to evaluate blood as it flows through a blood vessel. It helps doctors evaluate blood flow through the major arteries and veins of the arms, legs, neck and more recently with the new instruments also the flow trough the brain. It can show blocked, reduced or reversed blood flow through the major vessels of the neck and head. This exam will last about 45 minutes.
Clinical visit with a neurologist: You will have a physical examination which will include blood pressure, pulse, and functioning. You will be asked questions regarding your medical history as well as what medication you currently take and have taken in the past. There will also be questions about your MS diagnosis, symptoms, and relapse issues. The tests will evaluate disability associated with MS, leg, arm and cognitive function, and fatigue. The visit will last approximately 60 minutes.
Neuropsychological evaluation: You will complete a group of tests which are designed to assess memory, cognitive functioning, hearing, verbal learning, motor function and mood. This testing takes about 2 hours.
Blood sample: You will be asked to contribute 2 tablespoons of blood for evaluation of specific genetic factors related to higher MS disease susceptibility and severity.
This study has no funding assistance. At this time, there isn’t any health insurance reimbursement for any testing component. You have agreed to pay $4500.00 for the testing and reports.
Thanks,
Christina Brooks
Administrative/Project Coordinator"
Buffalo Neuroimaging Analysis Center (BNAC)
Their website:
http://www.bnac.net/
The following is included:
MRI of the brain and neck: This MRI is designed to collected special pictures of your brain and neck. The MRI will last 60-90 minutes.
Doppler ultrasound: A non-invasive test that uses reflected sound waves to evaluate blood as it flows through a blood vessel. It helps doctors evaluate blood flow through the major arteries and veins of the arms, legs, neck and more recently with the new instruments also the flow trough the brain. It can show blocked, reduced or reversed blood flow through the major vessels of the neck and head. This exam will last about 45 minutes.
Clinical visit with a neurologist: You will have a physical examination which will include blood pressure, pulse, and functioning. You will be asked questions regarding your medical history as well as what medication you currently take and have taken in the past. There will also be questions about your MS diagnosis, symptoms, and relapse issues. The tests will evaluate disability associated with MS, leg, arm and cognitive function, and fatigue. The visit will last approximately 60 minutes.
Neuropsychological evaluation: You will complete a group of tests which are designed to assess memory, cognitive functioning, hearing, verbal learning, motor function and mood. This testing takes about 2 hours.
Blood sample: You will be asked to contribute 2 tablespoons of blood for evaluation of specific genetic factors related to higher MS disease susceptibility and severity.
This study has no funding assistance. At this time, there isn’t any health insurance reimbursement for any testing component. You have agreed to pay $4500.00 for the testing and reports.
Thanks,
Christina Brooks
Administrative/Project Coordinator"
Hi CKMS, welcome to our community here. I believe you are the first member we have had from Namibia. I hope there are some helpful articles here for you.
CCSVI angioplasty and stenting is only being studied in the US and it is not being done on a regular basis.
I believe there are places to have it done in Europe - Poland is active with this procedure. If you want, you can find lots of references and names at another MMS site called thisisms.
Good luck - I wish you well in finding a place close to you that can do this procedure.
my best,
Lulu
CCSVI angioplasty and stenting is only being studied in the US and it is not being done on a regular basis.
I believe there are places to have it done in Europe - Poland is active with this procedure. If you want, you can find lots of references and names at another MMS site called thisisms.
Good luck - I wish you well in finding a place close to you that can do this procedure.
my best,
Lulu
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