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why at night??

Why is it at night we feel more of these sensations then during the day?I have tingling feet, sapping pain senations, the bag of worms moving under my skin, and low back pain. I am waiting for a appt with a nero.
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Avatar universal
I think this is what Lulu wrote. I have also read that Restless Leg Syndrome, a syndrome of the nervous system is active at night because during the day the nervous system is too busy processing the other needed signals of the nerves so the nervous system is just too busy to process Restless Legs, but at night the demand on the nervous system is less and the Restless Leg Syndrome is processed. It's like getting a connection on the internet. It's easier to do at night.
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Avatar universal
I more than 2nd everything that has been said above but I also want to add the "circadian rhythm" that is a person's normal biological 24 hour clock that includes temperature & immune system activity. When I was diagnosed, the neuro told me that I would notice my symptoms more in the evening, speaking was a problem for me & he said I would notice this more in the evening. I do. He said just like people who have had strokes tend to be more forgetful in the evening and slur their words more noticeably in the evening. That I thought was from being more tired at the ending of the day....

But I added to WHAT I BELIEVE, a JMO thing when I had 2 episodes of hives for unknown reason. Hives are the immune system misbehaving. MS is too. And I have had a stuffy-runny nose for years all the female members in my immediate family do...another immune system misbehaving.

When I had those hive it was so impossible not to be aware of when they got worse & when they got better through out the day. The itching & red blotches would start in the evening go through the night, get better in the morning & afternoon then get bad in the evening again....

Well I just thought that is the same pattern my sudafed use was. I would start heavy taking sudafed when I was a student trying to concentrate on homework or trying to sleep. It seems that MS was on that cycle too. My MS symptoms worsened in the evening through the night. Maybe it wasn't just evening fatigue, maybe a part of it is that my immune system gets more active in the evening. My immune system is causing MS, so that is probably making my MS symptoms worsen in the evening.

Well now I really thought I was on to something. So I searched for "circadian rhythm& MS" I found a study that reported a research...You know how the interferons cause "flu-like side affects" and we are advised to do the shot at night or in the evening and sleep through the side affects...but that is the worst time to do something that gives flu like side affects, when the immune system is most active.

In the study they had people switch to morning shots & some who had flu like symptoms didn't have them when they did their shot in the morning instead of the evening. Not all but some..

I was interested in that, because when I used betaseron, I always did my shot in the morning to get it over with so I didn't have to think about it for the rest of the day. I never had flu like side affects, maybe it was because I did my shot in the morning?

SO IMHO, MS symptoms worsen in the evening because of what everyone has said above & because the immune system is more active in the evening. "circadian rhythm"
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293157 tn?1285873439
well, when I went to the MS specialist and she asked me how I've been, any new symptoms... I had my list...I tried to keep it short... maybe 6 things..could have been more..

she told me to keep going to Physio Therapy... walk with my walker when I can.. don't overdue things... and get into some Relaxation type of thing... Tapes...time out and not to watch the TV...lay down and relax... I thought that was abit strange...since I don't do much to begin with.. but she said to try not to think so much.. I can appreciate that..

she and I are still waiting for more testing...no Dx...not yet...and maybe I won't get one for awhile..so I have to learn to work with my body to help fix things...that's what I got out of her appt..?..

and Yes, I get alot more pains... zaps, tingling.. noises in my head...burning on my sides.. usually late afternoon and evenings... not necessarily in bed though..

take care
wobbly
undx
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572651 tn?1530999357
cozy,
This is from my journal - I wrote this a few months back about this very topic........  Lulu


During my brief time in Limbo I was regularly sending my MS neuro faxes with lists of possible symptoms - things like jerking legs and twitching eyes.  Everything that I felt, I wrote down and sent off to him, since he had told me to report anything new to him and I had no idea what was MS related and what wasn't.

The next time I saw him in person we had a serious talk about my hypersensitivity to all my symptoms.  he gave me this analogy-


You know what its like when you go to bed late at night, and finally all the outside stimuli of televisions and conversations and everything else associated with noise is turned off?  You then lay in bed and listen - and you hear the floor boards creak, and the furnace cycle, and the rafters of the house shift.  All the noises you weren't hearing before are now quite noticeable when you stop and listen.  Our bodies are much like that - when we turn off all the other external noises and start to focus on the signals our bodies give us, we hear so much more than usual.  And in our heightened state of being hyperaware of being ill, we tend to hear even more.

He then went on to reassure me that this was normal, he encouraged me to continue to fax him if I wanted to, and that it would get better.  He was absolutely right, the noises my body was making haven't necessarily gone away, I have just learned that they go along with the creaking floorboards.  

Anxiety about every little symptom I believe is a normal process of learning that you have MS.  It does get easier.
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Avatar universal
Hi!  If I've missed greeting you in the past, well, here I am now. Greetings.

My take on this is that things are worse  when we're tired. Also, and especially when we're trying to get to sleep, most other distractions are blocked off. So, for instance, that ringing in the ears that we can pretty much ignore when we're active takes center stage when the rest of life gets quiet.

ess
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